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Bedridden and frustrated on a beautiful day

Posted , 10 users are following.

EarthaKitt
EarthaKitt

so I'm stuck in bed again and feel really guilty like I'm being lazy and so frustrated that there are so many jobs that need doing and I can't even face a shower. Why do I feel the need to punish myself for being useless? Is anyone else like this? I was a really creative and physically very fit and strong. Very independent and used to doing everything myself. Now I have my lead suit on its impossible to move.

what makes it so difficult and I know everyone feels the same is even my parents don't seem to get the fact that I am ill. They know but just don't understand. 

Sorry just a miserable git. Having a rant.

hope everyone else is ok xx

1 like, 22 replies

22 Replies

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  • mandydenise
    mandydenise EarthaKitt

    Posted

    I feel like ranting too. I'm super tired today. Pain in my wrists hip shoulder and ribs. I'm guessing I did too much yesterday. Its supposed to be 80 degrees outside today and its sunny. I have things I would love to do like clean for my grandpa who takes care of my grandmother with alzheimers, finish building my aquaponics ecosystem, make some barefoot sandals, crochet a Mario blanket. I'm very frustrated that none of that is going to happen on this beautiful Saturday. Doctors think I have fibro after pushing me through all the test. All I can say is it is depriving and unpredictable and I having a hard time dealing with it. Thanks for listening
  • trisha87499
    trisha87499 EarthaKitt

    Posted

    I'm totally with you there, you just can't do anything, then you feel guilty DONT it's not your fault
    • Guest
      Guest trisha87499

      Posted

      I feel awful too 😞 I have been feeling mentally and physically drained for last two weeks. Pain all over from neck to lower legs. Numbness and general heavy ache. Chest pain and upper back pain is supposedly Costochondritis although I am having to go for an ECG and bloods also bp check again due to it being high. They have started me on Gabapentin I feel so tired....although I do have the stress of my son going into hospital soon that's adding to it....
  • miss_naomi02913
    miss_naomi02913 EarthaKitt

    Posted

    I am really struggling every day is so hard I am so exhausted just don't have energy to get up but I have to force myself as I have a one / nearly two year old son and have just separate from my partner so I now am the only full time parent he has I feel so guilty that I'm not being a good mum as I have to stay at hope we don't get dressed most days as I only leave home when I have to as a simple walk to the supper market which is only a 5 min walk to get essential is milk bread I can't carry much back with me just small amount I can get on my son's pushchair and I will get home be in pain all over have a headache starting and will be so tierd that i will have to go to bed when my son has a nap its such a rubbish life style i hate living like thisi
  • footprints40
    footprints40 EarthaKitt

    Posted

    Hi I’m sorry to hear about your pain, I too spend my days in bed in total agony  I’ve lost all my family and friends due to fibromyalgia and I had to sign my daughter over to my husband which was the hardest thing to do considering he was the one who left us after 26yrs, I beat myself up daily because I’m also made to feel like I’m living a lie and I’m a scronger , I can’t help being ill but I can’t believe people’s negativity towards me especially those who suppose to love and support you,   sometimes I do feel I would be better off dead so I would not be a burden to society, I can’t explain the guilt I feel for being ill,

    I don’t hate anything or anyone normally but I can honestly say I HATE fibromyalgia because it’s killed me anyway by robbing me of life 😢

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