Bell's palsy for 2 months now... am I recovering?
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I got Bell's palsy march 26th 2017. I was getting these weird migraines on the left side of my head in the temple region for like a month before it happened. A few days before it started, I noticed I couldn't open my mouth all the way. Then I was eating soup and it tasted like I had burned my tongue really bad. Then my face started twitching on the left side EVERYWHERE. like my eyebrow, my nose, my lips, my chin, my cheek. Then I woke up on march 26th and couldn't keep water in my mouth while brushing my teeth on the left side. I went to the er and they diagnosed me with Bell's palsy. They told me it was a mild case, but it just hadn't actually set in all the way yet. They gave me the anti virals and prednisone. They only gave me 20 mg prednisone that I took for 4 days only. Idk if they only gave me this much because of my weight (I weigh 140) or because they thought it was a mild case. when I was reading online I saw ppl taking way higher doses for longer periods of time. Anyway it set all the way in and I could still close my eye a little bit it wasn't just open like some other ppl. I could still smile a little. But then it seemed like things were getting worse and I couldn't smile anymore at all. I had a little droop. And instead of my eye being dry it just waters all day. I asked my doctor and he said steroids aren't good for you and they can do harm to other parts of your body. He was pretty much useless. So 3 weeks went by and I still wasn't getting any improvement. The taste in my toungue was coming back and it stopped hurting so bad. (At first I had shooting pains in my head and on the left side of my face). My hearing was hyper sensitive also and that went away too. I still wasn't getting any movement and was getting discouraged because I seen some ppl recover in 3 to 4 weeks. I saw some ppl did acupuncture and it worked for them so I decided to give that a try at 3 weeks. I hadn't been to a neurologist yet because I couldn't get an appointment soon enough the one my insurance covered was all booked up. I did 6 sessions of acupuncture, with 3 regular sessions with just putting the needle in my face, and then 3 with electrostim. It seemed the acupuncture was working because I got some movement back in my cheek to where I could move part of my cheek by myself, and I was also getting twitching in some other places. I finally got a hold of a neurologist around 6 weeks and he told me there's no data on acupuncture working so I stopped going. By six weeks I had gained movement back in my neck, I could move my chin a little, I can raise my eyebrow a little, and I could move my ear... at 8 weeks now I can move the corner of my mouth just a little like its trying to smile. I also still have some twitching that goes on on my Bell's palsy side every now and then. But also, when I look in the mirror and try and smile and see what movements are coming back, my muscles feel kind of tight. Not when my face is at rest, but when I try and smile. I can see some other areas twitching in my cheek when I try to smile, like it's trying to work but it's to weak or something. My fear is that the electro stim and acupuncture made things worse and that's why It feels tight like that when I try to smile. Also when I move my lips a certain way or when I put hot water on my face I can feel my lips like pull upward on that side and there's a crease in my cheek like as if I'm smirking a little but I'm not. It's weird and only happens for a little Bit of time then goes back to normal. What is this? Also I can still only move that one part of my cheek and the the crease that comes when you smile still isn't moving yet... is this normal? I'm going to see my neurologist again on Thursday but I am a major worry wart and I keep worrying I made this worse by doing acupuncture and the electro Stim. Am i recovering okay or is something wrong? I also now get some headache and face pain on that side again but it's not as bad as it was when I first got it. I am 24 years old and my job has everything to do with how you look and is very competitive so I haven't been at work for 2 months. Just been staying home. I will admit I have been fighting with my significant other way more but than ever before and probably am more stressed than I should be. I also smoke weed sometimes to sleep and noticed that sometimes when I smoke I get more twitching on that side. Is twitching good? Because my face was twitching when it started, so don't know if it is it seems like it is good though because for like 3 weeks I had no twitching no movement at all on that side of my face. I hate this so much I'm so sad because I loved my smile before and I am a very pretty girl. I feel I've lost my face and I'm praying it will come back.... is muscle tightness when trying to move that side normal or is this a sign of synkinesis? I am so scared and keep crying I just want someone who's had this and recovered to let me know I'm recovering the right way? I also take b12, zinc, magnesium, multi vitamins and b6. I know it's only been two months but I'm scared my face will not go back to normal fully. Please someone help.
1 like, 53 replies
donna07054 angel58024
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angel58024 donna07054
Posted
Hi Donna, I wanted to ask when you were recovering what were things you noticed going on? I'm getting some twitching everyday which I hope means it's healing.. and also when I try to smile on that side my cheek will twitch like it's trying to work but it's too weak. Idk if that is a good thing or what. Also he inside of my left nostril Has been itchy and j read somewhere that means healing too?
donna07054 angel58024
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Angel, yes all the twitching drove me crazy. But I assumed it meant healing, I still have numbness in my eyebrow although I'm able to move everything, I still have loud noises like barking dog close by hurts my ear, I a approaching 4 years this July, it took me a dam. Good 45 days to see real improvement I constantly did facial excersies I had facial massages often actually full body massages just to relax my body and only I am able to tell I had BP. When I take pictures Icanswe the difference in my smile . But all this time and I still have systoms , thankfully not noticeable, good luck hope you heal quick . Donna
sharon24495 donna07054
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I also had BP four years ago this March. I feel people giving me a second look or staring as I walk by. My friends tell me I look normal but I think they are just being kind. I can't smile right and my eye is smaller. Do you still massage your cheek? A Dr. I met in the ER when my husband was a patient told me to keep massaging.
debbie4499 sharon24495
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Hello.everyone, 2 week n for me. An I'm sure stress bought it on I was under a lot of stress this is very debilitating and I'm very worried that I won't smile again ever or move my eye can anybody tell me if y'all had bad foot pain before this occurred my feet were hurting so bad and we're real hot and they're doing it now as I'm trying to recover they say that is a sign of it I was just wondering if anybody had experience that it went on for about three months I didn't know what it was until I was here by myself and thought I had a stroke because everything started tasting weird and my left side drooped and I have all the same symptoms y'all do I don't know what else to do but use a vibrator tool for my face and take vitamins and pray I have trouble eating I'm biting my lips
nurule61269 debbie4499
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Hi.. ive been there. I recover for a month. 1st to 2nd week still the same but at the 3rd week miracle happen.. i can smile abit n move my eyebrow abit.. keep on twitchin my eyes. Doc prescribed me nerves,inflammation & theres one more i cant remember.. n i recover for a month. Doc said jus need to b patience n it will heal.. doc said some heal more then few months
alexis02700 debbie4499
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The best advice I could give is warm compresses. The gel hot/cold packs work well. I used them all day long. I took B vitamins and tried acupuncture as well. During acupuncture sessions especially with electrosis I could feel my face move again but it was only temporary.
I can’t say anything of these things cured it but the warm compresses and acupuncture really helped relax me.
alexis02700 angel58024
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lili54120 angel58024
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alexis02700 lili54120
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I just recovered from my second round of bells palsy. Everything I've read said the second time around it lasts much longer. The second time around was certainly worse. Pain and symptoms. Definitely got worse before it got better. I tried everything. Hot compresses, acupuncture, face massages etc. I did 3 rounds of acupuncture and during one session they did cupping on my neck. It was painful but during and after every session I felt movement but it did not last. I had complete paralysis of the left side so I couldnt close my eye or speak properly. I would hold my cheek up to sound normal. Miraculousy a little after two weeks I went from 0% improvement to 80% improvement within a weekends time. I'd say by 3.5 weeks I was 95%+ healed. Its now been two months. My affected side is still sore on my cheeks. Possible damage from constantly holding it when I talked? I have no idea. Also the affected side seems to be overcompensating now. I notice when I yawn that the affected eye will squint more, not sure why.
My first round of bells palsy only lasted two weeks with partial paralysis so I was very scared when it came around a second time.
angel58024 lili54120
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Hi lili! I am 4 months into Bell's palsy and my face is slowly getting better! I can smile now even though my smile is a little crooked I'm glad I can. There's still some things I can't do, like flare my left nostril, or close my eye all the way still. And I'm actually getting synkinesis which sucks but right now it's not too bad and I hope it doesn't get any worse. When I raise my eyebrows my Cheek goes up also making it look like I'm smiling on that side. But I'm just glad my face is actually coming back because it took so long! I know I'm still recovering but it's not that noticeable that I have it anymore unless I laugh really hard. Just hang in there. I prayed my face would come back at 3 to 4 weeks to but it unfortunately didn't. It will come back just try not to stress and make sure you sleep when your tired.
angel58024 alexis02700
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I'm so glad you fully recovered!! I'm still recovering and actually getting some synkinesis which is scary but it isn't to bad right now. I can move way more on that side and can smile even though my smile is a little bit crooked. You wouldn't notice I have Bell's palsy only if I pointed it out now. (Or if you watch me blink because my eye still doesn't close all the way). I know im still recovering and it's going to be a little longer for me... how would you say your recovery is? Do you have any synkinesis?
alexis02700 angel58024
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I had a lot of nerve pain during the second episode and I can still feel pain in my cheek, now 8 months later. It is very mild though like when you have a bruise that’s nearly healed.
Doctors said there’s only a 3% chance I’ll get it a third time so my fingers will be crossed! I’ve heard a few people have gotten it while pregnant. I would be mortified if it happened again when I decide to have children.
sharon24495 alexis02700
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alexis02700 sharon24495
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sharon24495 alexis02700
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