Posted , 8 users are following.
I have suffered with blotting for ages and doctors don't know why if i don't eat i bloat up as if i eat its the same i look like i am pregnant its so uncomfortable , i have had Neurendocirine cancer in my stomach and small bowel both lots of cancer have been removed .
I just don't know what to do i need help my doctor is no good and you can not talk to her , i also suffer from nf1 .
Please help .
0 likes, 10 replies
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EdEire kevin10979
Posted
pregnancy can affect digestion tract as it applies a pressure on stomach....its individual
most people will suffer from Gerd - aka reflux ...my wife had todrink tons of antiacids to relief the stomach..... i would speak to the doc and see...the fact that you had history of illness i can only recommend you the get some test done, but my guess would be increased anxiety and stress levels causing IBS. which could be a culprit here.
take care and best of luck with the baby
kevin10979 EdEire
Posted
Good evening EdEire
Thank you for your reply , I have had tests and surgery for reflux as suffered for many years from being a young teenager and was on antiacids for many years but after my surgery was taken off them , i have suffered with blotting for a long time but noone can find the reason for this , i also suffer from Nf1 and seeing the Genetics team later this month , the problem with Neurendocirine Cancer you dont get any systems so keeping everything crossed its all clear from cancer .
I will have to talk to the team later this month hopefully can get some tests done .
Rainbow78 kevin10979
Posted
Goof morning Kevin. I had hemicolectomy to remove most of my bowel . I have my left colon left. I was bloating before the op and still do now. but I'm a woman who has had 4 children so a baby belly will always show but I do know it takes 2 years for full healing of all the layers you had cut.
also my dad had cancer of the small intestine and his belly was so big bless him but his could not be removed nor treated 😦
but the fact you are a cancer survivor makes me really annoyed the doctor isn't paying much attention .
please ask for a different doctor or do you still have a consultant from previous treatments. I would ask be referred back to the cancer specialists if you are not on their list anymore. try not to be made to feel like there is nothing wrong. your only request is to for them to prove there is nothing wrong . right !? 😃
kevin10979 Rainbow78
Posted
Good evening Rainbow 78
Thank you for your reply , i have had blood tests but told all clear i have got a hospital appointment to see the Genetics team on the 28/8/19 for my nf1 so hoping to get something sorted , my first tumour was found when i went in for surgery on my stomach the consultant decided to remove the tumour and i was told it was a good job he found it as i would of coughed blood up and i would of been dead , a nice way of telling someone . The 2nd was in my small Bowel also removed .
The problem with Neurendocirine cancer you dont get any systems it just grows on your nerve system ,well noone as ever told me what if ? , as for my blotting its been going for many years and noone as ever found out why if i wasn't a man you would think i was pregnant .
so to read about your dad ,
thanks again
Kevin .
pippa58442 kevin10979
Posted
Change your doctor given your medical history.
kevin10979 pippa58442
Posted
Hi pippa
Yes we need to change doctors we have had so many problems over the years but its finding the right doctors who knows about NF1 and Neurendocirine cancer i have so many rare problems i would need a doctor thats knows about everything and that would be impossible.
pippa58442 kevin10979
Posted
Such doctors do exist; don't give up hope of finding one! There will be a specialist somewhere who can help you.
JohnLucky888 kevin10979
Posted
maybe constipation, I always have one last hard stool that I cannot seem to push it out and it bloats up my stomach and if i eat, it piles up. surely you cannot feel bloated if your bowels are empty?
kevin10979 JohnLucky888
Posted
Hi John
Not one days goes by with out being bloated i go to the toilet maybe 2times to 3times a day and that seems normal , But even if i don't eat my stomach bloats and its like i am pregnant ,my cancer consultant said its very impressive but its not his field , i am at a lose , my brother said i looked like mr blobby of television , thats just what i wanted to hear ..
I am at a lose and don't know what to do any more .
sean96537 kevin10979
Posted
https://patient.info/forums/discuss/abdominal-pain-is-finally-gone--711421
1 lb. ginger root, put in a plastic bag and smashed the hell out it with a rolling pin.
Put the smashed pieces in a large stew pot, 3/4 filled with water.
Let boil for an hour, it should taste real spicy.
Filter the tea and drink, I drank a cup of the tea each time, not the whole pot, hope it helps.
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