Bedridden and frustrated on a beautiful day

Posted , 10 users are following.

so I'm stuck in bed again and feel really guilty like I'm being lazy and so frustrated that there are so many jobs that need doing and I can't even face a shower. Why do I feel the need to punish myself for being useless? Is anyone else like this? I was a really creative and physically very fit and strong. Very independent and used to doing everything myself. Now I have my lead suit on its impossible to move.

what makes it so difficult and I know everyone feels the same is even my parents don't seem to get the fact that I am ill. They know but just don't understand. 

Sorry just a miserable git. Having a rant.

hope everyone else is ok xx

1 like, 22 replies

22 Replies

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  • Posted

    And with the thought of a test comming out..I wonder DO I REALLY have it?

    ​Cause I was just told I have a Vitamin D deficiency...which can cause similar symptoms. And 78% of people have this deficiency.

  • Posted

    Feel your pain. I have days too when I feel like my legs f so heavy n ache 😞
  • Posted

    i KNOW EXACTLY WHAT YOU MEAN  !!!. I was always an active person did aerobics kick boxing  etc. Now im blessed if I can move 50 yds a day. Depression anxiety pain exhaustion and most of all GUILT !!
  • Posted

    so sorry you feel ;like that,thats what fibro does.you arent lazy or useless .my housework gets done when and as i feel able and it takes me almost all day to wash my floors.I have the same problem -family and friends dont get how much we suffer because they "cant see"our pain etc.i get told im eating ok even tho have no appetite (not fibro)and that i am eating as much as anyone else when i barely eat.i used to have double helpings of xmas dinner but now barelymanage to eat a small meal.

    we fibromites are here for each other,hope you feel better soon.

  • Posted

    Hi Eathakitt Please dont be hard on yourself none of us asked for fibro or want it. None of this is our fault we cant help the way we are. I feel the same frustrated at not being able to do what I use to feeling useless.and worthless. I use to work was always on the go looked after my mum when she was dieing of cancer got a child to look after who had depression and husband who had a break down. Then wham was hit like anything. where I spent over 6 months in bed 2012 2013 2014 2015 not being able to walk and carers looking after me. I understand how your feeling where your coming from. But its not our fault all we can do is listen to what our body tells us, if it tells you to rest stay in bed then do it. try fighting against fibro we end up suffering for it. take each day as it comes get through it as best you csan. each day we get through is another battle won. I find treating my self gives me a lift new hair do perfume be kind to ourselves. Dont expect people to understand because they dont friends family husbands partners children. the only people that fully understand are those that have it and are living with it day in day out. focus your mind off fibro whether its watching tele listening to music reading abook. I dont focus on fibro or my other health conditions its almost like I try to think they dont exist. Thats how I try to cope and handle it, not always easy. But I try? fibro is alearning curb for us all it differs for us all in the severity of it. we just have to find ways to handle it and works for us personally. As what works for one may not for another as we are all different. At least on here we have each other for support comfort emempathy. Rant away none of us mind weve all been their. sending you a big hug xx
    • Posted

      Very true Kaz. This Fibromyalgia just hits you. Thankfully I'm not bedridden it must be awful. I have a six year old son I have to look after. I have good and bad days too. Just wondered do any of you wake up each morning feeling groggy like s hangover with no alcohol? I suffer from headaches too. Do any of you also have the Costochondritis too....apparently Fibromyalgia sufferers can have this too...it's a painful condition that affects your rib joint...
    • Posted

      Hi jaqqueline26101  I suffer quiet alot with costocondritus it frightened me the first time it happened. when i do manage to get some sleep I do tend to wake up feeling groggy, also very stiff and achy. since last novemeber I have been getting very bad headaches these have been constant every day of every week since last nov.The not so joy of having fibro 
    • Posted

      I'm the same, just recently been diagnosed with the Costo honestly feel as though there's something far wrong with me at times...too many aches and pains makes you worry it's something more sinister 😞
    • Posted

      i have costochondritis tho not diagnosed by gp-learnt about it from other fibro sufferers.gp at the time just said its inflammation,cant get to sleep for protrusion of ribs especially on my left side the centre of my rib is quite pronounced and really digs in.
    • Posted

      fibro throws that many different things at ua, its hard to know at times when its fibro or something else going on. Ive found personally that when you have a lable everything seems to be put down to that?.
    • Posted

      Very painful at times, feels like a heart attack 🙈
    • Posted

      so true.many other things going on which were described as "fibromalgic like"cos gp admitted he  didnt know what things were,have general swelling which i know isnt fibro.have skin rashes,and enlargement of features and bones.
    • Posted

      Its frustrating for us when everything gets put down to fibro, and other conditions are being missed rolleyes
  • Posted

    I'm another miserable git joining you on the couch....  Lets just kick back best as we can, throw in a movie, pop corn or other...  liquids and grissle and stretch when need be..   Anyone else wanna join, happy to put some large throw cushions, gel mattress's (if there is such a thing!! lord if only!!)..  pull out the day bed/s and draw the curtains..  Lets PARTY...  :-)
    • Posted

      Im in will join you on the couch for pop corn and movie Im a misersble git today I think gel mattress sound great and a party definitlysmile
    • Posted

      Whilst feeling zapped out myself and not much happening in my space, (although there is loads to do about the wee place!!)... I am far to tired and so cam sore to do much at all.  So did very little, and I did also watch via 'Live Stream video' my cousins partner compete the New Zealand Taupo Ironman competition.  He's a Reumatoid sufferer and he's got an artificial knee recently done last July.  He's done great work getting over what was a Huge piece of surgery, it was a really big job with extra bone work involved.  Loads of post op physio and work he's progressed with himself.  Even Oversea's mountain trek's etc... WOW...  great way to improve ones lot!!   Anyway he came home over the line very strong indeed!  So very proud and so very chuffed for him..  My cousin also has done this Ironman herself twice in the 3 years and done ever so well herself.  He's is 53yrs, and my cousin coming up to the half way mark herself!... If it weren't for my MVA injurys and this dam Fibro, I would be off the couch and training hard in a similar vein myself!...hohumm

      Anyway I am now off the couch and in my bed...  waiting for my eyes to droop closed so I can get some zzzzzzZ's....  

       

    • Posted

      Hi Deb well done to your cousin competeing in the newzealand taupo ironman and doing so well in it what a great acheivement by him. well done to him and also your other cousin.with what shes acheived. hope you managed to get some zzzzzzzs take care hun

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