brain fog

Oh LouLou ...... we all understand It's so very hard isn't it .... we are all trying to be NORMAL but the harder we try it seems the more difficult it is :?

The most simple things these days are turning out to be a monumental task

I met up with my recently formed ME group this morning - just for a chat in a local coffee bar ...... but after only an hour you could see us all visibly wilting ..... :roll:

As the cafe was attached to a supermarket, I was determined to do some food shopping following the meeting ....... but after a few minutes I felt just soooo unwell .... my legs felt like jelly and my eyes were blurring .. I just knew I had to get home as soon as possible :cdouble:

Spent the whole afternoon asleep in bed :zzz:

What a life ..... hey :roll:

At least we can all understand EXACTLY how each of us feels :wah:

'Cos it's hopeless trying to explain it to anyone else :roll:

Take care :hug:

Oh Lou, have a huggle you poor dear. I would have lost it big time, sitting in that hospital corridor. What a nice man to give you a lift on his buggy thing.

Katie, our supermarket has wheelchairs and an elecric scooter thing, does yours? I have used one on very rare occasions but I feel as though all eyes are on me. they aren't of course, people are far to immersed in their own shopping to wonder what I am doing. :roll:

Yes, they do Alicia .... but I was only going to whizz in for a few things .... or so I thought :roll:

It's the lighting that get's to me .... though I did have my tinted sunglasses on :bigeyes:

oh a big hug to all of us i think :hug:

i'd had a reasonably good couple of weeks so kate and i planned to go out with some friends for hallowe'en at a local pub. of course, the last few days i have started to get all those relapse feelings - extremely cold, :blue: , fluey, dead tiredness in the night etc etc

so of course last night was just one huge struggle. i managed to come out for a few hours but i knew i was pushing it the whole time. couldnt drink as had to drive, and am now dealing with the fall out :roll: think its going to be a few days in bed for me...

lou lou, i sympathise about the brain fog i honestly think its mental exertion that has really done for me this time. i started doing short german lessons on line, only about 15 mins each, but after a few days there just started exhausting me. :cry:

am fed up. being out is almost worse than staying in. all my friends were drinking and dancing last night, and i had to sit on the sofa most of the time. :wah: :wah:

feel like this just dragging on and on and on and on....

Trees x

Trees needs a huggle too :cuddle:

I think it's time we all had a big, but gentle group hug. :cuddle: :hug:

aw, that's a bit better

Trees x

Oh it's so unfair for all you youngsters :evil:

You should be having the time of your life right now

But remember, I had ME in my early thirties and recovered completely ..... so hang on in there. I would have probably recovered even sooner if I had known about pacing :?

Katie xx :hug:

PS - and if I hadn't tried to be Superwoman, probably wouldn't have had a relapse either :roll:

Group hug :hug:

Katie, the way wou worded that makes it look like you are, shall i say, getting on but we are all young at heart and still do things as if we were a child............. or something like that anyway............. :run:

I wish I could have by old life better, even for a couple of days. I would go out for new clothes in normal shops instead of asda or tesco's while doing food shopping. I would have a saturday night out with the girls, having a drink and a dance. I feel it more on a weekend but at least I have you lot here to cheer me up.

Thanks for that James :evil:

Well let's just say I am old enough to be your Mother :roll:

Suppose I should be setting a better example really :?

But hey ...... that's too boring for words :nahnah: :silly: :wow:

And anyway, everyone needs cheering up :ok:

On a more serious note - no, listen, you don't know what I'm going to say :roll:

On a more serious note, my psychologist at the ME clinic told me, when I said I wanted my old life back, that it was my old life that made me ill in the first place and it would do me no good to have it back. what I needed to work towards was a new life based on what I had learned, that did not have all the negative factors to make me ill.

I am trying and sometimes it is working, but the old habits and ways of thinking are very difficult to break. I had an appointment for follow up recently but had to put it on hold because I did not feel physically or mentally well enough to deal with the fall out from it.

I am going to put these thoughts into a thread of their own so we can explore them. they will get lost in here and they don't really belong.

katie - i find it really encouraging that you did recover completely the first time. im just so sad for you that it came back

alicia - i know that what you're saying makes sense, but i cant help feeling like lou lou a lot of the time. i just want my old life back! :cry: im worried that by the time i get better ill be too old to go clubbing and do all the things i liked so much! i'm also really worried that any chance of a career is slipping away too....

sometimes i think im really getting on top of this psychologically and other times it just hits me all over again. like i said before, going out can be even worse than staying in. being in the pub the other day just made me think of what 'old trees' would be doing. and i miss her.

Trees x

It's hard trying to put your life behind you, especially when friends and family keep saying when the fun loving, side of me is coming back. :cry: I don't they realise at times how much that hurts.

i know... sometimes kate says she missed 'the old treesa' and that hurts so much

i feel that when friends come to visit me they're just doing it out of duty and are really bored cos i cant do much. :cry:

Trees x