Bile reflux

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Hi

I have had a stomach/bowel problem for a few months now and it it just isn't settling at all. It started in February when I was having my period, I was lying on the sofa at night on my back and I had this very sudden rush of extreme acid into my stomach and chest area, the pain had me on my knees. I had no idea what it was so took painkillers and it went away. I had it on and off a few times after that but not at bad but went to docs who told me it was anxiety and sent me off with omeprazole anti depressants and laxido as I was severely constipated too. I had been constipated since Xmas time. The omeprazole seemed to work as did the laxido until I ended up more dihaorrea like so stopped them and became constipated again. Anyways, after 3 more trips to docs and 2 more different types of anti depressants which made me feel worse so I'm not taking them, I am now at a stage where I have lost 7ib in 4 weeks, (I was 9st 7 and I'm 5'8 so don't want to lose anymore), I am left to do my own research and I'm sure I have this bile acid reflux. I went to a&e last Friday who took blood, did a chest x-ray as they thought they could hear something on my chest but it was clear. They wanted to keep me in but because blood was clear as well they couldn't. I now have to try and persuade doc to send me to gastro but they just keep telling me it's stress. I am lethargic, starving hungry, I am anxious now because of all this. I have pain sometimes in my upper stomach area, I know have a hiatus hernia from when I had my gallbladder out 10 years ago, I keep sweating and don't know if it's the menopause or this causing it. I wake some mornings with severe nausea and my tongue is constantly white. The one weird thing about it all though was when I had my period at the beginning of May, it all went away for a few days and didn't need any mess and ate properly. Sorry for long post I did intend to try and keep it short.

Thanks

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  • Posted

    Hi Bella

    I've had digestive problems for 3 years now, and, like you, in the beginning they kept telling me it was anxiety and stress. I lost 4 stone in about 4 months due to these digestive problems. It was only until, and my advice to you, I got a second opinion from a different doctor. I explained to him that the only reason I was stressed and worried was because I knew there was something wrong with me, that I didn't know what was causing it. The new doctor then thoroughly investigated me with alsorts of tests and examinations to eliminate any serious problems. I'm still getting a good response from this new doctor who is always willing to listen and suggest new ideas and courses of action.

    If you do go for a second opinion, don't mention the fact that you have researched your problems, that shows them an element of anxiety in you, and they will latch onto that and use it as excuses.

    I get a lot of acid reflux, caused by Gastritis, and it makes me feel really ill, faint, nauseous and gives me bad chest pains, but if I hadn't got the second opinion, I would have been worried that it was something else worse going on.

    I know its not much help to you, but that is all I can really suggest. I do hope you get to the bottom of your problems, and wish you all the best for the future.

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    • Posted

      Hi Paul

      Thanks for replying. How have you coped for so long? It's the most horrible thing to deal with. How are you keeping it under control or are you not? This morning I have decided to stop all meds apart from laxido and just eat little and often and use gaviscon until I have seen a gastroenterologist. I'm at docs on Wednesday, a different one so hoping I'll get referred. If not I will keep going to a & e until it's diagnosed. I can't go on like this as I'm sure you can't, it's not like it's a sore leg or a headache. My partner and family don't seem to realise how bad I feel. It's 10.15 am and I'm back in bed cos I'm so tired and worried that I have some sort of cancer, it's a dreadful place to be.

      Take care and please update on how you are.

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    • Posted

      Its not a case of coping with it Bella, its part of my life and I just have to deal with it as best as I can. Its better knowing that there doesn't seem to be anything worse thats causing these problems, but there is always that back of the mind thing going on, wondering if something has been missed. But after 3 years of having these symptoms, if it was something worse, I'm sure I would have known about it by now.

      I keep it (sort of) under control with a combination of FODMAP diet, no alcohol, relaxation and gentle exercise, I do some Yoga that really helps, but it never really goes away. I've got to say I'm more frustrated and fed up as it does impact on family and personal life so much, I don't really have a life. But I always live in hope that I'll find the right comination of things that will allow me to have a life again. I would much preferred to have broken an arm or leg or something like that.

      Do try to stay strong, and try to not think about the worst case scenario. Easy for me to say now, but when I first started getting ill I worried that I had cancer, but all the tests I had done have helped put my mind at ease concerning that. And I do hope that is the point you can get to when you see the Gastroenterologist. I'm sure they will suggest a colonoscopy and endoscopy, and when all they found were a couple of polyps during my colonoscopy, that were removed and found to be benign, it gave me such a sense of relief, and I really do hope you get that same sense of relief, and once you get the right treatment plan for you, I'm sure you won't find life so hard.

      Good luck and all the best for the future.

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    • Posted

      Hi Paul

      Sorry to message you again but I was wondering what pain relief you take if any? also do you ever experience a sort of hot type feeling travelling up your oesophagus from your stomach when you take tablets or eat any food? I get this weird heat sensation when I have omeprazole coming up the way from my tummy. I'm also having spasm and pain from under my right rib which is strange also. Do you have a hiatus hernia?

      Again, sorry for added questions...

      Regards

      Bella

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    • Posted

      Hi again Bella and no worries about the questions, happy to help.

      I struggle to trust any sort of pain relief now as I believe a bad reaction to Naproxen that caused really intense pain in my upper abdomen was the the major cause of all my problems, I've never been right since taking that drug. If I'm really struggling I take a couple of paracetomol, otherwise I find a hot soak in the bath or hot water bottle on the worse affected areas help.

      Apparently my Endoscopy showed no issues with my stomach, so as far as I'm aware I don't have a hiatus hernia, but as for the hot type feeling rising up through my oesophagus, yes I do get that. It ends up feeling like a hot, gassy feeling at the back of my throat. And I also get pain and spasms at the top of my stomach, and mainly around the right hand side.

      Hope that helps and take care.

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    • Posted

      Hi Paul

      It's a weird feeling isn't it? it's almost like my breath is on fire. I have a hiatus hernia so that's probably not helping matters. I took milk of magnesia last night for trapped wind for the first time and didn't wake up at 3 am as usual to sip gaviscon straight from the bottle. I also haven't so far had acid this morning although I have a strange lumpy type feeling in my right bowel area. I took paracetamol yesterday to see what would happen and I managed to eat most of my dinner and strawberries after as the pain

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    • Posted

      (Pressed reply by mistake)

      as the pain and spasm in my stomach stopped after I took paracetamol. It bothers me though that if I don't feel the acid pain then I might not know what damage, if any, is happening.

      Thanks for listening, it helps to know you're not alone, family trying to understand....

      Take care

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    • Posted

      Why do these so-called Specialist treat their patients like crap?

      They know money don't grow on trees and if going to them is a waste of time, then you have to spend MORE money to see a diff doc! If the next is unsuccessful, then you find yourself in a never-ending cycle and become a 'professional patien.' Let me tell you, THAT sucks!

      I have what's called Intussusception-telescoping colon. It causes severe constipation among other things. I've seen all types of docs for it and have gotten NO WHERE!

      After thousands upon thousands of money down the drain, I'm still sick!

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  • Posted

    Hello Bella

    I am waiting to go back to see the surgeon after a colonoscopy.

    The colonoscopy Report I was given after the procedure on 6 Feb 17 said

    Perianal lesions: 3 haemorrhoids (2nd degree) and skin tag within

    Diagnoses

    Haemorrhoids and mild degree of rectoanal intussuseprion.

    I take 3 packets of a powder similiar to what you mention, and find still have upper stomach pain and bloating and just dont feel well.

    I get constipated easily, well for ages

    Take Care

    Michele

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  • Posted

    Hello Bella

    I get it go right up under my ribs.

    Its pain under my ribs, especially under my left breast rib, and then feel discomfort in all my abdomen. Can cause pain in back in kidney area.

    I get consipated easily even though I take the fibre sachets.  They say I have IBS and this other problem that was discovered during the colonoscopy.

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  • Posted

    Hi it certainly sounds like acid reflux,are you on 20 mg or 40 mg tablets.I can't believe you haven't been referred to a gastro,I live in Australia and with my bowel and upper gut problems its the first thing my gp wants me to do.

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    • Posted

      Hi Suzanne

      I am on 20mg x 2 daily. I hate taking them as I'm sure they are making me worse. My doc sent me for liver scan and took bloods which were clear so they are adamant I have anxiety issues. It seems I'm going to have to beg for an endoscopy, at docs on Wednesday. I took milk of magnesia last night before bed as I had trapped wind pain and I haven't had acid yet this morning but can feel slight pain in my abdomen. I might stick to the milk of magnesia if it carries on working for now.

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    • Posted

      Hi

      I had gallbladder removed 10 years ago. I've had a CT scan earlier this year because I was peeing blood, but only on my period. The urologist found a tiny cluster of blood vessels in bladder and wants to remove them to check for endometriosis. I suppose all this could be connected but when I'm seeing 3 different consultants in the same hospital who don't communicate between each other (urology, gynae and endocrinologist) and then GPs who are saying its all anxiety, it leaves me scouring the web and asking folk like yourself what could be wrong. I'll get there in the end I suppose 🙃

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