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Band of Fibromites

Posted , 6 users are following.

kaz_40
kaz_40

We are a band of fibromites standing strong to fight.

Although the road is abumpy one, theirs always hope in sight.

We face many a daily battle. a mountain we must climb.

Conquering the sumit each every time.

Supporting each othe rto help get through the day.

Trying to stay positive in all we do and say

We over come discrimination standing strong united as one.

We are the band of fibromites fighting on and on smile

5 likes, 44 replies

44 Replies

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  • PiliPalaB4ch
    PiliPalaB4ch kaz_40

    Posted

    Well said Kaz! A very good mantra! Onwards and upwards fellow Fibromites! Gentle hugs everyone 
    • kaz_40
      kaz_40 PiliPalaB4ch

      Posted

      smile onwards upwards battle on gentle hugs xx hope you have agood weekend and not too much pain xx
  • loxie
    loxie kaz_40

    Posted

    lovely thoughts.  Although I have to say the word fibromites conjurs up images of wee beasties picked up in the long grass lol
    • kaz_40
      kaz_40 loxie

      Posted

      lol little beasties um may e have to think of another name to call us? homework for the weekendlol gentle hugs take care x
    • PiliPalaB4ch
      PiliPalaB4ch kaz_40

      Posted

      Fibrorangers? I hadn't thought of the mites link, but now I can't visualise anything else!!! lol
    • kaz_40
      kaz_40 PiliPalaB4ch

      Posted

      lol xx at least its raising a laugh we certainly need that xx
  • SteV3
    SteV3 kaz_40

    Posted

    Hi Kaz,

    I have put forward an idea to Alan (the moderator) for Fibromyalgia Syndrome, to have a useful page of links and resources that we can reference people to with this disorder. This way you can ask Alan if he can add further resources, that are not available on patient.info to the Pinned post, without your post going in to moderation. In my case this happens a lot.

    I have suggested one such link that I am sure I sent you already, but you direct others to the Pinned post to actually see the link and allow them to view the external information themselves.

    I am also covering Benefits as well, so this will be updated ASAP.

    Regards,

    Les.

    • kaz_40
      kaz_40 SteV3

      Posted

      Hi Les you were on about sending me a link but I havnt recieved it up to now? I think thats avery good idea for us to have own page of information that people can access for them selves. the more information we can get hold of the better for us, things like benefits are a mine field, Much appreciated you putting that to the moderator for us take care regards kaz
    • Emis_Moderator
      Emis_Moderator SteV3

      Posted

      At the request of other fibro users I created a pinned discussion on the fibro group page a month ago with links to resources and as a way for users to introduce themselves and list symptoms etc but no-one has made use of it. It is here

      https://patient.info/forums/discuss/fibromyalgia-introduction-and-resources-437341

      As it says on the post I can edit this to add more resources as long as they conform to the rules for posting links etc. If anyone has any suggestions send me a PM with details rather than replying to that or this post. I have added a link in the pinned discussion to the Benefits discussion group which will also have a pinned discussion of resources once I get round to it.

      Regards,

      Alan

  • TeresaJS
    TeresaJS kaz_40

    Posted

    New poet in the House?! Maggs got competition!
    • kaz_40
      kaz_40 TeresaJS

      Posted

      Maggers still our poet lauriet Im just filling in? while shes on a breaksmile xx hope youve had a good day today and hope you have alovely weekend with not too much pain gentle hugs xx 
    • kaz_40
      kaz_40 TeresaJS

      Posted

      afternoon Teressa how are you today, I was in agony last night with my back, I was up all night what with the pain and charlie not settling. Been to the vets this morning with him, hes given him a cone to wear hes upped his tablet got to see how he goes on over the weekend. take him back next week.hope you have a good weekend and not too much pain take care gentle hugs xx 
    • Bee70
      Bee70 kaz_40

      Posted

      Charlie will be fine. Hope you are feeling more positive Kaz.

      Have a chillaxing weekend. wink x

    • kaz_40
      kaz_40 Bee70

      Posted

      hi Bee hope you have a chillaxing weekend toooo fingers toes everything crossed some much needed sleep to gentle hugs xxxsmile
    • Bee70
      Bee70 kaz_40

      Posted

      I was speaking with one of my sister-inlaws last weekend, who is going through her menopause. She is at the start of her menopause, and I was explaining although I am not going through it, but getting night sweats, constantly feeling hot and no sleep..... She suggested I try Lady Care Magnet.....which gives relief to all my sypmtoms but is used during menopause without the aid of any meds.  I have just bought one today and have attached it to my underwear. It's a magnet worn 24hrs a day at all time, not to be used in bath or when swimming. So I am going to give it a go and will report back on my experiences.

      Fingers crossed but may not see any changes straight away but definitely within a month.  Anything worth trying without the use of meds.

      Take care and enjoy your chillaxing weekend. winkxx

    • kaz_40
      kaz_40 Bee70

      Posted

      Hi Bee got fingers crossed it works for you hun, let me know how you get on. I didnt take anything when I was going through the menopuse I just coped as best as I could but the sweats and mood swings? to say I was evil was an understatement you couldnt look at me I would fly at you horrible horrible it was so glad Im over it. my mom sailed through it no problem she was through her menopause at the age of 42. wish I had sailed through mine but I never do things by halves melol you take care chill out have a great weekend xxx
    • PiliPalaB4ch
      PiliPalaB4ch Bee70

      Posted

      Hi Bee

      two of my friends used these magnets for the menopause and swore by them! I didn't suffer sweats with the menopause, so I didn't need them, my sweats have started since my Fibro melt down! My menopause started very early and passed reasonably easily, unlike the very, very painful periods I had from my teens to my menopause! On my friends' recommendations I hope they work for you too. Gentle hugs x

    • Bee70
      Bee70 kaz_40

      Posted

      I hope it helps for my fibro and not too far from my menopausal years. I am 45 and know many can start early but I have recently been checked and been given the all clear for now.

      Night sweats I have had since my late 20's. rolleyes

    • Bee70
      Bee70 PiliPalaB4ch

      Posted

      I hope so too.....just to get some sleep and reduce the night sweats. I have panda eyes at the moment and my eys feel as if they are half way down my cheeks. rolleyes x
    • kaz_40
      kaz_40 Bee70

      Posted

      ooh in your 20s I feel for you. sweats started in my middle 40s I had gone through the menopause at 53. I am now getting night sweats againgggggrrr from the horrid mr fibro. I will be 55 dec I was hopeing to get my cool pillow from able world this weekend but just had water rates bill and charlies vet bills, will get 1 once charlies finished at the vets hope your having a chilling weekend so far xxsmile 
    • PiliPalaB4ch
      PiliPalaB4ch Bee70

      Posted

      I hadn't thought of the magnets helping me now, if they are as good as my friends say - then I really should give it a go! My menopause was done and dusted by the time I was 45! 
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