Bimuno

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Has anyone with M.E. and insomnia tried the prebiotic Bimuno powder, as seen on 'The truth about sleep ' with Dr Michael Mosely ? Or any other prebiotic?

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  • Posted

    I was interested in that too. The only prebiotic I've been able to find is Inulin. I don't have insomnia, but I thought it might be a similar issue causing poor quality sleep, with crazy dreams so I wake up knackered. I think it has helped a little, but unfortunately hasn't proved a magic cure! sad

    I don't know but where you can get hold of the Bimuno stuff... If you find it, I'd be interested to know how you get on!

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    • Posted

      Hi

      Been following this thread as I have ME and the dreaded insomnia or more correctly ''Circadian Rhythm Disruption''.  I've googled the product and there's no end of sales outlets on line offering it.

      Caitlin

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    • Posted

      Hi Victoriajane, many thanks. The  Bimuno can be bought from this website 

      If I do pluck up the courage to try it I'll let you know. I seem to be so sensitive to anything new. If you decide to try it would love to hear from you too. It's meant to specifically increase the deep, healing sleep 

       

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    • Posted

      Yes tell me about it! Without drugs I stay awake 24/7. 

      Do you think you'll try Bimuno ?

      It contains Galacto-oligosaccharides and there was a programme on TV last night about how a mothers breast milk contains Oligosaccharides and yet they have no nutritional benefit for a baby. They can't digest it. But it's there to kick start the baby's microbiome ( gut bacteria). They come from the womb, a sterile place, to the real world and are met with all sorts of virus' and bugs. So it shows how it plays a major role in the immune system.

      I had a virus and stopped being able to sleep at all within only a few hours.

      Sorry for rambling on. Thanks Caitlin.

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    • Posted

      Hi Claire 

      you have my sympathies with the insomnia problem. 

      do you have ME/CFS as well or just the insomnia?

      perhaps your GP would refer you to a ''sleep program'' like the insomniacs in Michael Mosely's program?

      C

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    • Posted

      Thanks Caitlin so much. Yes severe M.E.  I've been to the sleep clinic in London but have become accustomed to the drugs. My surgery doesn't 'get' M.E.  In fact one of the G.P.s who I thought understood a little came to my flat said that it was because I lie down that I'm in pain and so weak. So she offered to send a physiotherapist to give me some strengthening excercises! So have come to a dead end with Drs.

      Thats why I'm looking at natural products.

      thanks again

      Claire

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    • Posted

      Hi Claire.

      so sorry to hear that. it's such a horrible illness, that gets little attention, whether in respect of good research or public and/or professional understanding. do you have the 'boom' & 'bust' pattern or the persistent slow burning pattern. it's shocking that a Dr would make such a suggestion to you.  do they actually believe that anybody would lie around becoming weaker & weaker with nothing wrong with them.

      BTW, is there a ME/CFS clinic near  you at all or a support group. sometimes the latter can help but not always?  hope you find something that will at the very least,  help with the insomnia. the worst thing with the insomnia is, that we never get away from ourselves?????

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    • Posted

      Hi Caitlin, you've totally put into words how it feels when you can't sleep, "you can't get away from yourself". Worse feeling when you feel ill. I often wish I could sleep for a weak and wake up when it's all over. Over the years it's been kinda boom and bust but am so bad now it's just bust. It's a long way to any clinic and don't feel a support group could do anything really. It's my faith that gives me real hope. It's the one thing that keeps me going.

      C

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    • Posted

      Caitlin would you mind telling me why you haven't tried Bimuno yet? Do you think it can possibly make M.E. worse?

      Thanks

      Claire

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    • Posted

      Ok! So I have now been on Bimuno for a week (that's how long it says it takes to work). If anything, my dreams have been even more intense and sleep disturbing this week. I've also experienced bloating. I had similar issues with bloating when I first started taking Inulin, and that settled down, so I'm going to keep going for a while and see if it's just a question of the body adjusting before I see the benefit.... I'll report back! smile

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    • Posted

      Thanks ever so much for that. Sorry about your dreams though. Do you take the Bimuno at night like .Michael Mosely did?  

      Good luck!  Wishing you well.

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    • Posted

      Hello, I thought I'd give it a go for a few weeks before reporting back! smile I think it has made a difference - not to the dreams, they're weird as ever, but I'm now waking up once or twice instead of 5-6 times. I always thought it was the dreams waking me up - obviously not! smile

      The provisos though are that I'd already been taking Inulin for some months prior, and continued taking that as well. Also, I've been having the Bimuno before bed in hot chocolate - so I suppose there's always the chance the hot milk is playing a part. I used to have hot chocolate fairly frequently before, but not every night. (Waistline is a worry for another day!!)

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