Band of Fibromites

Hi Teressa I started to become ill in 2004, I had a breast cancer scare, everything turned out to be ok. But after that my health took a nose dive. I was forever feeling ill with different symptoms. and in 2005 I ended  up bedridden from the june to early dec. by jan 2006 I seemed fine for a few months then the same happened again became ill bedridden again then ok. Thats what it kept being like for me, I had no idea it was fibro I wasnt diagnosed until march 2014.Then I realised it must of been fibro that had been making ill. I would pick up again then go down again.I have no idea why I went into remission, but the reasons why I had flare ups became ill I think was due to stress worry. I nursed my mum through cancer my best friend died suddenly we were the same age and went through school togeather and grew up together I was numb with shock from her sudden death. then my son got depression had to be home schooled. then my husband had 3 break down.Ive noticed stress worry certainly doesnt help our condition.I am still trying to work fibro out thing is it differs from person to person in the severity of it.The only other thing Ive noticed is the past 3 years its grown in severity. I am now at the severe end of fibro it has really affected my mobility that I now have to use a wheelchair when I go out. I dont know if Ive helped you or not. I really cant put a finger on why I would go into remission, my body is alaw unto itself Im afraid I have no control over it. hope youve had a good weekend and not too much pain take care gentle hugs xx

Gosh Karen, what an ordeal... I'm so sorry. I wish I could help... take you out of that wheelchair. I see you had a succession of shocks, emotional shocks and that possibly triggered the disease. It apparently hit you like a thunderstorm since you were  bedridden for so many months. 

Have you ever tried alternative medicines?  If I were you I would... when all else fails we have to keep trying. 

How's Charlie? 

Take care, sleep soundly. XX T. 

i will always be there fo you no matter what you have been there for me so im always there fo you x

morning Teressa how are you today? charlie seems alot better to what he was thankgoodness. hes on the road to recovery now I think. thank you for asking. Ive had a rough few years my life like many others hasnt been easy from starting from child hood. I think their is only so much our bodies can take. the result of everything I went through is having this condition. but their are people worse off than me theirs alot of suffering in the world. I just take each day as it comes and plod on as best I can. I have been looking into alternative medicines..I managed to get 6hrs sleep last night. charlie being more setled is helping as I was up with him all last week. today Ive woke up with sore throat earache my right leg is very painful. hope your not in too much pain you managed to sleep ok. its raining in shropshire today its alot cooler. after being sunny warm yesterday. hope you have lovely day and as good a week as we possibly can. take care Teresa gentle hugs xx

Hi Kaz, wonderful to hear that Charlie seems to have turned a corner.  Another big worry off your shoulders - worry and stress are our worst enemies for fibro.  I have the boss from hell and he caused complete havoc to me on Friday and was aggressive and rude even though it was of his doing.  I've fretted all weekend and last night, knowing I had work today and would have to deal with it all, I slept so badly.  Now today I'm in agony and so tired I cant think straight - Catch 22 situation as because of his nasty ways I've got mountains of clearing up the mess he's caused and dealing with difficult clients and I could do with being 'on form' - which is far from the reality.  I was reading somewhere that some doctors in the USA think that poor sleep is actually one of the causes of fibro and not just a symptom - rings true with me, stress makes sleep difficult and then I'm in more pain, and then I sleep even more badly, vicious circle eh.

Hi Loxie worry stress definitly dont help our condition, it makes our condition 100x worse. Im so sorry to hear how you are being treated by your boss, you certainly dont need that with the condition we have. he sounds like a right ar... hole.its no wonder your feeling as you are after how he was with you on friday, I can fully understand you dreading going into day and having all that to sort out. with our condition. they tell us  to try to limit our stress worry hahaha if only we flaming could.it does make sense what some drs are saying in the us that poor sleep could be one of the causes of fibro.lack of sleep causes all sorts of problems for us. Hope you get on ok at work I realy feel for you the situation your in with a pig of a boss.have you thought of claiming pip or ESA. thinking of you take care gentle hugs xx 

hi kaz.  Cant afford to stop work unfortunately, still go a mortgage to pay etc.  My boss is one of those people whose arrogance is boundless and doesn't give a hoot about anybody but what makes it worse is he knows I cant afford to just leave and he thinks he can get away with treating me like sh**.  I do rebel occasionally but it usually just ends up in a fight and that causes more stress, so I grit my teeth and put up with it.  One day, when I can either leave or retire, I shall get him alone in a locked office and totally let rip at the piece of scum lol.

Hi Karen

Great to hear  that Charlie is better...pets are such a big part of our lives... one less worry and  burden on yor shoulders. Those 6 hours sleep are still not enough ... 8 in a row is the minimum recommended for the immune system to work properly. I hope your cold gets better during the course of the day. I'm not too bad today thank you. XXX Teresa.

Thats the trouble loxie he knows hes got you over a barrell for now ? your day will come when you can get your own back. I did that with one of my bossess her face was a picture I showed her up like she had me revenge is so sweet at times. take care hun gentle hugs xx

Hi Teresa pleased to hear your not feeling too bad today thats good to hear.its always an added bonus when we are having not too bad a day. I hope I can get 8hrs in tonight I did last sat. felt better for it. we shall see what happens tonight. hope your having a good day and plenyt of rest. take care gentle hugs xxx

on the subject of sleep - couple of things I've found helpful lately - I tend to get a really blocked nose overnight, probably slightly allergic to something in the bedroom, so I occasionally take a piriton just before bedtime and they do tend to knock me out which means I get a better night's sleep.  Also I've started taking Vit D3 daily and someone told me to take those late at night because they can make you drowsy.  They also seem to be helping a bit, dont wake up quite so often during the night since I started taking them.  Last night was worry that kept me from actually falling asleep and then because I was awake, my partner's snoring drove me nuts.  Of course then I started to fret that I really needed to get to sleep as I had a hard day at work today, which is guaranteed to prevent you nodding off  oh to be a cat - mine must sleep 16 - 18 hrs a day, unaffected by anything including thunderstorms

hI loxie I symapthise with the snoring my husbands snoring is really really bad, that doesnt help me when Im trying to get off. being stressed worried definitly doesnt help us.its sometimes a vicious circle where sleep is concerned never mind onwards upwards take care gentle hugs.

Hi Loxie

That's not fair that your boss makes you feel in that way.  Mind you there are so many of them still at the top.  Look for another job if you can.  I too can't afford not to work and have increased my hours from 5hrs a day to 6hrs a day from Aug. My choice but, I do have a good team I work with and have the employers supporting me.

Gentle hugs to you and I feel for you.  xx

Hi Loxie, Thanks! Long time no hear... how have you been doing? I've not been sleeping well at all: can't sleep before 3 am. I wake up in the middle of the night lots of times, etc....i'm definitely going to start taking the Vit D at night (can't take Bs or Cs at night but Ds i don't see any problem indeed) , see how it goes. It may be a coincidence ( I'm just guessing) that I stopped magnesium for a while and there may be a correlation. The alternative meds seem to be working on some levels except for the sleep and tiredness (related I bet) that are wearing me out. Your cats don't wake up with thunderstorms? That's way to Zen!