Both shoulders

Posted , 13 users are following.

Hi everyone, 

I've just developed FS in my second shoulder, and knowing what I went through with the first one, I'm really dreading it. That was 5 years ago (at age 37), shortly after giving birth, and it's still not completely better. So far, the second shoulder is following a different path of onset than the first- onset is far more prolonged and missing the severe spasms. The first time was absolutely unbearable pain and this one is just more annoying and not so bad.  Do you think I just had an extreme case last time? Or is there such a thing as a mild case of FS?

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  • Posted

    Hey there Sarah! I think it's entirely likely. Severity varies in illnesses, and from person to person. The question I would pose is how long ago were you diagnosed with your recent case? Could it be that your symptoms just haven't progressed to that stage yet? I'm not trying to sound negative- just putting it out there for thought. I would be inclined to think that perhaps this go round it isn't as severe (yay!!). The reason I say this is you've been through this before, you know what it feels like and what to expect (symptomatically), you know YOUR body, and lastly, again illnesses can vary in severity.

    I'm sorry you are going through this again- even with milder symptoms, it's still awful; but I'm glad it doesn't appear to be AS bad as your last go round.

    • Posted

      Thank you! It's been about 3 months. I've had all the dull constant pain, difficult nights, and progressive limitation that I had in the other shoulder, but this time I am missing the blinding pain caused by slight jarring or movement. It just seems to be different in that by the time I had this much loss of ROM last time, I was in more severe pain. Also, on the bright side, I've already got my dominant arm out of the way first!

  • Posted

    Sarah, I had FS in my left shoulder that was horrible (Certain movements when it was at its worst would reduce me to tears and nearly fainting!). It lasted about one year and  I have nearly all my mobility back (I only notice a bit of tightness in some yoga postures). Before my first FS was over, I started getting similar symptoms of FS in the right shoulder!! UGH. I have had a couple of ultrasound guided cortisone shots that have been VERY successful in my current/right shoulder FS. They hardly made a difference with my first onset in my left shoulder.

    I agree with you....my second frozen shoulder has been around for nearly a year (but with symptoms minimal after shots) and is so far, not as severe. At this point, the shot that I received in September has worn off, so I am getting stiffer and having more pain, but still nothing like the first round. 

    From what I have seen and heard from others, every case of FS is different. Some have symptoms for 3-6 months, others for a year or 2. I'm hoping my second round  will be easier. I guess time will tell. I can say that having been through it before, I feel calmer and less stressed about it (which can help pain) as I know from experience that it does eventually get better. 

    For now, I am keeping up with my PT exercises, taking fish oil and trying to follow an anti-inflammatory (Mediterranean) diet to try to reduce symptoms. As I stated earlier, the only thing that has really had noticeable positive results for me have been the ultrasound guided shots (the shot into your shoulder without the ultrasound effect of getting it right into the joint is useless).

    Best of luck to you....sorry to hear that you are dealing with this a second time....you are not alone!

    • Posted

      Interesting, your story is very similar to mine. The first one was also my left(but I'm left handed) and was almost fainting from slight jarring movements. The cortisone injection (non US guided) was very successful for the pain, but not ROM, and 5 years later, I feel like there is permanent damage to my shoulder. It's hard to explain, but it aches, it clicks and cracks, still doesn't move in all the directions I want it to and just generally feels old (I'm 42). Would it still be this way if I hadn't had to injection? Hard to say. So far I haven't needed injections in the 2nd shoulder but I suspect I will. It's just not all that painful yet but the loss of ROM is getting more extreme.  I will definitely consider US guided if I do get it though, maybe they just got lucky the first go around at getting it in the right spot.

    • Posted

      Incidentally, I wish it was called something more serious sounding than frozen shoulder. People just don't understand, and they're like " oh yeah, I had that too for like a week, I slept on it wrong or something". Even my doctor didn't understand the pain until he saw the pain I was in in an examination (and he had just seen me give birth 3 months before so he had a direct comparison!). He gave me a cortisone injection right on the spot.

    • Posted

      It's medical  name is adhesive capsulitis. Does that sound more painful? confused

  • Posted

    My second one was very mild and with my non-dominant arm, I wasn't even sure if that was what was happening, but I got acupuncture treatments just in case, The first severe one lasted 3 years and the aftermath lasted 12. I had never heard of FS till I got it then, like a lot of things, I found out it had happened to many people including my father. Wonder if it might be hereditary?

    He had Dupuytren's and now I have it in one hand. (Thanks, Dad!) 

  • Posted

    Hello Sarah 

    Are they sure it’s a FS this time , that’s what I would question , not sure if there are mild cases of FS. 

    True FS the 3 stages freezing - acute horrendous pain , pain particularly at night. FRozen - severe stiffness and impingement if movement and continued pain . Thawing .... final stage 

    I would ask again .. was it your doctor that told you that ..

    In the end I only trusted my orthopaedic specialist as I felt he was the only one that knew the right diagnosis 

    Best of luck xx

    • Posted

      My PT definitely thought it was, doctor was more kind of "wait and see" but that was a month ago, and its gotten worse.  Unfortunately the wait is very long to see an orthopaedic here...

      Impingement is about 30-40% depending on the direction, the feeling in the joint is unmistakeably the same though, just less than last time.  I seem to have skipped that stage where it wasnt frozen at all, just horrendous pain (that lasted about 2 months the last time if I recall).  I should also mention that I had about a month of thinking it was coming on in the other shoulder 2 years ago, but it never fully developed.  It could definitely be something else, but what??

  • Posted

    I think the main difference between my first and second frozen shoulder was that I recognised what it was early on.  The first time, (as with many others) I thought I'd pulled a muscle or trapped a nerve and that it would eventually sort itself out - hence I sought help from the doctor very late and was, by then, very badly frozen and in awful pain.  

    Having gone through it once, I recognised the signs much earlier on, second time round and so was able to get treatment much earlier.  First time, I got relief from the pain that enabled me to gradually regain movement after having hydrodilatation.  I'd had this done when I was badly frozen and the consultant told me that if it should happen again, the earlier the treatment was done, the better results.  Once I was sure that my second shoulder was freezing (2 years after the first) I went back to the consultant and he agreed this was the case and offered me early hydrodilation.  It was the best thing I could have done - I'd lost little movement and the treatment, along with some gentle physiotherapy from a really good therapist, ensured I had full movement very quickly.  After the cortisone wore off (a couple of months) I had a little discomfort if I slept directly on that shoulder for a while but no pain during the day and no further stiffness.  The early treatment meant I avoided the worst of the symptoms and was able to get on with my life as normal.

    If this is an option for you, I'd certainly recommend getting early treatment - it worked for me!

    • Posted

      thanks, the cortisone injection worked very well for me the first time, so I will definitely get it again!
    • Posted

      You mentioned you had a "non-guided" cortisone injection - what I had (hydrodilatation) was guided with ultrasound and also included saline, which they inject under a little pressure, to try to release the adhesions.  This can result in immediate restoration of ROM for some people.  The first time round, my shoulder was so badly frozen, it took a bit longer to regain movement but the second worked for ROM as well as pain.

    • Posted

      yes, thanks, I've been referred to the clinic that offers this.  I guess the benefit of the cort injection is I can get it at a moments' notice.  I did actually get referred for hydrodilation last time, but the non-guided cort injection worked well enough for the pain so I never got it.  Sounds like maybe I should have anyway, since my ROM is still not very good in the first shoulder.  These things take time to get into in Canada, and last time I think I thought I was good enough by the time I got the appointment (and I was also quite scared of making it worse, and of the procedure hurting alot).  Thanks for all your input!

  • Posted

    I agree Sarah, that part of the second FS being a bit better is probably due to earlier symptom recognition. In my case, my left shoulder was still thawing when the right acted up, so I was already doing PT (and as a yoga teacher, it just felt weird to do exercises only on one side, so I was doing the exercises with both of my shoulders which has probably helped).

    Adhesive capulitis is probably a better term to be using...than FS..I agree with the earlier response that it is a misunderstood condition. Most folks don't realize how debilitating and painful it is and that leads those of us suffering to feel alone and misunderstood...along with being in pain! Forums like this are so helpful. 

  • Posted

    Judging by these responses I wonder if the second one is less severe no matter what treatment you try.to make it so. Maybe we have developed anti bodies of some sort?
    • Posted

      I was thinking the same.  These forums are so helpful too, but I'm amazed how many of us get it in both shoulders.

    • Posted

      I'd say we get it because our particular bodies don't have a natural resistance to whatever the stuff is that forms and locks in the joint. Maybe other bodies produce a chemical that breaks it down, flushes it out, whatever. Considering how many people get it I would think scientists have had ample opportunity to study the make-up of what is encapsulating the joint and what changes when it loosens.

      I never had a cortisone shot . I believe the orthopedist said I was too young and as you can only have so many before it causes harm it's best not to use it unless there is no other option.

    • Posted

      Hi Beverly, I have two frozen shoulders, one 11 months in and one 7 weeks in.  The older one has reduced pain and somewhat improved ROM.  This newer one is even more painful and the pain radiates down my arm.  It's a bummer to have them at the same time.  I've decided to manage the pain the best I can and wait them both out  What a horrible disease!

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