Be aware of Monolaurin supplement !

Posted , 9 users are following.

This supplement is highly recommended for many viral problems .I started this at a low dose then increased to a full dose after 4 days. what followed was a nightmare whole body shaking heart beating out of control .

some people are sensitive to this supplement I discovered after i did much research online .

i think they call it 'die off' but id much rather be fatigued than wired honestly . its not worth it !

0 likes, 235 replies

235 Replies

Prev Next
  • Posted

    how many people here use monolaurin? im very curious now as alot of people seem to swear by it

    • Posted

      meds and supplements are different for everyone. I found taking vitamin b pills would make me feel wired and I couldn't get to sleep. Also with this virus everything feels very zig zag....so some of it could be just bad timing or as my doctor told me some of it is just a placebo, as there is no science behind some of these things you can buy, but just your body naturally behaving to the virus.....but everyone is different. I'm still taking vitamin c, and trying to eat plenty of fruit and vegetables. im close to 8 months now ans the last month i have gone spaced out again and my legs feel like jelly. Quite frustrating as this is how I felt about 3 months ago, but it had worn off....so just fighting through everyday as it comes.

    • Posted

      Hang in there Dodge, goodness you must be so weary after 8 months of this. I remember after 8 months feeling the same as you and had a bit of a setback at 9 months but after 10 months something seemed to start to change and really then started to work towards proper recovery - it's different for everyone as you say but just hang in there and remember things will get better and you won't have to go through another 8 months like that, no way will you have to I truly believe that - the up and down nature of recovery is so frustrating but you will get there absolutely you will.

      Craig

    • Posted

      yes the up and down of this virus is just horrible.

      im taking so many supplements i have to do it in stages. i figure take anything to boost the immune system but i now see this a strong strong virus . not sure if they are helping at all but going to keep with it . and yes vitamin b can give you energy and makes me a bit hyper too ... maybe take it in the morning or if its too much take 1/2 pill.

    • Posted

      Hey Lori,

      Just wanted you to know you're still in my thoughts and prayers right now. I do hope this can be a more settled week for you as the last few weeks just sound as though they have been so painful and hard - praying that things can stabilise this week I really hope that Lori and ask God.

      I had a better week last week but yesterday and this morning been a bit more shaky again, sciatica bothering me more and just mentally sometimes I lose a bit of confidence and start dwelling on things and complaining to those around me and just don't want to be like that Lori. I know I need God's help more than ever right now, still very fragile and just grateful for all his help and mercy to me even when I have been acting like a fool and don't deserve it.

      Hang in there Lori, still trusting that God is going to heal us and bring us through all our troubles. And let's keep helping and encouraging each other - means so much to me all the kind words you and others have given me thanks so much!

      You're not in this alone Lori - and you're gonna get through it and get well again. I TRULY TRULY believe that.

      Craig

    • Posted

      thank you craig ! im having some of the worst days ive had since this all started 6 months ago . i do hope its a case of it gets worse before it gets better as really struggling.

      trying to keep a level head and just get through each day . the mental torture on top of the fatigue and ill feeling is the worst.

      im so happy you had a good week when you're having a bad moment just keep thinking of that 'good week ' and just consider it a minor setback and yes i pray to GOD many times a day ... to give me the strength to get through this .

      my mom always says 'if i can get through today God i can get through tomorrow '

    • Posted

      hang in there lori, you may be on the home stretch even if you dont feel like it

    • Posted

      thanks dodge i have the same issue sleeping! will stop the Vitamin B today and see if anything changes..

    • Posted

      Thanks for the best wishes Lori, I'm still up and down myself at the moment needing God to help me got quite a way to go yet, still very fragile and a lot of issues to get through.

      Just praying God lifts our burdens from us Lori. Sent you a message too man. Still thinking about you and believing in your recovery and this phase of such mental pain is so common in this virus and it does pass, it doesn't last forever but I know it's so deep and hurtful. Jesus loves us Lori and praying that God sends His angels to encourage and protect and lift us up today in our situations.

      Craig

    • Posted

      Hi Ant,

      Oh well for me I was off work completely for 5 months, and it was only after about 15 months that I started to work 3 full days per week and probably took me another year or so to get back working full time again.

      Everyone is different and I know some try to work through, I just felt I couldn't do that and would struggle to do that and a lot of it was just confidence in being able to work again too and that I could work and not feel unwell for it.

      Hang in there Ant, remember you are going to get through this and take as long as you need to take regarding work - I know it's a horrible stress to be off, I'm in the process now of losing job after being off for over a year and it's awful. But remember do put your health first at this time and hoping and praying things settle soon and you can get back to work at the right time for you when feeling much better.

      Craig

    • Posted

      yes not only are we going through the illness and all the horrible symptoms ... but the added stress of life how long will we have to suffer and how will the future be after all this is over ? will it come back ? do we always have to proceed with cautiion or can we live life to its fullest again ? i do believe this virus causes anxiety .

    • Posted

      thank you Ant ! gosh i certainly hope so ! ive had a bad few weeks after having my mom visit . it seems that any kind of effort or stress sets us back . although she thought it was a good idea at the time it just made for more work for me and has set me back. best going through this alone with minimal stimulation.

    • Posted

      thank you Craig this surely is a time that i will NEVER forget and yes been praying so hard for some relief and to just 'get better' . sometimes we think God isnt listening or helping us especially when we are praying even begging to him for good health. it will come to us i truly believe its always darkest before dawn .

    • Posted

      Great words Lori - absolutely God is there in the midst of our troubles and He is the one who wants to help us and heal us - remember our healing is already paid for by what His Son Jesus did on the cross - He's already bought it for us man. So even when it doesn't feel like much is happening or changing, be assured that God is there and is a good God and even if we don't understand He is working for our good and may we just be paving the way for a new beginning in our lives.

      As you say Lori the not knowing if and when things will improve that is so hard to deal with. If you knew that for example, you were going to have to deal things for another 3 months say and then you would make a full recovery, it would be tough to think oh another 3 months but it would be bearable because the hope and knowledge of recovery is there. Just hang in there Lori and be assured that recovery does come with this thing, you're going through the worst phase right now by the sounds of it but there is hope and I do believe things will turn around and you will make a FULL recovery from this in good time. Thinking of you today!

      Craig

    • Posted

      lori, sorry to hear you are going through a rough patch at the moment. Just remember this is just how this disease works. It doesn't mean you are not improving. Wishing you a speedy recovery.

    • Posted

      lori, in my case I can definitely confirm that this illness has caused my anxiety. Never had it before. I do hope I am not stuck with it for life as it is horrible!

    • Posted

      sorry to hear lori that having your mom around which should have been an amazing experience seem to have set you back a little. I totally agree with you that it seems that any kind of effort causes setbacks. I notice also in my case that even happy moments like just going out with friends and having a laugh and catch up seem to drain me and set me back.

    • Posted

      yes even just meeting with a friend for an hour and talking exhausts me. my friends seem so energetic and 'normal' you really see the difference when you are sick with this .

    • Posted

      yes it seems to magnify everything ! mood sleep and lets not mention the physical stuff !

      im sure the anxiety will go away when the virus becomes dormant again . we will so appreciate life in a different way ... nothing will seem such a big deal ever again !

    • Posted

      yes she travelled so far and really thought her being here would 'make me better' . its a hard virus to figure out and for others to understand all the mental and physical stuff that goes with this .

    • Posted

      yes if we only had a date ! i wont give up praying craig i know God will give me a break soon and yes im going through the hardest month ever . a few traumas in the family set me back ... so need to regroup and get back to getting well !

    • Posted

      thank you kay ... yes was managing this evil thing for 5 months . it wasnt great but was able to at least do a walk most days . i hope these are die off symptoms so ready to kick this beast out of my body !!!!

    • Posted

      Absolutely Lori we must keep praying and trusting God. It's so hard when we don't understand or it doesn't make sense to us why something goes on for such a time. But God tells us not to be discouraged and that the battle is His to fight for us and with us - so we must hold onto that, I know I need to be better at holding onto that too at the moment!

      Thinking of you both Kay and Lori, you are both going to get that breakthrough you both need I still have faith in that. You ARE going to get better and will get the VICTORY with this battle.

      Craig

    • Posted

      I hope things improve swiftly lori. This week I have been battling with sleep. I don't think I have had more than about 5 or 6 hours any night in the past week so I have had better days. Despite that I am still managing to do a full work day. I think I have forgotten what normal feels like...

    • Posted

      Thanks again Craig. I patiently await this breakthrough. I have had enough of this already!

    • Posted

      gosh cant believe you are at work and yes this virus messes with your sleep . i keep waking up at 4.30am on the dot and cant get back to sleep .. driving me nuts .

    • Posted

      thank you Craig ! yes trying to keep the faith but having such a hard month . something has to give soon just dont understand how this virus can be manageable and then just take a big downward turn . im soooooo READY for this nightmare to be over .

    • Posted

      if you can stay at home from work do it. i worked through this illness and i am paying for it. i had bad sleep and kept working and my body has struggled because of it. i still don't sleep well.

    • Posted

      how many hours sleep are u getting?

      i remember in the first few months i was waking up every morning between 2 and 3am without fail and couldn't go back to sleep. By the time I got to work at 9am I felt like I had already done a full days work. That phase was horrendous.

    • Posted

      if i had known what i was dealing with from the beginning i definitely would have requested working from home or take some sick leave. unfortunately i only got my diagnosis a month ago -13.5 mos after it all started.

    • Posted

      im going through that eight now! i hate it ! please tell me it was just a phase abd that it passes .

    • Posted

      yes if we could only turn the clock back maybe we would have recovered by now . i got diagnosed 5 months in but often wonder if i had been diagnosed properly and rested more would i feel better?

      going through this all alone is really tough but i guess may be to my benefit as even talking exhausts me . everybody i talk to seems like an alien as they're so energetic and normal .

    • Posted

      well it depends trying to stay up as late as possible these days . i went to sleep about 9pm last night and woke up at 4.30 am it seems like its enough sleep but for me ... its not. i always needed a lot of sleep .

      other nights when i go to bed earlier i wake up a couple of hours later .

      when this first started was sleeping ok and mostly through the night but the past few months have been awful.

      luckily i dont work and i could not during this time .

      its all a nightmare kay .

    • Posted

      yes you really need to baby yourself during this time . i couldnt imagine working with this . i worked out very hard through the illness and i definitely slept better . now diagnosed and have stopped . cant wait to get back running .

    • Posted

      i am trying. Craig, if you are still out there, I am praying for you and everyone on the site.

    • Posted

      thank you brent ! praying like a maniac right now. hoping we all get even a little bit better soon !

    • Posted

      yes lori, it will pass. it took at least 6 mos for me. it also didn't help that i also did 2 long haul holidays in that time and had to deal with jet lag too. i felt like i was permanently jetlagged for months.

      btw i had a nice break in nyc a couple weeks ago. felt abt 85% normal whilst there but unfortunately after my return some symptoms have escalated a little. might just be the stress of work.

    • Posted

      I know Kay it's hard to keep holding for so long. Think I might have posted this recently but just sending again as these are three Bible verses which have comforted me recently during hard times and give hope and encouragement:

      "Don't worry about anything; instead, pray about everything. Tell God what you need, and thank him for all he has done."

      "God can restore what is broken and change it into something that is amazing. All you need is faith."

      "If you want to know what God wants you to do, ask him, and he will gladly tell you, for he is always ready to give a bountiful supply of wisdom to all who ask him; he will not resent it."

    • Posted

      Hey Lori,

      Oh goodness man I know too well how hard it is when you have faith and you believe God and trust Him but the situation or mountain in front of you seems so impossible and hard. We just need to hang on as best we can in those times, remember God is sovereign and that He is there even when we don't feel it. It's much easier said than done though I do know Lori and have went through very similar emotions lately at times.

      I believe God is going to keep strengthening you Lori, I'm still thinking about you each day and remember even if it still takes a little while or whatever, you ARE going to get better and get through this - absolutely you are I have total belief in that Lori, so even if you're struggling to see or hold on to that right now, remember that someone else is believing in it for you and keeping you in prayers!

      Hope this weekend can be a better one and remember message any time!

      Craig

    • Posted

      Hi Brent,

      Just wondering how you are doing at the moment, that is not good to hear that you have not been sleeping well still. Just want to remind you Brent that you have not done anything wrong and are not paying because of anything you did or didn't do during this virus, trying to work is a natural thing and please in no way beat yourself up because nothing in any way about this thing is your fault or because of how you didn't rest enough or whatever - it's just the horrible way this thing seems to go on which is so awful and debilitating and frustrating and I do still believe that there is another stage of recovery which you are going to reach which hasn't fully manifested yet but is going to over the coming period - I really believe that Brent and will keep you in my thoughts and prayers.

      Thinking about you still Brent and do keep hoping and trusting God - I believe He is still working on a new phase of recovery for you so don't give up and do keep in touch.

      Craig

    • Posted

      It's hard Lori as with this virus being 'invisible', in that to others they often see you maybe out and about or looking okay and they just assume that you are okay and it can't be all that bad.

      I guess it is only the folks who have been through it and experienced it that truly know how awful this thing can make you feel and how frightening it is to go through it. Still rooting for you Lori and believing in your recovery, and hoping that there can be some people who God brings in to your life that can understand and help and be there at this time. You will get through this hard time Lori you absolutely will and your physical and mental strength will return again - do not fear.

      Craig

    • Posted

      This phase will pass Lori - this sounds like a horrible time you've been through this last month but things will stabilise again and ALL phases of this will pass over and you will get the victory over this - I firmly believe that.

      Craig

    • Posted

      Thanks so much for your prayers Brent, means everything really does as still in a very tough phase of my life myself right now. I will keep praying for you Brent and thanks as ever for your support and friendship.

      Craig

    • Posted

      It was a great achievement that you made it to NYC as you did Kay, remember that and that it's normal to be feeling more tired after that and straight back into work - but things will return to a more stable level again I do hope and pray for that Kay!

      Craig

    • Posted

      gosh that is amazing ! youre doing so well !! i can just about make it to the supermarket .

      you must definitely be on the mend now !

      im sure you went through some very difficult months during this time as i am now but the fact you can travel again and work ... youre getting your life back and cant wait fir mine to cone back too .

    • Posted

      thank you craig ! its all been bad but yes the last month or so just awful. praying for God to give me a break and better days ahead.

    • Posted

      and we'll all be praying for you Craig that things turn around for you . you have been so supportive to everybody on here and hope we can all be supportive to you too

    • Posted

      You're welcome Kay they offer me real hope and encouragement too. Here's one of my most favourites to go back to when in times of trouble:

      "For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."

    • Posted

      Thanks Lori I really really do appreciate your prayers and support to - it means so much and I'm very grateful for your comforting and encouraging words.

      I was like you Lori when I was unwell with the virus, a big holiday like Kay's was something I really don't think I could have managed and it was just the simple daily things that I had to focus on and keep life simple and uncomplicated for a while without stress. It's frustrating and hard when you feel the pause button is hit on life, I feel a bit like that myself now too, praying that the better times can be ahead for us all!!

      Craig

    • Posted

      yes you're ill but you also get bored lonely but even the thought of socializing exhausts you .

      yes that trip was a big deal ... cant wait until we all feel WELL again... it cannot come too soon for me and for you ! been an extremely long difficult journey

    • Posted

      Definitely Lori can't wait for that too! Hoping for a good weekend and one which brings new hope and encouragement!

      Craig

    • Posted

      thank you ! i had a better day today my first in many many weeks. the mornings are always rough however ... i made sure not to overdo it though . learned my lesson with that one .

    • Posted

      thank you for your support. i still feel like i pushed too hard. i have always been a driven person that has always been determined not to let anyone down. this virus just happened at the wrong time. divorce and a child to raise put me in a position where i felt like i couldn't rest. i have a very stressful job that compounded things even more. to everyone on this site. this virus is serious! rest,rest,rest!!! CFS is a real thing. free your mind also. stress makes it worse. i am a example of what can go wrong in recovery. i still have blurry vision and light sensitivity. my sleep is terrible and my joints hurt a lot. i have all the CFS symptoms. PLEASE!!! if you are reading this REST!!! i don't want anyone to follow my path. Craig, You have brought me a long way. At one point i was so sick and my life was so messed up i wanted it to end. But you were on here everyday with words of encouragement. I have learned to somewhat accept where i am right now. i owe that to you.

    • Posted

      Brent, your experience sounds very similar to mine - except for the divorce and child. In my case I want to have a child but have delayed it over the past year because of this illness. Now at 39 years old I have the added stress of biological clock.

      With regards to cfs, there are some days i wonder if that's where i am at too. I started taking d-ribose 2 days ago on the recommendation of the health store. I must say I have felt the closest to normal i have felt in a year since the past 24 hours. Maybe it's a placebo but I like it so far.

    • Posted

      In addition to the d-ribose i will also start taking cbd oil next week. My chiropractor suggested this.

    • Posted

      Hi Brent,

      Oh your support to me too has been amazing I'm so grateful for all the kind things you've said and encouragement you've given me too. You're so right this virus needs to be taken seriously and folks just need to treat it with respect and not try to push through too much. You're definitely still being wayy too hard on yourself, remember you didn't do anything wrong and haven't let anyone down - it's just circumstances that were so hard to cope with anyone would have found it extremely difficult to manage.

      As someone who expects as lot of myself too I do understand though it doesn't matter if someone tells you not to beat yourself up or feel a certain way, you just can't help how you feel and your nature - I'm very similar Brent, but from an outsiders perspective I think you have made a lot of progress and it's not me or anyone other person to thank it's God and it's you for taking steps forward and showing courage to carry on at the hardest times, which I can only imagine must have been dreadful with everything you were dealing with.

      Thinking about you still Brent and still believing something even better is on its way in terms of a new phase of recovery.

      Craig

    • Posted

      Good luck with the D-ribose and cbd oil Kay! Let us know how it goes always worth knowing if something is worth taking or not!

      Craig

    • Posted

      Mornings are always hard Lori I find that too mentally and physically. Just the thought of another day can be overwhelming at times I know. So remember just ease your way into each day and get extra sleep and rest if and when need be and don't beat yourself up for doing that - it's what your body needs during this and remember the day will come when you feel much fresher and happier to start each day again. It will come Lori!

      Craig

    • Posted

      yes i take both of those and the medical marijuana does help with the symptoms . i take it to sleep .

    • Posted

      I started taking it today lori. Will see how that goes. The d-ribose I have bn taking since Thursday and I must say I have bn impressed with it so far. Long may it continue.

    • Posted

      yes im taking d ribose too . it says take 6 pills but i just take 3 or 4 as not sure if it makes you hyper ?

    • Posted

      Mine is in powdered form. The bottle says 1tsp a day however the health store suggest for better results to have 1tsp 3 times of day which is what i am doing.

      It's early days but I think it's helping.

    • Posted

      Really hoping the D-ribose can make a big difference then Kay, sometimes it can just be finding the right thing to take that can really trigger a breakthrough and upturn in things.

      Still thinking about you Lori and Kay - I'm hoping and praying this can be a good week and one with new peace and hope for us all!

      Craig

    • Posted

      Thanks Craig. I really hope so too. So far so good. Will keep you posted.

      Have a great week ahead.

    • Posted

      Thanks Kay - you too, hoping for a better week -yesterday was a bit of a tough day, a bit unsettled again, praying for the Lord's help for all of us.

      Craig

    • Posted

      I felt almost normal from thursday pm upto yday. Sleep was ok and the brain fog had lifted. Not sure what happened overnight though but I feel really rough today and I woke up at just before 4am and couldn't sleep again. Had been in bed since about 10:30pm. Hopefully it is just the odd one day blip and tomorrow I will feel good again.

    • Posted

      yes its awful .. ive been waking up at 4.30am for ages now . dr told me to take a sleeping pill then to go back to sleep . sometimes it works other times i just lie in bed for hours. it must all be part of this horrible virus . cant wait ti be able to sleep through the night again .

    • Posted

      lori, i remember a year ago when my sleep was at it worst and some nights i was only getting abt 3 hours. Doctor had prescribed sleeping pills zopliclone and with them i was sleeping abt 6 or 7 hours and felt hungover the next day so actually i felt no better than if I didn't take anything. It's around this time the anxiety started so I was wondering if the sleeping pill was the cause. Then in December 2017 i was prescribed zolpidiem and only got abt 4-5 hours with these and the same hungover feeling. I only ever took 2 or 3 of the month's supply. I recently gave them to a work colleague and he sleeps 12 hours when he takes them.

    • Posted

      i have olanzapine for sleep but even when i take them still waking up a few times during the night . if i wake up early ill take a valium to get back to sleep sometimes it works sometimes it doesnt .

      and yes the anxiety youre tired but wired . i hope this is just a 'phase' so want to not take so many pills but im suffering . im sure when things level out i can clear all those toxins out of my body ... and hopefully recover soon . so sick of this !

    • Posted

      Hi Kay,

      So sorry to hear you had a rough day, thinking about you still and I just hope things can be more settled again today. I had a rough day too yesterday myself just things getting on top of me a bit just now. Hoping God can help settle us all.

      Hang in there Kay, God will get you through this I definitely believe that with my whole heart.

      Craig

    • Posted

      HI Lori,

      Believing too with my whole heart that God will get you through this, hang in there and hoping things can be more settled today.

      For the past 3 years I've been taking amitrypyline at night (prescribed by doctor), which is an antidepressant which I think is more often used to help with pain and nerve pain in particular. You take it about 2 hours before bed, although I've been taking it even earlier about 3-4 hours before bed just as fine, and it really does make you tired and help you get a good sleep. The only thing is it can make it harder to get up in the morning because it relaxes you so much.

      I don't want to say that is something you should or shouldn't take, but it's something maybe worth even discussing with doctor if really having problems with sleep, I do think it has helped me for sure.

      Craig

    • Posted

      Hi Craig,

      Today is more of the same but I am trying to remain positive and patiently wait for my feel good days to return. Hopefully they will by the weekend 😃

    • Posted

      Hi again Craig,

      Interesting to note you are taking antidepressant. My doc tried to get me on some about a year ago when I complained that the sleeping pills were useless. I refused to take it.

    • Posted

      weird you should mention that as the dr just put me on Prozac . eventhough i went through EBV 11 years ago but without the fatigue or mono i didnt want to go on anything.

      this time the reactivation is much worse with the mono factor so i started taking them 2 days ago as just so fed up of waking up at 3- 4-5 am and not be able to get back to sleep.

      i slept last night on and off from 8-10 am. i must say im totally against antidepressants i dont want to be reliant on any drugs but just so desperate with this. hopefully the sleep will speed up my recovery as they say 'sleep yourself better' so ill stick with it until i improve.

    • Posted

      Oh I do hope that things can be more settled today and by the weekend certainly Kay. Still thinking about you, it's been a tough week myself got myself all stressed and worried about this cyst too and when getting pain in that area it's making me panic thinking about it. Just really need God's intercession in that situation in my life right now, praying for that.

      Hang in there Kay, things will turn around and will get better for you, I truly believe that. Yes the amitrypyline definitely helps with sleep for me, I know it's not the kind of decision you make lightly to go onto an antidepressant but for me it has helped at night time especially.

      Craig

    • Posted

      Hoping Lori that your sleep pattern can improve and goodness knows this must be so draining mentally not being able to get a refreshing or long sleep, hoping and praying this is just a tough phase that is soon going to pass and things will be much more settled in that respect very soon. Thinking about you still.

      And Brent I'm still thinking about you too, hang in there and I'm still praying for you also. Thanks so much for praying for me too, really need it right now and means a lot!

      Craig

    • Posted

      Thanks Craig. Another dodgy day for me today. The sleep has been bad since Monday night so the brain fog, grogginess and fatigued muscles has returned. I am still optimistic it will pass soon. I also had a very busy and stressful work week last week so this could be a delayed reaction to that.

      You hang in there also Craig, you will be just fine.

    • Posted

      Oh I do hope these awful symptoms pass over soon Kay, I'm still thinking about you and rooting for you. I had an awful day yesterday just got myself so worried and stressed about this cyst as getting some pain in that area, and taking it out on my mum which was totally wrong and giving in to sin. I pray for God's forgiveness for that. Feeling quite shaky today I just in a difficult place right now, thank you for your encouraging words Kay I really need to hang in there and not give up as you say, but just feeling overwhelmed right now everything just a bit too much for me to cope with.

      Hoping for a better day for us all - thinking of you Kay, Lori and Dodge.

      Craig

    • Posted

      Oh bless you Craig...our God is a forgiving God so don't beat yourself up about what happened. The key is you have recognised it and you have taken the step to seek forgiveness. I am sure your mum understands. Mums always do 😃

      Remember, positive thoughts are important for our recovery. When negative thoughts arise, just change the story. Easier said than done I know but with practise, we will all get there.

      Sending you love and positivity.

    • Posted

      dont beat yourself up my mom travelled 6000 miles alone at 83 to see me as ive been so sick and i snapped at her . so dont feel bad we're only human and its just a little blip. im sure most of the time you guys are getting on well together so just say your sorry and dont dwell on it .

    • Posted

      Thank you Kay, you are a wonderfully kind and caring person and your words really do mean a lot. I've been feeling so down and negative lately, wish I could feel more positive, was doing alright up until I had this appointment which showed cyst and now together with the other symptoms it's just got me panicked and worried I might need to get a surgery or whatever.

      I'm so sorry for offloading my worries and concerns, just had a really really hard few days finding it extremely difficult to keep on an even keel right now. Thanks for your words of support and encouragement Kay, hoping you have a much better weekend and thinking about you too - remember you are going to get better too.

      Craig

    • Posted

      Thanks again Lori, my mum and dad have both been such amazing supports to me I'm very lucky indeed. Just wish I could get myself well and I can stop burdening them with my problems and for them not to see me so upset all the time.

      I know you understand Lori and just want you to know I'm still thinking about you and saying a wee prayer for you each day still.

      Craig

    • Posted

      I know the feeling Craig. I too get worked up about things sometimes. I tell you this illness is awful. Prior to this nothing bothered me - I never use to dwell on stuff or continuously worry. Now I feel like I have become an emotional mess.

    • Posted

      Oh I know Kay it's awful. I've worried myself sick this week and have been feeling terrible, right on the edge of my limit now I feel. I'm going to the doctor tomorrow my mum is going to come with me, this pain down my leg has been bad and just associating it with this cyst has really panicked me so much. I do hope and pray for a much better week for you and us all Kay, hang in there and sorry for being so downbeat just been feeling terrible this weekend.

      Craig

    • Posted

      Good luck tomorrow at the doc. Please keep us posted.

      I feel ok today - must be because I had abt 10 hours sleep lastnight. It still involved waking up a couple of times but overall I feel rested and trying to have a low key sunday.

    • Posted

      Thank you Kay, I will keep you posted how it goes.

      Glad you are feeling okay today and had a good long sleep - you needed that extra hour in bed for sure! Hoping this week can be a better one for you Kay.

      Craig

    • Posted

      yes me too .... it affects your nerves so badly and that last thing we need right now is worry. cant wait for this nightmare to be over !

    • Posted

      good luck tomorrow craig hope the appointment can ease your mind a bit . try not to worry too much ... praying for good results for you!

    • Posted

      Thanks Lori, I will let you know how I get on at the consultant today, just hoping it doesn't unsettle me further don't think I could cope with that right now.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.