Balance

Posted , 7 users are following.

I am finding that I am having worse episodes with balance the Vertigo.  Anyone else having balance issues.  I walk into walls, fall down stairs.  

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  • Posted

    Christine, Do you ride horses? I've had horses all my life and my daughters ride and showed all through middle/high school. I'm 58 and have only 3 on the farm with now but they are my joy and my peace. I ride daily if I can and realized my dream of an indoor arena last year. smile I'm over a decade into MD and my balance issues and vertigo were actually worse in the beginning years than they are now. Anyway, I got a little excited to think that there was another horse lover in this forum as horses are who I am. smile

    • Posted

      Yes I ride horses! I have ridden most of my life and shared various horses with a friend for 30 years. We lost our last one a year ago and haven’t replaced him as I developed Meniere’s and retired and my friend is semi retired. We now exercise her daughter’s two horses while she is at work. And muck out of course. She has a ménage too and last year installed a walker which is a real luxury this time of year with rain and mud. I’m in U.K. I am 72 so I suppose I should be grateful I developed Meniere’s late in life. So far I’m normal on medication although there is always that feeling of uncertainty at the back of my mind. 

    • Posted

      Oh how wonderful!! I think horses keep us young and balanced (in more ways than one!) and my fellas remind me daily to stay focused on what's important in life. smile I have not had any issues riding but I don't spin around whenever I'm lunging...the horses know to keep going and circle around me so that I can stay stationary. Otherwise I'd certainly start to feel dizzy. Years ago I used to have trouble bending over to pick feet but that has subsided. Today it's -20 with the wind chill in Wisconsin USA so mucking is a challenge! I have 2 granddaughters who love to visit and ride our littlest pony so it's important to me to try to stay as healthy as I can to enjoy these times with them. I'm so glad to know you, even though there's a big pond between us! ~Mary

  • Posted

    Hi Willow, It has been my experience that the later stages of the disease my vertigo has subsided some only to be replaced with loss of balance. I have been in wheelchair since 2015
    • Posted

      I’ve been through so much since surgery on 11/30 I just don’t know what to think. I got the call from work today, good thing I purchased long term but was told it’s precondition since having for years.  But like my husband said take it one day at a time.  It’s just an unfair condition to me, my family and my grandchildren.  Depression has really reared its ugly head.   
    • Posted

       Dear Willow, I know and share the feelings of this being unfair. My husband is having to do so much more around the house and I also have children and grandchildren close by and I really feel bad that I cannot do things with them as much anymore. I have never been depressed in my whole life and have always been a positive person but I too am crying so much of the time and I know I am depressed.  My GP started me on anxiety meds and I know they are helping. I’ve never wanted to take a drug like that but this disease has forced me to do it. God bless you and be with you in the coming days.
    • Posted

      Hi Candy, I hear you about the anxiety medication, I never needed anything like this prior to coming down with meniere's. I too have always tried to have a positive outlook, but it's tough and nearly impossible to deal with sometimes. If I allow myself time to look around in my life I can see many blessings for which I am thankful for, and that sometimes is my only motivation to push on 

      Wishing you the best  ø¤º°`°º¤ø-:¦:-•:*'""*:•.Bertman •:*'''''*:•-:¦:-ø¤º°`°º¤ø

  • Posted

    I am getting inspiration as well as education from all of you and I thank you for that! I have always been a positive person too but after all these years is really starting to wear on me. One morning, after I had lost most of the hearing in my left ear I woke up in a panic because I dreamt I couldn't hear out of my right ear. I started to think about what my life would be with no hearing and just my loud tinnitus to keep me company. lol That spurred me into more action. Up to that point I was just dealing, day by day. Deciding to find a supportive group and getting after my GP to help me find more answers was my start. This is a nice group and a supportive place to come...I don't feel so alone! Hang in there Willow, these bumps in the road will smooth out for you!

    • Posted

      I am sooooo great full for this site. I was in my early 40’s when first diagnosed and I could manage. My ENT, once diagnosed helped a lot.   I’m just hoping like my family doctor has said it’s going to take time to heal.  I had a lot of trauma done recently and he has hope I’ll be back to myself.   (I also work for him). He wants me back but only 100%.   I had to get a handicap sticker yesterday and at 49 that’s not what I was expecting for my life.   But like my family says and I have to get out of this self pity mode, be positive I’m on the right track, believe the doctors are doing what they can to heal this.  And one day I can dance with my little princess again.  I am so glad I found this site again.  Has anyone tried acupuncture for this condition. I have a friend who relentlessly tries to get me to go.  

      Good day, pray that we won’t be on a roller coaster today and we can walk a straight line 😀

    • Posted

       Willow, I have been getting acupuncture for the last five months. I go to a chiropractor who also does acupuncture and she says she has several patients with MD. The problem is, I don’t know if it’s helping or not because the symptoms come and go and change all the time. My severe attacks have really been few and far between. So maybe it is helping, but I decided I would try anything and I would definitely tell you to go and give it a try. It can’t hurt and it might help. Good luck to you.
    • Posted

      Hello Mary, 

      I agree with you, it is a God send to have a support group, a place to go where people understand.

      Meniere's disease is a complicated illness that few people know about or understand. Meniere's disease

      came up from behind me and covered my ears and shook me profusely, kicked my legs out from under me, gave so much more to worry about, and just left me spinning. It took me quite some time to adjust to my new way of life. If I had a dollar for every time I've seen a Physician for these issues I would be well off.

      We all face challenges in life, some are easy and short lived, some are harder and stick around.

      I refuse to submit to Meniere's disease, I can't let it win. Most days I feel lousy, on days I feel a little better I take advantage of the time and accomplish a few things. I find one of the biggest issues with the disease is "Adjustment" getting use to doing everything different. I am glad I found this website, I can learn so much and maybe with a little luck I can help someone too! I guess it is very true, we don't have to be alone unless we choose to. Wishing you a beloved day 

      ^^^^^^^^^^^^^^l |^^^^^^^^^^| ^^^^^^^^^^^^^^^^|

      |?    ?      I am Pulling For You !!!!!!!!!!! ? ||”"”;..\___.

      |……_______________| l______________l _||__|…, ]

      “(@)’(@)”""""""*l'(@)l'(@)l """"""""""""""(@)'(@)""""'(@)

      ...?......................Bertman……………………………………………..

    • Posted

      I really needed this pep talk today !  Thank you so much.  

      Willow 

  • Posted

    I agree Bertman! smile

    Depression is such a huge issue with this MD nonsense and we have to fight it off every day. Easier said than done some days! In the beginning my kids good-naturedly teased me a lot, thought it was all in my head...called it my mon-chi-chi disease. Once my hearing loss started they finally knew that I'd been battling a real problem(and they are older now too) and they have been so great trying to help.

    Another difficult aspect is that from the outside we look fine, just like everybody else. Live in our heads for just an hour tho!! People are sympathetic if they see a broken leg or obvious physical issue but it's a little harder to explain when it's a mostly invisible/misunderstood/fairly unheard of ailment. I hope all of you have a wonderful support network of family/friends to lean on!

    ~Mary

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