brain fog

Yes, people sort of give up on us after a while :wah:

It's just impossible for a non-sufferer to understand how we feel, because we don't LOOK any different (well most of the time anyway :roll: )

Just go around feeling like a wet weekend :erm:

And when folk ask how I am I just say 'Oh, I'm fine!' ..... cos they really don't want to hear otherwise :roll:

Now if we had a big bandage on our heads and a pair of crutches .... that would be another matter :evil:

But we won't let this get us guys ..... we will beat it in the end :evil:

My husband and parents all know when I'm not so good or I've overdone things I lose all my colour. In fact they have nicked name me as casper.

At least they notice Lou, that's something.

Yea, think it's time I laid off the makeup :roll:

But a tiny bit of lippy and blusher actually makes me feel a bit better ......

Without it my face just disappears

I should put my makeup on more often. It does make you feel better. Thats why I make the effort to keep my hair nice and keep getting by hair died. It takes me all my time to get washed and dressed most mornings.

Lou, you do very well to get washed and dressed. I must confess I can not always face standing in the shower and as for a bath - well James is always watching. :roll:

Seriously girls, I really sometimes cannot face the palaver of morning ablutions and have a packet of babywipes in my bedroom for delicate bits. :wink:

i also go grey when im having a bad day :hangover:

i definitely agree that if you can get washed and dressed it makes you feel better. even if i end up lying on my bed for the rest of the day, if im showered and dressed i feel like ive at least done something.

and the other day i had to go the benefits office, and they always make me feel so bad i decided to dress up. put a skirt and boots on and did my make up. sounds a bit weird, but it actually made me feel a bit better. even though i felt like c*** i looked great! :lol:

Trees x

Is it a good idea to look too good when you are trying to convince the authorities you are anything but? :roll:

Yea, I was wondering about that one Trees

Think I might turn up in my dressing gown and curlers :?

One of our regulars has ME and she is always immaculate on the few times she comes into town. Says it makes her look better even if she is feeling bad.

It shows in my eyes when i am not well apparently :cry:

Dale xxx

I think it's also because so many of us are perfectionists ......

However poorly I feel, I just have to make myself look reasonable ...... which is probably a bit daft really. But when I meet up with my ME group everyone is very smart and well turned out ...... although many are actually feeling really rough

Yes, my eyes are a giveaway too Dale, they get blurry and heavy .... and look as if someone has poked me in each eye :bruised:

Anyone else got bad fibro. pain at the moment? This damp weather is playing havoc with mine

oh sorry to hear about the fybro katie ive not really any body pains, just this horrible persisting headache :x

as for dressing up for the benefits office :diva: - im only trying to get housing benefit and council tax benefit from them. ive got my sick notes from the doctor so they cant really argue with that, plus you never see the officer who's dealing with your claim anyway (they're in brixton, but you cant see them even if you go there. dont you just love this centralised system?) even if you phone your call is diverted to a switchboard in the midlands :evil: :evil:

of course if the DLA people come round itll be another story. in fact, i think i wont wash my hair for a week and greet them on hands and knees in my dressing gown! :hangover:

actually they wrote to me and said they would be writing to my doctor. i REALLY hope she backs me up :? going to see her next week so hopefully can go and look woeful before she responds to them. might bang on about my dire financial situation too, :2cents: which wouldn't be a lie. can you believe ive STILL not heard about my benefit? :x

i think its outrageous that you have to go through this palaver if you're claiming because you're too sick to work. i really think they should at least send someone round, or give you a designated official to help you. its scandalous that you have to go to a charity like CAB

in fact, when i went to my bank with all the information to talk to them about the interest on my overdraft they said they couldnt do anything directly, but if i spoke to CAB they could appeal to the bank on my behalf. how completely, utterly beauracratically crazy is that? i feel like the world is completely mad sometimes :shock:

sorry to go on. this should be in the moan thread really shouldnt it?

:roll:

Trees x

No that's fine Trees .... we can all have a moan wherever and whenever we feel like it :ok:

I'm so sorry you are having such a battle with benefits :evil: That's absolutely the last thing you need ...... it's draining you completely, I would imagine

I agree with you ..... in an ideal world there really should be someone on hand to help and guide with the ever-increasingly complicated red tape. With our foggy brains, filling in forms is a particularly mind-boggling and lengthy process which leaves us totally drained :zzz:

Good luck with your GP next week and hope she continues to provide good support and understanding.

Katie :hug:

Yes Katie I am having trouble with my aches and pains especially by head and neck. The strange thing is I am starting to have alot of pain in my left hip/ bum area. I think it is abit of cyatica.(will check on the spelling and get back to you all.

just checked by spelling was trying to say sciatice