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BPH: bladder stones removed, 1 yr later more stones, need help...

Posted , 9 users are following.

phil25323
phil25323

I had a large bladder stone removed last year, since been on Rapaflo and Cialis. Several weeks ago I had blood in my urine. CT scan showed several small stones. Having to wake up 3-4 times/night and many times per day without completely emptying my bladder. 

First uro wants to remove the stones and do a Button Turp. 

Second  uro said the first uro did not remove all the stones because it takes longer than one year for new stones to grow (is that true?). He wants to remove all the stones and then discuss all the procedures available to decrease my large prostate. 

A third uro said the second uro wants to do 2 procedures for more money. Also recommended HoLep. 

I am confused and appreciate recommendations. 

0 likes, 20 replies

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  • hank1953
    hank1953 phil25323

    Posted

    Bladder stones can form in weeks or months. Do you have urinary retention? It can cause bladder stones. Hank
    • phil25323
      phil25323 hank1953

      Posted

      Yes, I do have urinary retention. Unable to completely empty the bladder. Many times I need to urinate ten minutes later. 
    • phil25323
      phil25323 hank1953

      Posted

      Which Dr would you trust the most?

      The 2nd uro said the first uro didn’t remove all the stones. If he had I wouldn’t have stones a year later. You said bladder stones can develop in one  year, or less. Also the 2nd uro wants to do two procedures: first to remove the bladder stones and then decide which procedure to perform? The 2nd uro said he can do any procedure currently available?  Than you. 

    • hank1953
      hank1953 phil25323

      Posted

      Phil, There is not enough evidence to trust either Doctor, even though the second Doctor is misinformed. It's your body, collect information and make decisions. 

      Now, you know to have retention. You should check to see how much. Your doctor can help by ordering a bladder scan. If it is substantial, you can do one of the following:

      1. Ask for an alpha blocker (tamsulosin, rapaflo, Doxazosin, alfuzosin, etc).

      2. Learn how to self cath.

      3. Get a surgery.

      The best approach would be either 1 or 2. They can be used for a long time, or at least to buy you time to study on different choices for option 3. Take your time, but you need to do something soon before you have it worse. Good luck. Hank

    • hank1953
      hank1953 phil25323

      Posted

      Just for your information, I am currently on 4mg Doxazosin and I am practically free of all symptoms, which at one time was worse than what you have now. Even though my retention has gone down significantly, I still self cath once before bed time. The main reason ? Bladder stones. Just to make sure that my bladder is empty periodically because at the end of my cath, I still see some white sediments. Maybe I am paranoid, but I am afraid that those sediments left undrain, may turn into bladder stones. Hank
    • phil25323
      phil25323 hank1953

      Posted

      I’m on Rapaflo and Cialis and retention is significant. 

      At this time I’m considering  Holep or 

      Button Turp. 

  • rogcal
    rogcal phil25323

    Posted

    I was plagued by bladder stone formation over a 3 year period and all down to retention caused by BPH. After the last lot of stones were removed I had a HoLEP.

    Three years later life is great.  No BPH symptoms whatsoever.  OK I get retrograde ejaculations but a small price to pay for getting rid of all the discomfort and life destroying symptoms that go with retention, frequency, nocturia and constant UTIs.  Oh and I'm still peeing like a 19 year old.

    • phil25323
      phil25323 rogcal

      Posted

      That’s good to hear.  Does Button Turp have less potential post op complications? I’m concerned about the long recovery after HoLep. 
    • phil25323
      phil25323 rogcal

      Posted

      Is it usual, customary and appropriate  for a uro to NOT do a procedure but first add an alpha blocker for a patient who had first time bladder stones?

      Thank you

  • tjcal
    tjcal phil25323

    Posted

    Sorry to hear your situation. I had multiple bladder stones removed and urolift done just about a year ago. I was having blood in urine. That led to lots of tests and finally treatment. So far so good a year later. Just had ultrasound check and so far no new stones. I was having moderate BPH symptoms. Urolift helped me a lot. I know it doesn’t work for everyone though. All the best. 

    Tom

    • phil25323
      phil25323 tjcal

      Posted

      My prostate is too large for Urolift. 
  • stebrunner
    stebrunner phil25323

    Posted

    Hi, Phil,

    I had bladder stones removed about a year ago, and my prostate has a large median lobe that's pressing into the base of my bladder. My local uro kept telling me that I could have complications, such as excessive bleeding, during the stone removal. And if that happened, he said he'd do an emergency TURP. I wasn't comfortable with that so I kept researching online and ended up going out of state to the Kidney Stone Center, which is part of the University of Washington Medical Center in Seattle. Really glad I went that route, as they were able to remove the stones without complications.

    Retaining urine can cause bladder stones. Not sure how long it takes to create a stone, but it's important to empty your bladder. It's important to me to maintain my sexual function so to treat my BPH I opted to go with PAE. It didn't reduce my prostate's median lobe, but it may have helped with my stone removal. Currently, I self catheterize (CIC) 4 to 6 times a day to make sure my bladder is empty, and I plan to continue with CIC until I find a BPH surgery/treatment I can live with.

    My current uro isn't thrilled with my decision to continue with CIC--he'd rather do a TURP--but his staff and Jimjames on this forum helped me learn how to CIC.

    Stebrunner

  • changejobs
    changejobs phil25323

    Posted

    sorry to sound dumb, but how does one know if they have bladder stones and if they have them, if they are growing. thank you.
  • tjcal
    tjcal phil25323

    Posted

    I had blood in urine. That’s one of the symptoms. Then Ct, and ultrasound to see them indirectly and then finally cystoscopy to visualize. Then I was scheduled to have them out. 

    Tom

    • phil25323
      phil25323 tjcal

      Posted

      Which procedure was used to remove the bladder stones?

      How are you now?

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