Biopsy after care

Thanks Morrell, I will get a spray bottle and try this.

 

Nothing stops the LS, but surgery to separate fusion has always been an option. Unfortunately it often re-scars closed. Dr. Goldstein is optimistic that with the 'proper' use of clobetasol, this may not happen. The thing is, some have really aggressive LS. Look how hard a time Hanny's been having keeping her dilated opening from growing shut. She just needs to be able to pee. If you read about the Koebner phenomenon, you'll understand that any cutting or trauma can trigger a major flare-up. So, it really depends on a lot of things. We have had members who have had surgery and resumed sex, so as I say, it's sometimes an option. More in younger women, I think.

Hi Shiela, Instillagel is used to numb the area when you have a Catheter inserted or an internal, it also has antiseptic in it as well.  It does help with the pain, but stings when you apply it.  Separating the fusion won't stop the LS, and the fusion can re close.

Look into fasting...there is medical science behind it where it has cured auto immune disorders such as LS and also Lichen Planus. I end a 5 day fast tomorrow...which I began with my doctors blessing and I've already seen some remission in my symptoms. I had no solid food, just lots of water, non-caffeine herbal tea and could have the juice of two lemons and two oranges per day. It was a bit difficult but not as hard as I thought it would be. Also, try organic pure aloe vera gel for the itching in the genital area...just a tiny dab will do it. Helps tremendously.

Did people in the hospital teach you how to keep the opposite layers separated?  I keep using the dilating technique.  

thanks Hanny, so sorry you are suffering too, I will try the Bicarbonate of Soda today.  I do not want them to fuse together again, it is so painfull having it separated.  Do you put any creams or ointments on it? Are you raw?  I have peed this morning and am bleeding, not sure if it is from pee or separation or stitches.  I would like to put something on it, but afraid it may make things worse or get infection.  I also had a skin tag removed from bottom part of vaginal opening, from previous ops, this has one stitch in it.  The two biopsies have a stitch too. Hope the bicarbonate works for me.

they told me nothing, just said they could fuse again.  What is the dilating technique?  I asked for the Instillagel and oramorph as they helped

me last time, but didn't have fusion then.  I am very worried that it could re-fuse.  I was starting to have trouble with peeing, it was dribbling after a pee.

anything you can suggest would be greatly appreciated

Hi Jan,

Some blood coming at first is normal.  No baths, I was told, till the bleeding stops.  And unfortunately at first it is painful to pee.  Not wanting any infections I started using baking soda (three pinches or more) with the warm water in the spray bottle that was supplied.  (the baking soda was an old remedie my mother used)  This I still do after every bathroom visit.  I noticed that it helped in more than one way.  For some reason the LS stopt being so vicious.  Which was helpful with the healing process.  With that I used some oil, trial and error.  The most successful I was with coconut oil, although it stings a bit at first, it seems a good combination with the baking soda. That one stitch will eventually dissolve, but will also give discomfort for a while.   

First some healing has to happen before you can go to the next step.  Keep observing the area closely.  My specialist explained how I could make myself a simple dilation tool - small candle with a condom over it.  The advantage is that the condom already has some lubrication.  Since at first the opening was so small I could not use anything bigger than a birthday candle at first.  Most important in this is that the layers heal separately.  A task and a half, since at first I was doing this at least six times a day.  Three weeks later now, I have been able to reduce this to three times a day.  

Since I was running out of candles the right size, I have, via Amazon,ordered a dilator set.  Using the smaller sizes.  To my amazement I read on the instruction sheet that this dilator set is also used for people with LS.  Who would know.

So far so good.  I'm three weeks in now and I can pee like any ordinary person and that is sheer delight.  

Next to all this I still do the hormone replacement (not Premarin since I was swelling up from this and that closed my small opening one day, brrr. )  I use Bi-Est. And I use still a small amount of the clobetasol ointment.  The tiniest amount.  

I'm not sure I have told all in the best way, so someone else can understand.  If you have questions, feel free to ask.  

 

Thank you Hanny for explaining all that you have gone through, I feel that I may have a similar problem, as I am unable to have sex and cannot have a smear test without a lot of pain or they can't do it at all.  I will certainly try the Bicarb treatment, I remember my mother using this years ago for something, can't remember what.  

I hope that you continue to improve and get some relief from all that you are doing.

jan

 

GREAT TIPS hanny! so there is a dilation set....makes sense.

hope you get some relief jan. best wishes

It's what I hope for you too Jan.  With all this I also took a lot of rest.  

See my reply to Morrell1951 about fasting to cure LS.  And thanks for the baking soda tip. I have used the spray bottle with Witch Hazel to promote healing...but the baking soda is a much better idea.  I'm just ending a 5 day fast...watch for my future posts to see if I've achieved the cure I'm hoping for.