Been ill since April

Posted , 5 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Back in April i had a very bad chest infection / pneumonia thought i was eventually picking up beginning July then went down hill again can only walk short distances out of breath everything i do had a blood test and thyroid is underactive but doctor wont do anything yet as he s referred me to a cardiologist for tests i am carrying water all over my body and legs and feet am on water tablets for that and inhalers for breathing i feel very tired the whole time and todayit feels like water running down my legs and tingling in hands and face mouth etc i really cant see an end to this its getting me down big style now i just want to curl up and sleep x

 

0 likes, 49 replies

Report

49 Replies

Next
  • Posted

    Dear helen 50835 I feel for you, its a terrible time your having, I understand how it feels to be feeling how you are as I've had an uderactive thyroid from infancy! & I've copd this condition unfortunately along with the thyroid condition we have can take a while to settle once you get the right treatment! But I think you could ask for a second opinion I've never known all the years I've lived so far & am nearly 50 that they are just waiting, but that can depend on how low your thyroid levels are if its a little yes they can say lets wait but if its very low they wont make you wait to be treated as it can be dangerous to leave without being treated! It can make us breathless some of us when our levels are low as it makes us feel extra weak, no strength! It will take time to adjust but hang in there please don't give up, once your medication for the hypothyroid & copd are seen too you wont feel as lousy as you feel right now! Perhaps if your able which right now you might not feel like it but colouring might help take your mind off how your feeling it helps for a little while its up to you, but i'll be thinking off you, please keep intouch & let us on here know how your getting on I hope you get the right care I'm confident you will & if not Happy seek another opinion but you should be fine! X x

    Report
    • Posted

      Thank you Karen i was really ill when all this started i was in bed for almost 3 weeks if not in bed laid on the sofa i didnt seem to get much better at all i was on antibiotics and steroids for a month i have never felt as ill in my life i couldnt breath was coughing couldnt walk far at all. then i began to pick up began walking a little further each day if i took it slowly i was ok but at the beginning of July i struggled to walk at all as when i did i had real bad back pains and out of breath this has remained the same if not worse i can only stand for around 5 minutes and have to sit down. i had a blood test 3 week ago and the doctor said the thyroid may be with being so unwell so to repeat the blood test early October and also hopefully by this time i may have an appointment for the heart specialist. the doctor constantly says take it easy rest i have told them the more i sit the worse i am but i also cannot walk more than 50yd without stopping for a rest if i cannot stop i have to have my inhaler as soon as i can and then relax for a few minutes. its hard when i was so active was walking miles every week to shuffling about. i was wanting to get a second opinion but havent the faintest idea where to start x

       

      Report
    • Posted

      Hi helen! Thank you for replying , Same here with the walking I cant walk very far am lucky if I reach 8 or ten meters without stopping bones hurting legs knees thighs arms back & neck & also to take inhaler its hell I know how you feel! Id go back & see the same Dr & hear what the Dr says if your not happy you are entitled to a second opinion else where or with another Dr in the same practice or can you go to a walk in clinic you might get a different opinion, or the Dr your seeing might refer you to a endocrine clinic that deals with thyroid & diabetes & I'm not sure what other conditions they deal with, but you will get it sorted eventually! If you need someone to talk on your behalf with or without you at the time if your not sure how to approach them or forget a lot like me you can get an advocate to help you & other things they may be able to help you with like go with you to your appointments you can get one! You can refer yourself & tell them the problem only what you feel comfortable with, you can or someone you know can look up advocacy online get the number for where you live,call them & they will call you if you leave a message & an appointment to see them will be made! I'm not a 100% sure but I think they visit people who are housebound or very unwell! I wish you the best of luck, please if you can let us know how you get on & there are lots off caring people on this site your in the right place! X

      Report
    • Posted

      Hi Helen

      They have got to get that fluid off of you.  It is possible that they've put you into congestive heart failure CHF with all the meds used last spring, assuming you didn't already have it.   It sounds horrid but most people live with it for many decades so It's not imminent failure implied by the name.

      All the fluid has got to come off.  Yes, go back to your doc & tell him he's got to speed up those other appointments, thyroid & heart, but in the meantime he MUST do some research & get a better drug to eliminate that fluid.  It makes breathing, walking, talking harder, along with not being good for your heart.

      Hope you get some help soon.

      Report
    • Posted

      Thank you aitarg i have been considering phoning a local out of doctors surgery as i am getting worse by the day what i cant understand is why the doctor didnt treat the under active thyroid and just said to repeat the blood test in October.i asked if things could be speeded up at all ie.. the heart appointment or blood test again he just smiled said no i said i have been like this since April and getting more depressed and weaker by the day its ridiculous x

       

      Report
    • Posted

      !@#&  I'd let go a stream of profanity but it wouldn't help.  What an incompetent!  That fluid is dsngerous.  Frankly, I wonder if he'd be blowing you off if you were white male.   That happens here a lot.  My heart issues are not treated as urgently as my ex's, even when they've been more serious, but my poor "mom" is 97, Brit-African from Montserrat and they ignore her completely.  All at the same ER.

      Have you got a friend or loved one who can go with you?  If they blow you iff, your friend pipes up & asks about pulmonary edema, CHFand general danger to all systems of not getting that fluid safely off & trying to stop it.

      You are in my prayers.

      Report
    • Posted

      Thank you yes my husband will be going with me he will say something if i dont he says its getting ridiculous now x

       

      Report
    • Posted

      Yayy got a response at last went to doctors yesterday as i was feeling really down and pain in shoulder blade and chest also needed water tablets increasing. it was a new doctor and said to get in touch with the hospital as this needs sorting now i explained what had been happenning and waiting for cardiology appointment he said i have fluid on lungs again increased the water tablets and i phoned the hospital they said my appointment would be in next few weeks unless the doctor notified them needed earlier he phoned them up and told them it is urgent i go tomorrow in the meantime hospital said if i get any worse or feel i need seeing before get an ambulance hence i am now off work until this is sorted x
      Report
    • Posted

      Fantastic!  Am keeping you in my prayers.

      That other doc is an idiot tho I wouldn't say that unless/until you found someone more knowledgeable.

      Report
    • Posted

      i did say some of the things to the doctor what you have said yesterday and he agreed saying yes it is dangerous and needs to come off he was really nice and said its hard treating anything when i am waiting to see the heart specialist but with how ill i appeared said needed to be seen sooner rather than later made me feel so much better than someone just smiling at you when you say anything x

       

      Report
    • Posted

      Good!  Yes, it is hard but that 1st quack was willing to let you drown, or just didn't care whether or not you did.  I did not want to terrify you when you didn't have any medico listening, but people do drown in their own fluids.  Doesn't happen nearly so much nowadays, not to people still spry enough to be on support forums, because we've got ways to get the fluid off.

      You are still in my prayers.

      Report
    • Posted

      after having an ECG blood tests urine physical examination blood pressure etc the Doctor i saw was very good explained that it looks like i am in heart failure he is doing more tests in the next few weeks i will be going for an echocardiogram i think its called in the meantime he said if i get any worse at all not to go to my doctor i am to go straight to hospital x
      Report
    • Posted

      Thank goodness on that clear statement about what to do!  Yes, there is such a thing as an echocardiogram and I've known people to have them in this circumstance.

      The doc may have said heart failure or perhaps he said congestive heart failure?

      I am so glad & thankful that you found the right doc.  Will keep you in my prayers.

      Report
    • Posted

      I am so tired at the moment but when i go to bed the last 2 days i get woken with my heart pounding and sweating profusely i have had an awful feeling of nausea too i think these are all symptoms of heart failure but not sure how far to let things go before i seek more medical advice the doctor at the hospital said to go straight there if i get worse which when i came home confused me as everyday is worse than yesterday eg.. more tired less appetite less ability to do anything more chest pain as in feels really heavy as though someone is sat on it i dont know what to do for the best x 
      Report
    • Posted

      Helen:

      Go straight to the hospital, now. 

      I'm sorry I couldn't get to emails earlier.  My advice would've been the same:  Go now.  

      Take a cab if you need to.

      Do not attempt to walk there.

      Go now, sweetheart.

      Report

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up