Fibromyalgia Introduction and Resources

I am 65 and just retired from a very physical job.  In Jan 2015 I had a fallen uterus and had surgery, the doctor said because of my age we might as well go ahead and do the history tony while we're in there.  I assumed he new best, he' s the doctor.  I worked last in June of this year, I have always been active, never sat still for long.  Now it's December and I can hardly move without one of my muscles hurting.  Over a period of about six months I have been getting severe muscle aches, pain and swelling first in my lower back, then my left rear cheek, now all the way down one side usually the left.  It is different every day, sometimes a muscle above my right knee will ache, I rub it to find that it is painfull.  Then maybe the next day my ankles are swollen and ache a lot or my right knee may be hurting, it's different every day.  Now the upper part of my neck aches so much I feel my head is to heavy to support it.  I cannot sleep on my left side anymore because it will take only 30 seconds and the pain comes back.  I don't sleep much either because my legs feel like lead weights tide to them and the severe aching wakes me up.  I was taking 2 aspirin at night and then two Ibuprophen in the morning to stop the aching and pain.  My feet, toes and hands would sometimes get contorted end when I tried to straighten them out they were so stiff I couldn't.  I have very deny eyes and now they also ache.  My doctor gave me sugar water shots and then another different shot in my right buttock so see what would happen, no change as they wore off.  I now am getting very lightheaded and sometimes neausous in the mornings, have no idea why and can't seem to explain the symptoms well enough.

Exrays were taken of my legs and my joints look fairly good for my age so it's not artheritis so I am stuck.  I dread going to bed because I know I won't get any sleep.  I cannot walk that far because it feels okay at the time but as soon as I stop I suffer like hell and I know once I lie down it will be painfull somewhere on my legs or hips.  If I keep standing up and moving it isn't as bad. 

If if anyone has any ideas or going threw the same I would love to hear back.  If you have any suggestions that would help that would be great too.....

Thanks for listening, that helps too!

Hi.

I am 23, I have been told by the doctor that I have fibromyalgia and I can be in very bad pain at times but im dealing. I am having alot of the symptoms associated with the condition and I am struggling especially with the tiredness, memory issues and the mental strain its all putting on me. 

When I asked the doctor if my condition can get worse he said that it cant get worse however from research online I see that other suffers have stated that they have gotten worse and some have even ended up in a wheelchair. 

My question is can the condtion get worse and can it get me to the point where I could end up in a wheelchair?

Thanks

Hi everyone, i am in my 50's and have been struggling with health and anxiety since my 30's and was told fibromyalgia. I was healthy as a child, had measles and chicken pox with no problems. Then at 16 got Glandular fever which i think is also called Epstein barr virus, i have suspected this could have been the trigger for my health problems. 

In my 20s IBS, Headaches, Light headed.

In my 30s IBS, Random muscle pains, ENT problems with violent headaches, earaches and sore throats, Palpitations, Panic Attacks, Viral jaundice.

In my 40s IBS, Increasing random muscle pains and severe back aches, Palpitations, Labyrinthitis once, started with severe sharp pains in hip-groin joint area making walking very difficult. 1 trip to A&E with sharp chest pains.

In my 50s restless legs twitching and cramping, Pains spreading over nearly all body mainly neck, shoulders, back, chest and buttocks. Burning in muscles from neck down back during flare up. Extreme tiredness. Sometimes get pains in the ear cartlidge on the side my head touches pillow. Now the pains have spread to include arms, hands and feet. I trip to A&E with sharp chest pains. Palpitations. Severe pains in both knees and unable to walk properly for around 7 weeks, going upstairs was the worst. Sleep difficult as pains around joint woke me and could not bear anything touching my knees. Now i live in fear of chest pains as i find those the most difficult to deal with. Bad heartburn and indigestion , endoscopy showed small hiatus hernia and small patch of inflammation. I manage it with gaviscon and diet as PPIs gave me side effects.

I have had MRI and CT scans. So many blood tests for everything and all come back normal. Regular ECGs which are also normal. I was suspected of having hyerparathyroid problem but test are now normal. I had vitamin D defincency but have managed to get that back to a better level despite the tablets causing indigestion.

I have seen a Rheumatologist and an Endocronologist . Hope you dont mind the long post but maybe some of you can identify with it I keep hoping the doctors are wrong and find something else more treatable.

 

Hi

I think everyone's situation will be different. The pain is horrible and is wish it on no one but we all learn to cope the best we can and seek out the best treatment and advise to feel better. I find spending 45 mins on treadmill daily n 15 mins of weight is extremely important my dr told me this is your life and u need to move everyday and trust me if I miss a day my body pays for it. It breaks your spirit at times but I don't give up best to you

Hello everyone, hope you are all feeling as well as you can. Ive been recently diagnosed with Fibro after a year and a half of chronic pain; no falls, no accidents or trauma - it just sort of appeared. As Im in my late 50's my gp initially diagnosed wear and tear/possibly osteoarthritis and prescribed me Tramadol. I was already taking Naproxen daily for sciatica, but the new painkillers didnt do anything other than make me feel doped and generally unwell. A 2nd gp diagnosed me with Fibro after quizzing me and a physical exam; I'd never heard of it. He weaned me off the Tramadol over 2 weeks and started me on Amitriptyline. My starting dose was 25mg. I could 'feel' it trying to work, and started sleeping better, but still had some pain; also, it seemed to lose effectiveness in less than a month (!) Thus, I am now prescribed 60mg, which works beautifully. My problem is, even though Im taking it 2 hours before bed, Im still zonked and forgetful during the day. It seems Ive traded some physical and mental capacity to get relief from the awful pain I was experiencing, but Im still 'newly diagnosed' enough to consider it a blessing to be able to sleep and not experience pain around the clock. Is anyone else similarly medicated, and experiencing the doped up problem during the daytime? I'd be grateful to any who would share their experience. Baz

I would just like to share how I was healed from fibromyalgia after being diagnosed when I was in my 20s. I have written it in my blog https://amhalfwaythere.blogspot.com[/b]/