BPH Dutasteride Recovery Inconsistent

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Hi Everyone,

Im 36 years old and have been diagnosed with BPH. my symptoms started about a week after a vasectomy. The urgency and incontinence were unbearable for about 2 months. long story short, I finally found a Dr who discovered I have an enlarged prostate. (Because of my age other doctors didnt think to look for it.

Anyway, Ive been on Dutasteride for 2 months and my symptoms have been doing better. i actually went 2-3 weeks where i felt "normal"! having said that, things have taken a couple steps back for the past week. have any of you experienced this- an inconsistent recovery? Thank you!

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  • Posted

    Please seek a second opinion from a urologist. I am struggling to believe that you have BPH at 36. You most likely have chronic pelvic pain syndrome. I can't believe you been put onto such a strong medication.

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    • Posted

      Thanks for your thoughts. This actually is my 2nd opinion. i was on a plethora of antibiotics over the summer from my first urologist. i havent had any pain at all, just urgency and incontinence. New urologist dis a sonogram and found the enlarged prostate.

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    • Posted

      Have you had a cystoscopy to look at your prostate directly? did your previous urologist not check your prostate at all? im 33 but I wonder if my urologist may have missed if I have a large prostate. he said it was small when he felt it and both my scopes by two different urologists said it was small too.

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    • Posted

      cialis helps me with symptoms also I started taking CBD oil which also helps. last year I dropped 10 lbs and that also helped in many ways. nutrition will be important going forward.

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    • Posted

      Yeah Ive had a bit of everything. Cysto, urodynamics (which is awful), cultures and blood. My first doctor only did a cysto and had me on Bactrim for 6 weeks (it did nothing). Ive been told that while rare, Im just at the age where BPH can happen. The strange thing is that it happened after a vasectomy. literally over the course of a week i went from normal to not being able to sit down. Latest Dr said that I may have had an enlarged prostate and the surgery irritated something.

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    • Posted

      Hmm. Yet your urodynamics test didnt show a blockage, and your cycstoscopy didnt show your prostate was enlarged? I would just be a bit skeptical if I am honest. If your prostate is enlarged it should cause your flow to slow down, unable to fully empty your bladder. I'd recommend that you look into post vasectomy pain syndrome as it sounds like the nerves have been annoyed or damaged. Your first uro would have spotted it with the scope and straight away wanted to prescribe you something or do surgery.

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    • Posted

      They both showed an obstruction? So your urologist saw you had an enlarged prostate with the scope but did nothing? Maybe you were right to get a second opinion then. Could you try flomax?

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    • Posted

      Tried Flomax. Im now on Alfusozin and Myrabetriq as well. First doctor flew through the cysto. he was done in about a minute. He never checked for an enlarged prostate.

      Second doctor is the director of the program at Weill-Cornell. knows his stuff. Its a weird sequence if events. While i trust him, I often wonder if the actual problem has been solved yet.

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    • Posted

      It's strange because he would not have a choice but to look at the prostate. Even if he rushed through it he would have seen the prostate directly along with the bladder neck. You cannot miss the prostate with the scope. I find it more concerning that your current urologist has not requested a second scope to see how severe the obstruction is and to get a direct look at it. Dut is a very potent medication and I think most urologists would prefer you to try rezum or the Urolift procedure before touching DUT. I think you might need to get another opinion. DUT can take 6 months to work and sometimes has no benefits.

      The prostate is a urologists bread and butter so for the first to say its ok when it isnt does not really make much sense.

      Just watch a youtube video of a scope looking at an enlarged prostate and you will see where I an coming from.

      Did the current urologist say its grown into your bladder?

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  • Posted

    in my experience with enlarged prostate you have some days better then other. probably has to do with eating habits. stress. Dutasteride does take up to 6 months to notice a real improvement.

    I am 57 and have been taking it for about 5 years and it has helped but not a total cure.

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    • Posted

      Thanks. yes, Due to the holidays, my diet has been crap and it got worse going back to work following vacation, which might be stress. Im curious, have you looked into surgical options?

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    • Posted

      I've been on dutasteride for 17 months. I regularly monitor my urinations and the results are inconsistent, but overall much better than prior to starting dutasteride (I have baseline readings of urinations for at least a year prior to starting dutasteride; my average urination now is about 40 or so mL more than prior to starting dutasteride). But the inconsistency is not necessarily due to the dutasteride but most likely other factors. Overall, I've seen significant improvement.

      How large is your prostate? 5 ARI drugs like dutasteride and finasteride are usually only prescribed if your prostate is significantly larger than normal. I don't know the exact minimum but it is probably around 50 grams or so (+-10 grams). If someone knows, please feel free to correct me.

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