Blood in urine but no infection and health anxiety

Posted , 61 users are following.

A couple of years ago, I was treated for what I thought was a urine infection.  However, no bacteria were ever found in the urine samples although there were traces of blood and leukocytes.  This went on for a few months.  The only thing that seemed to help was nitrofurantoin which I had to stop due to a strange reaction. 

Eventually I was referred for an ultrasound which found nothing.  I still had symptoms at this point and my doctor told me to cut out tea and citrus fruits.  My symptoms then went away after a few weeks. 

I slowly started with these foods again around six months ago, and a few weeks ago my symptoms all came back.  I am not sure if this is related or not.   Anyway, I went to the doctors again.  Yet again, there is no bacteria, but traces of blood.  The doctor has freaked me out by referring me on the two week wait scheme for a cystoscopy.  I am now convinced I have bladder cancer.  I admit I have health anxiety, but can't think what else is causing my problem.  I am also quite hospital phobic after a bad anaesthetic experience as a child.  Anything that might lead to me having a general anaesthetic sends me into a bag of nerves. 

I am in my late 30s.   Just recently, I have noticed other pains to the right of my navel and in my vagina area.  I'm now staring to panic that the suspected bladder cancer may have spread around my body.  

Does anyone have any advice for me? 

0 likes, 88 replies

88 Replies

Prev Next
  • Posted

    Can anyone share their outcome? I have been in / out hospital and dr's office for last month. Supposedly UTI, kidney infection , UTI... but no actual bug. CT scan of kidneys clear, pelvic ultrasound fine. I'm still in a lot of pain, unable to work. Seeing urogynaecologist tomorrow. I have massive health anxiety and am now convinced I have bladder cancer. Keen to hear everyone else's outcomes.

    • Posted

      I have now been refererred to another hospital for a second opion as they are unsure where the blood in my urine is coming from. All my ct scans ultra sound scan and cystoscopy comes back clear but in pain, i have beenput on antibiotics for 3 months which i know will keep the pain at bay but all i want is a diagnosis. 

      I have beentold to keep off tea coffee and citrus foods, plus after intercourse take a shower and make sure i open my bladder. Hope there are a few tips to help you.

    • Posted

      In december I went to the urologist and I had a ct scan of pelvis and abdomen as well as a cystoscopy. Both came back clear. Urologist has me coming back in 6 months to give a urine sample just to keep an eye on things because they didn't find anything going on. Fast forward to yesterday, I had a follow up appt with my GP for something unrelated. They did a urinalysis and said I had "trace" blood in my urine (although the microscopic report says 0-2 red blood cells found, which is listed as normal). I explained that I had a clear CT and cysto and now they want me to do a urine cytology next week. I'm nervous about this because now I'm thinking there was something the other tests didn't find. I haven't had any more episodes of visible blood or UTI like pain since my last post 3 months ago.

    • Posted

      Thanks for the update. Sorry you're still in pain. Has interstitial cystitis been considered? Did the cytoscopy hurt?

    • Posted

      They had to do the cystoscopy under general anesthetic as my uretha was very narrow so im sorry i cant commenton the pain as i was asleep thank goodness.

      A friend of mine also mentioned IC so i think they may check me outfor that next so will keep you updated Thanks

       

    • Posted

      Everything was ok there, but still blood in the urine i wasreferedto another Doctor who as recently told me i will be proun to urine infection and that 1 in 10 people if tested would show bloodin the urine and no infection so dont worry!!!!!!!!!!!! (easy for them to say) but tbh ive come to the conclusion this will be my case. Hope you get sorted soon 
    • Posted

      Hi

      I also have microscopic trace of blood in my urine. I have had urine analysis, which comes back fine minus the trace of blood. Cystoscopy came back clear, ultrasound on shows kidneys clear, bladder clear. Blood work comes back excellent. Doctors say some people have blood in their urine with no reason. They also checked my bladder and did a urine test to check for malignant cells and all came back clear. 

    • Posted

      I ended up being put to sleep to have the cytoscopy done as the pain i couldnt stand but every thing came back ok

  • Posted

    Hello everyone I'm new here and just seen this post! , I've been going crazy my self because a few months ago I got blood and my urine test done and they told me that I had blood in it , so I thought it was a UTI so I took the antibiotics and now a few months went by after taking them now I took a test again and still blood in the urine this time showing no infection/bacteria, I did a ultrasound on my kidneys and pelvic area all came back good but still blood in my urine , I've been stressing out worrying all the time on what's going on and also what's to hard is that it takes forever to get in to see my doctor sad I'm 20 years old and I stopped smoking about a year ago so I'm just worried that it's bladder cancer or something as well , have any of you heard anything what's been causing the blood in the urine?? Thanks

    • Posted

      Any ending results you can report. Same thing I'm going through.

  • Posted

    I also have occult blood in my urine and no uti. I do have a small kidney stone, but for the past week my bladder pain/burning has been horrible. If there's no uti, why does it hurt so much? Drinking more water doesn't help. It seems to burn more after I go pee.

    I. And find any triggers for the pain and I'm getting scared. I can't see my new doctor until next month. I'm sure then that testing will begin.

    • Posted

      A lot of what I'm reading is resonating with my situation for just the last two weeks. I'm pretty much freaking out and worried that I have Bladder Cancer. I have two kids under age of 10 and am petrified of what my results will show. so far randomly found blood in urine 5 months ago following horrible back pain for one day that had never happened to me before. Nurse suggested I may have had kidney stones and had passed one and didn't realize. .. because my family and I were headed headed in vacation, I asked for antibiotic in case it was UTI. symptoms went away and didn't think about the blood in my urine again. Fast forward to 2 weeks ago during annual exam ...Dr says Blood in my urine so refers me to Urologist and have ultrasound. Ultrasound showed no stones but fluid build up in right kidney. I see Urologist who is not worried bc last urine sample shows no blood and last urine culture shows No infection. Awesome right? next day, I get a call that urine sample that was sent out now shows blood again. Conveniently I get this call...wait for it ...as my family and I head on vacation we've had planned for over a year. Good times! so much for a relaxing getaway to the mountainss. I now am getting CAT scan done on Monday at hospital nearby while on vacation bc I can't wait 10 days for when I get back. praying!!!

    • Posted

      Fluid build up in your kidney (hydronephrosis) is probably due to a kidney stone. The cat scan will be MUCH more definitive than an ultrasound. A kidney stone anywhere in the ureter will cause fluid build up in your kidney. If you passed a stone, that build up should resolve shortly. So, hopefully, your cat scan will give you answers. So frustrating when health ruins s vacation.

      I hope you feel better.

    • Posted

      Please let us know what you find out. I'm having same symptoms as most in this thread. I'm a nervous wreck that it's bladder cancer. I'm mid thirties and a smoker. I have an appointment for an ultrasound of my kidneys and bladder in 3 days.

    • Posted

      Had a cystoscopy last week (camera into the bladder) consultant said it was completely healthy.  Now waiting for a kidney scan.
    • Posted

      Ultrasound of kidneys and bladder came back normal. So, i guess I'm going back to my family doctor in 4 days and doing another urine analysis.

    • Posted

      Yes I can totally relate to Hydronephrosis. I was having low abdominal pain, side pain, and even pain in my back...up around my bra. Sounds hard to beleive, but true. Everyone kept thinking I had a stone. Always had infections, or tests also cane back negative. Come to find out I was born with a congenital abnormality "Uretho Pelvic Junction Obstruction ". I was born with two Uretho's on my right kidney, they were crossing and a main blood vessel was pressed against them. My orginal Urologist did several procedures on me. Nothing worked. It was not till I was sent to USC University Hospital to a Subspecialist, that this condition was diagnosed and reconstructive Robotic surgery was preformed. Mind you it was an (8) hours of surgery. Sometimes there are abnormalities that cause our problems. If you do not keep on top of your doctor, they will not send you to the subspecialist...or as I like to refer to my subspecialist "My Dr. House," because he fixed me when no one else could. Do I still have issues, of course I do I was not diagnosed till I was 49 years old. Damage was done to my kidneys after all those years of not being diagnosed. If your born with a condition, and have always felt the pain, you don't know any different. You think everyone feels like that, so until that pain gets bad enough.....like mine did, that's when you seek help. Good luck to all of you.

    • Posted

      So here's my update... CAT scan came back showing no stones or cancer thank goodness. then Urologist did Cystoscopy which if course was nervous about. didn't feel a thing - no sweat! and best part ...all clear. so Dr said some people just have blood in urine and never find out why. I'll do checks every year. if results are same after 5 yrs, I'll repeat process . hoping that's all that it is. Sooo... that's it for now. if anyone had any other stories like this with no answer to why Blood in urine let me know!

    • Posted

      I've had blood in my urine for 3 years . No infection, lower back pain, lower ab pain,and also had Cystiscopy... came back nothing wrong except incontinence. . I'll repeat process in a year. Oh and still bleeding😣

    • Posted

      Hey! I'm currently facing the same issue. I have blood in the urine and pain while peeing as well. Ultrasound, ct scan and cyctoscopy were all normal. They have asked me to follow up with the urologist again to see if he'll refer me to a kidney specialist.

    • Posted

      3 months on.....I am having a kidney scan today.  They lost me in the system hence the long wait......

       

    • Posted

      Hi D'anab

      I can't tell you how I have been going thru severe anxiety cause of all of this. Back in April during physical exam Microscopic trace of blood in urine.  Doctor thought it was cause I was end of my cycle.  Fast fwd. back in sept....wasn't feeling well and went to doctor. Was sent for Ct scan of pelvi and abdominal and all came back clear. Still however Microscopic trace of blood in urine. Went to urologist who took urine all came back well with still a microscopic trace. Now he wants me to go back to give more utine to check for malignant cells. Everyone is telling me if all test have come back fine so far then I shouldn't worry and sometimes it just is. What's your opinion? 

    • Posted

      Hi danab

      Glad to hear that all is normal. My urologist said the Same thing when all the results turned out to be normal and declare me asomstic.so not to worry I have the same issues and gone through all the test like scan cytoscopy blood tests but still microscopic blood in urine and urologist said it is normal and not to worry and had discharged me. Cheers

    • Posted

      Hi

      I also have microscopic trace of blood in my urine. I have had urine analysis, which comes back fine minus the trace of blood. Cystoscopy came back clear, ultrasound on shows kidneys clear, bladder clear. Blood work comes back excellent. Doctors say some people have blood in their urine with no reason. They also checked my bladder and did a urine test to check for malignant cells and all came back clear. 

      Im a nervous wreck that something is brewing. Can’t understand why I have microscopic blood in urine.

    • Posted

      Hi

      I also have microscopic trace of blood in my urine. I have had urine analysis, which comes back fine minus the trace of blood. Cystoscopy came back clear, ultrasound on shows kidneys clear, bladder clear. Blood work comes back excellent. Doctors say some people have blood in their urine with no reason. They also checked my bladder and did a urine test to check for malignant cells and all came back clear. 

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.