Bad 12 month relapse! Will I ever get better :(
Posted , 7 users are following.
So its coming up 12 months since my first diagnoses of glandular fever and if im honest the first 8 months were absolute hell. I was literally bed bound and unable to work. I also caught a stomach infection on top of this awful virus and have lost nearly two stone in weight in the past year. Things slowly started to improve around the 9 month mark, where i was having a few good days and a few bad and the odd bad relapse here and there. I started working again as i felt about 80% and if im honest, I needed the money after being unable to work for 8 months. However, recently im having the worst relapses! i'm getting ill all the time again and I cant describe the fatigue/fever and body aches, they are just awful! i'm only working part time and have eaten super healthy & rested when necessary since my diagnosis. I'm just so sick of being sick now and missing out on so much! I just want to be a normal 23 year old 😦
0 likes, 18 replies
lob12506 jess14025
Posted
i feel you man, Ive had it for 3 years now, and I still stay in bed for the whole day if I can. Ive been pushing through and not resting as I should have been for the whole time really, maybe thats why it goes on for so long. ive had it from 20-23 years now.
craig07920 jess14025
Posted
Oh Jess,
I really do empathise remembering the awful year I went through with mono too, my timeline was similar to yours in many ways, really struggled for that first 6 months especially, still not at all great the next few months and it wasn't until about 10 months I really started to feel like a change. But it still took time after that to get back to full health and there were some days / spells when felt more fatigued and with mini lapses and things, just want to reassure you this is normal during the recovery phase and that you will continue to improve and your body's strength and resilience will grow and return over time.
My experience Jess of Year 2 was that it was SO much easier and more joyful than that awful first year. Although still was fragile and had some wobbles along the way, generally it was a year where was able to get back to a normal way of life and feel much better and liberated from this terrible virus. So just want to encourage you to hang in there, God willing I hope, pray and believe that you have weathered the worst of this thing and that much better times are ahead.
It's so hard with work and things, I know it took me an extended period after being off and working part-time to build things up again, just remember to look after yourself and go at the pace that is right for you just now, even if that means things take longer at work or even if things don't get done, so important to look after yourself during recovery and remove as much stress as possible, I know it's easier said than done though!
Thinking about you Jess and definitely believing that this next year ahead is going to be a much much better one and one where you experience real breakthrough, very much hoping this relapse / tougher spell right now settles down very soon, remember this can be normal and it will be temporary and things will stabilise and settle again soon, I really do believe that given my own experience and reading the recovery stories of many others who went through similar spells during recovery.
Hang in there Jess - you ARE going to get there with some more time.
Craig
jen83382 jess14025
Posted
Jess,
Your immune system needs help to rebuild. suggest you do some online research for supplements that will help. Once my regular doctor said he could not do anything g to help, I saw a holistic doctor who suggested several supplements and acupuncture. I believe that is how I got through this st the speed I did.
lori93950 jess14025
Posted
maybe it was too soon to go back to work ?
i was doing well too around 9 months then had a night out ( home by 8) and relapsed that was almost 2 months ago . it seems like unless you rest alot it doesnt go away ! and yes know how you feel im at 1 year too ... its been absolutely awful .
craig07920 lori93950
Posted
Hi Lori,
I am pleased to see a message from you have been wondering how you were doing, was concerned maybe you were having a tough week as hadn't seen much messages from you over the last week. I am hoping you are feeling okay, just wanted you to know I was still thinking about you and hope that you are doing well.
How has the therapy been going? I hope it has been helping and that you have managed to get plenty of good quality and peaceful rest too and have managed to get out for walks and make it to church too when wanting to.
Still believing that better times are ahead for you Lori, that you are going to fully recovery, Jesus is our Lord we can trust Him and He heals and has good plans ahead for you - standing firm in that belief and praying for a full and complete breakthrough in your recovery and for God's hand to move in your situation this week, in Jesus' name.
Hang in there Lori - and remember message any time.
Craig
diane83287 craig07920
Posted
Hi Craig,nice to see you still on here giving your wonderful words of encouragment,i did message you a while back but not sure if you got it, i am once again laid up with what i thi k is another bad relapse,does this ever end? hope you are keeping ok Craig ?
craig07920 diane83287
Posted
Hi Diane,
I am pleased to see you posting as sometimes wonder if don't hear from you in a while, so sorry to hear you have been having a bad relapse at the moment, that's awful just want you to know I'm still thinking about you and keeping you in mind. I hope you've been coping okay after the terrible loss you suffered recently too, such awful news, it would be understandable if the stress of that has unsettled your body again and maybe led to this relapse at the moment.
I do hope and pray so much that things settle down again very soon and that you can be feeling stronger and better. I will keep you in my prayers Diane. And of course you can message me any time either through the public forums or privately, yes pick up the private messages and will reply God willing.
Thanks also for asking how I am doing, things been more settled these last few weeks and grateful for that. Still just taking it all one day at a time and grateful for your kind words of encouragement and support too Diane - may God bless you this day and over the coming period and always.
Craig
diane83287 craig07920
Posted
Thank you for your kind words Craig and im really pleased things have been more settled for you,thats a good sign,yes it was a terrible shock about my brother,the police came to my house at 1.30am to break the news to me,they had to force entry into his house,it really affected me badly and i was too ill to even attend his funeral,i had it videoed to me livestream. Im sure its a relapse with the ebv,the symptoms are just the same as last time,im now trying celery juice ..Im sure stress plays a part in my relapses,hope to speak again soon Craig and sending lots of love xx
diane83287 craig07920
Posted
Craig i have sent a reply back to you but it says its waiting to be moderated
diane83287
Posted
I wonder if its because i put the name of a book that has been helping me on my post?
lori93950 craig07920
Posted
hi craig
yes it was a tough week . my regular nurse for my ozone is away and the nurse i got was just awful so not a great experience and really stressful with the iv so took a lot out of me.
been resting all weekend to get over it . hope youre ok .
craig07920 diane83287
Posted
Hi Diane,
Your message has come through sometimes when it says being moderated it just means that it will come through but needs to be checked first for whatever reason.
It's only understandable that you would be so shocked and upset about your brother and that this would have an effect on your health, especially when you were still feeling fragile and had been through such a tough time yourself. I do hope so much this relapse settles down soon, I still believe there are better times ahead for you Diane goodness knows you must be so weary and drained by everything. I'm still thinking about you and rooting for you.
Yes been grateful been doing a bit better still having some ups and downs though, my back not been the best today and it gets to me sometimes, I just hope things can be stable and not go back the way as don't think I could face that.
Sending lots of love to you too Diane, you continue to be an inspiration to me in your kindness and words of support despite everything you've been going through, and I still believe our God is going to pull you and lead you to a healthier and happier place - hang in there Diane.
Craig x
craig07920 lori93950
Posted
Hi Lori,
Oh goodness so sorry that it's been such a tough week this week, I do hope that the nurse that you are used to is back this week and it can make things a little easier at least. It can certainly be very unsettling and distressing even when someone who you are not comfortable with it treating you. Glad you manged to get some rest over the weekend and very much hoping that this can be a much better week ahead.
My day has been okay my back been a little more unsettled and that can get me worried, just hoping the Lord has mercy and it can only be a temporary setback, need His help for that and everything.
Still praying for you Lori, will keep trusting the Lord that even though we don't understand why you're going through this right now but He knows what's going on and has plans for good things ahead for you - stay strong and don't give up hope, there's always hope with God.
Craig
diane83287 craig07920
Posted
Hi Craig glad my message has come through but they have removed some of it!! i put the name of a book that i am reading,must be that,thank you for keeping me in your prayers Craig,it means a lot,you are such a kind person and have helped so many even when things arent good for you,takes a special person to be able to do that,aww your still having your back problem,wish they would get to the bottom of it for you,have you been reffered to the pain clinic? Im struggling bad with these gf symptoms,flu feeling,aches sweats exhauxtion etc,just having to lay in bed,so maddening isnt it when you thought it had gone for good,apparrantly though once youve had this the virus stays in your body for ever and goes dormant,seems like mine is reoccurring when i have been upset or trying to run before i can walk!! wouldnt be so bad would it if it was just like a normal flu bug that lasted a couple of weeks but this thing goes on and on,anyway i will love and leave you for now,weve got some nice weather coming over the weekend so hope you can get out and enjoy it,take care Diane x
craig07920 diane83287
Posted
Hi Diane,
Thanks so much for your kind words, really it's only because I know how frightened and scared I was during this virus and how low it brought me that I just want you and others to know that there is hope and there is recovery and full and healthy life after glandular fever. Don't be put off by the thought of the virus remaining dormant in your body, this is a very normal thing and once your body (thanks to God) has it under control it can do no harm to you.
God is the great healer Diane, it can be the hardest thing when you can't understand why something is happening and to keep hoping and believing during those times, we just need to keep trusting God that He knows what's going on and has good plans for your future - I still believe that Diane He is good and He is faithful, He is not the author of this sickness but the healer I know that for sure.
Hoping today can be a stable and settled one for you, there will be good and great days ahead for you Diane I still believe it in my heart. God has been helping me a lot lately I've been very lucky, just taking things one day at a time though it's all any of us can do and just keep trying keep believing.
Thinking of you Diane and sending best wishes, hope that the nice weather can come and it can give you a lift and get the chance to sit out in the sun - getting that vitamin D can be really good for your health and recovery. Hoping that you are finding some help with vitamins and herbs lately, remember a good strong multi-vitamin, B complex vitamin and Vitamin C are so important every day.
Craig