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Betahistine

Posted , 7 users are following.

greg333
greg333

Would love to get advice on betahistine as a way to help with dizzy spells from Meneres. My spells are happening more and more and my ENT has not suggested betahistine at this point. Currently, when I start feeling dizzy I am supposed to take Valium as they think stress triggers it. However, now that it is happening so regularly I just don't like taking a drug like Valium so often. Any help or advice would be truly appreciated. Thank you, Greg 

0 likes, 18 replies

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  • Bluesmann
    Bluesmann greg333

    Posted

    hard to get in the usa....ask your ent about it many have great results with it...im sure more will aswer here....seems the right doseage is key..
  • daniel_43572
    daniel_43572 greg333

    Posted

    Good morning Greg!Do the Valium help any and how many mg do you take? I would also like to hear more about the betahistine I have seen it talked about a lot on here. 
    • greg333
      greg333 daniel_43572

      Posted

      Yes, the Valium helps but it takes about an hour for them to take effect and often times it knocks me out for another hour. I have been putting my head down and listening to meditation music and this seems to work and only take about 30 minutes. I do not lay down, I sit, bend over and put my head in my hands. While this seems to work and in 30 minutes i am feeling better, my problem is that it can create some challenges at work. I need to figure out how to avoid the dizziness all together, at least during the day. 
  • Dadlew
    Dadlew greg333

    Posted

    Hi Greg , I’ve been on betahistine since September don’t want to tempt fate but seem to be working very well for me, was started on 16mg x 3 a day but didn’t seem to do much but after seeing other posts on here was advised to go on 32 or 48mg x3 a day, I tried 32 but not much change so went onto 48 x3 and has really helped, a normal doctor in England will on prescribe 16x3 a day so had to get the dose upped by my ent consultant, the higher dose is recommended by German ent specialist name of prof Michael strupp who says the low dose is little more than a placebo, they do take about one month to become fully affective I hope this helps
    • Bluesmann
      Bluesmann Dadlew

      Posted

      Does it hales with ur dizzies or the fullness foggy head as well..I am on 8 2x per day but getting it upped to 16 2x per day...here in the states my insurance does not Cover it but doc says he will up it until I feel it working
    • Bluesmann
      Bluesmann

      Posted

      help not hales this auto text stinks
    • greg333
      greg333 Bluesmann

      Posted

      Thank you, where do you get your RX filled in the US?
    • Bluesmann
      Bluesmann greg333

      Posted

      a small mom and pop pharmacy near me that compounds you need to find or ask your doc if he knows of a pharmacy that compunds if so they can do it.....
  • NeddyO
    NeddyO greg333

    Posted

    I think you are right to be cautious of excessive use of Valium - it is basically a sedative anti anxiety drug and will not deal with the cause of Meniere's.

    You are also right about betahistine, a remarkably safe drug developed specifically for the condition. The leading authority on this is Herr Prof. Dr. med. Michael Strupp who is based in Munich, Germany. His research has led to him recommending amazingly high dosage regimes which have helped many patients. In UK the max recommended dose in the BNF is 16mg tds which helped me a bit with tinnitus and hearing damage but did not stop the attacks. The dose was tripled to 48 mg tds and later to 64mg tds which stopped the vertigo and nausea completely. After 5 to 6 months free of symptoms I wean off slowly. If I think symptoms are returning I go back on previous max dose asap. You should know that betahistine takes a month to become effective.

    If you are in North america it can be obtained from specialist pharmacy labs on special prescription.

    Good luck.

    • greg333
      greg333 NeddyO

      Posted

      Thank you, great advice and info, NeddyO
  • diane04068
    diane04068 greg333

    Posted

    I live in the US and get Betahistine mailed to me from a Canadian pharmacy. I first had to get a prescription from my ent. It really helps avoiding drop attacks.

     

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