Biopsy results tomorrow and medication question

HI Wendy - sorry you've had to wait SO long. ouch. But perhaps you've seen some of my previous comments about building up our immune systems with a series of nutritional supports? I researched this about 1.5 years ago when i first was in horrible pain.

I don't take any prescription steroid of any strength: I've gotten comfortable entirely on nutrition and NOT eating sugar. And I'm in the U.S. but I know I've heard the term Tacrolimus quite a bit so that maybe was is used in the UK? the whole name of clob is Clobesatol you might be able to find info on those terms. Cheers, be well and don't worry, it'll get better.

HI Sharon - sorry for the delay in responding. When I discovered I had LS 2 years ago I searched online to discover that LS IS an autoimmune disease. I think we all know by know that the 100 plus autoimmune diseases ALL are evidence of inflammation!

https://patient.info/forums/discuss/nutritional-support-for-autoimmune-diseases-updated-for-several-skin-disorders-641279

and the rationale how we need to build back up our immune systems;

https://patient.info/forums/discuss/pathway-into-and-out-of-autoimmune-diseases--661033

hope you feel much better soon!

Dermovate cream and ointment both contain the active ingredient clobetasol propionate 0.05%, which is a type of medicine called a topical corticosteroid. ... Dermovate cream is more suitable for moist, weeping areas of skin, while the thicker, more greasy ointment is more suitable for dry, scaly areas of skin.

Tacrolimus is a different medication which dermatologists seem to favor. Whenever you're confused about drug names or want to know more about them you can usually find the info by googling.

I was initially prescribed a weaker steroid ointment but have moved on to clobetasol. Have an appointment coming up with a dermatologist. May end up using tacrolimus as the clob isn't doing much despite using it daily.

Have your symptoms decreased or increased? Have you been using anything at all?

hi,

You did well I waited twelve weeks NHS biopsies and that was pushing and pushing for results, they came back imconclusive which happens alot with L S, so it might come back like that. I use the ointment Dermovate twice a week for maintenance. What annoys me is our hospital dont do follow up appointments so it is up to us to keep a check on things. I used the ointment as instructed at first and now it touch wood helps just on a Friday and Tuesday as if I do it those days I remember to do it. x

I also use Yes moisturiser every day after showering as it helps the soreness. Im post meno eight years though.

Hi Wendy, I can sympathise with you, I'm waiting for my biopsy results too. (only had it done a week ago) so it looks like I'm going to have a long wait!

I'm in Scotland so I would think its not a lot different from rest of UK in treatments. I am using Clobetasol Proprionate to try to get this condition under control as well as using my own barrier and moisturiser. I got confused with all the terminologies too!

Nobody really knows what causes it, but its commonly agreed that its most likely an immune system problem (with the amounts of polution in the air, in the food and in just about everything its no wonder our poor bodies get swamped and cant always support us. I think in my case it was building for years before it properly manifested. I'm post menopausal now so that was the icing on the cake for LS to take a proper hold.

I was sent to see a gynocologist at the local hospital, she diagnosed LS and I was sent home clutching a NHS print out to read. Things didnt get a lot better so I asked to see someone else and was lucky to be sent to a gyny clinic locally and the doc there took the biopsy and said the clinic would keep tabs on me. So not too bad a result.

Hope you get good support where ever you are - its important for your recovery and future health.