Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP
Posted , 353 users are following.
Hi everyone!
I don't know where else to go, and was hoping someone could please help me. I'll start off by saying I'm a 23 year old Caucasian female. Going on 5 months now, I have had absolutely debilitating symptoms which have hindered my daily life. I feel these symptoms every moment of every day.
It started with dizziness and a persistent brain fog. I just thought I had a bug, and tried to go on about my life. However, my symptoms have never gone away. This "brain fog" I am talking about is a feeling of complete mental confusion, I have no memory, I cannot concentrate on anything, it feels like there's a dark blanket on my brain clouding all my thoughts. I have extreme disorientation and haziness. I feel like I'm always in a dream like state.
I am constantly dizzy and feel a pulling sensation, as if I'm ready to fall over at any moment. It feels like there's air inside my head, and I'm always very lightheaded. Whenever I try to drive I feel this pulling sensation pulling me down.
Another problem I have is with my vision. I am having very blurred vision and have double vision. Everytime I look at something up close it is extremely blurry and I cannot see at all. My perception on things has completely changed. I feel like everything looks very odd and strange and I don't have the right depth perception. It's like I'm in a horrible dream like state all the time.
I have been having headaches and head pressure as well, and having horrible pains behind my eyes. The pin starts from the back of my head close to my neck and continues up my head and the sides of my temples. My eyes hurt so bad, and it feels like knives are jabbing my eyes. My head also feels extremely heavy all the time.
All these symptoms have been causing me severe anxiety, and I have been having panic attacks from them and feel like I'm dying. It is causing a strange disrespity sensation, where I feel like I'm not even here anymore and there's a detachment from myself and my body. I have had to drop all my classes at college and quit my job because these symptoms make me lay in bed all day long. I have been unable to drive for months and can barely get up to walk around. If anyone could please help me or know anything as a suggestion to try.
I have been to my general doctor, 2 ENTs, 1 neurologist, have had 2 MRIs, a hearing test, VNG, multiple blood tests, and no one knows what is wrong. I can't live like this anymore. Any help is greatly appreciated.
-Elise
14 likes, 1771 replies
ddc142 Elise93
Posted
I have been following forums like this for over 1 year now dealing with similar issues. The worst part is that no one ever has real solutions. I have found anomalies where individuals have found that wisdom teeth or malnutrition causing similar symptoms, but in general, no anxiety medicine, physical therapy, or any other treatments seem to help with these balance issues. I will tell my story and hopefully it can help others.
I was a VERY healthy 34 year old male running about 30 miles a week and lifting weights a few times a week. I first noticed eye issues about 1 month after my mother passed away and at the same time I found out my wife was pregnant. At this point I went to the doctor and anxiety immediately became the expected cause and the doctors didnt really take any followups seriously, though they did order EVERY imaging and blood tests available (included multiple MRIs of brain and spinal cord and inner ear, and blood tests for MG, multiple trips to Neuro, Neuro-Opthamologist, ENT, and GP). The symptoms seem to be related to my cranial nerves, most importantly my vestibular system. There was also swallow issues and occipital headaches (short sharp pains in the back of my head). The vestibular (balance) issues caused many other issues including anxiety, sore legs from overcompensating and sore neck muscles all the way to behind my ears (this is probably the "brain fog" people refer to). It also felt like neurological symptoms which I now believe are related to balance. When your brain is working hard to compensate for poor balance, all other tasks get much harder. Imagine how slow your phone gets if you leave a large app running in the background. It got very bad and nothing worked including therapy, which is known to be very productive for dealing with anxiety.
The solution for me was an upper cervical chiropractor. BUYER BEWARE: These people have VERY poor business practices and very large egos without following through with proper scientific research. I personally believe that the issues are actually associated with pressure on the spinal cord that can not be seen on an MRI because it only occurs through certain motions (I have found very specific triggers to my symptoms). By making an adjustment on the C1 Vertebrae, they pull this pressure off the spinal cord. They claim that this can heal many different ailments and I believe it can only cure THIS ailment (which can cause a wide variety of issues, i.e. high blood pressure from the stress of these symptoms). The cost is expensive (as high as $2k) and they give you some crazy rehab schedule (twice a week for 2-3 months which has no scientific validity). They are not covered by any insurance. The thing that counts though is that it works, for many people, not just me (read the testimonials of these chiropractors and you will find stories similar to yours). There is a website (upcspinedotcom) that has a very real story of one of the worst cases, not associated with any particular business. The adjustment is not a cracking motion but instead they lay you down in a way that your head and shoulder support your weight and gently push behind your ear at a certain angle to use your own weight to move the C1 vertebrae. They do pre- and post-xrays to see if the adjustment occured (which I am not sure how accurate that is) I have only had one adjustment so far (my first follow up is today) but the last two weeks I have slowly had very vast improvements in almost all my issues. I don't believe this is an immediate cure (despite some anecdotal evidence) , there will be 4-6 weeks of healing, and you may still have some bad days during that process, but no day in my first two weeks was unmanagable like the days I have experienced over the past year. I hope to be back at 30 miles a week very soon and winning races.
While I remain very skeptical and dispassionate towards the practitioners of this field, it likely can help most of the people on this forum. I hope they find a way to do proper research so that someday soon insurance can cover this type of treatment.
Lnodes ddc142
Posted
ddc142 Lnodes
Posted
I also did the chiro thing. I only experienced extra aches and pains rather than any relief. Now that I've been feeling better, I can look at things a little more objectively and feel like this is all related to migraines, likely caused by stress and anxiety. That doesn't mean that the upper cervical chiro doesn't work as I have still been seeing improvements. My functionality on a daily basis at work and home is basically back to 100%, but my exercise still suffers a bit. I have more good workouts in a week then I have over the past year, so even that is getting better. I suggest that anyone who doesn't have the money needed for an upper cervical chiro, should at least be in therapy (probably CBT therapy which is known to have great results for anxiety and is not open ended so you do a few week program and expect results and redo the program again to improve on the result). Insurance usually covers therapy and probably the most important thing to deal with this horrible condition is to find a way to be proactive about the situation. The people on this forum who see results from depriving themselves of all things good in the world clearly have a psychological block about enjoying themselves and feeling good. This more than any doctors makes me believe that all this is rooted in anxiety.
Lnodes ddc142
Posted
To be completely honest with you, I feel almost no anxiety at this point. I still feel symptoms but I've gotten used to them as it has been over a year. I think anxiety is simply a natural response to an unfamiliar pain/symptom. For most "normal" people the anxiety will subside but the symptoms remain so I believe there's a physical component to this condition and not so much psychological. The psychological symptoms (fear of death, anxiety, panic attacks, etc) are all secondary to whatever is going on. Nobody knows for sure, not even doctors, which is what really triggered the anxiety for me at first. I'm glad i found this forum full of people experiencing the same symptoms. Hopefully someone finds a solution that can help everyone.
ddc142 Lnodes
Posted
I also have trouble believing it is anxiety, which is why it is only one avenue I am pursuing to get better. I also have been better at not freaking out at the symptoms, though when the balance issues get bad, it feels like crossing the street is the most difficult task in the world.
Just to try to justify the thinking. When anxiety causes physical symptoms it is often INSTEAD of feelings of anxiety. The idea is that, something happens in your life (it can be as simple as turning your head in a certain way, or walking by something you walk by everyday) and without your brain consciously thinking about it, the symptoms occur. Your mind goes through an automated thought process that you are not really aware of and so therapy (particularly cbt) can help you identify that thought process and change it. Even if this is all caused by migraines, stress is a common factor among people who suffer migraines and so dealing with life stressors in some way is likely to help with migraines (no one can offer a better cure anyway). My life revolves around hard sciences, so even with my wife being a psychologist (who also had (has) trouble believing all my symptoms were anxiety related) it took me a long time to get on board with it. The thing is, that if I need to deal with these symptoms, I should try to improve on the factors of my life I CAN control, and so therapy has a chance to do this. This can be as simple as buying a book to perform cbt on your own, which has seen benefits similar to working with a therapist, depending on the person.
When I was at my worst, I had no hope, and so now that I am doing much better, I want to get on these forums and offer hope where I found none. You don't have to believe anything I say, but if you are already able to avoid panic about these symptoms, you likely are already getting better.
vanessa24559 ddc142
Posted
paula10555 ddc142
Posted
Terry6872737 ddc142
Posted
I think that from the anxiety standpoint it is as you say "if I need to deal with these symptoms, I should try to improve on the factors of my life I CAN control". No doubt that anxiety contributes to the symptoms and heightens their pressence, in my opinion. I do not believe it creates them (symptoms), it simply prevents us from being able to effectively deal with them. It is a normal reaction of the body's nervous system. That being said, anxiety in my mind does not cause any of the symptoms people relate on here but, it impacts your ability to effectively deal with them on an ongoing basis. In addition, there are thousands of conditions that cause dizziness and balance issues. Just because they do not show up on a medical test doesn't indicate that they cannot exist.
The issue that most have in accepting the anxiety diagnosis is that symptoms still exist. Even those that are successfully medicated for treatment indicate that the symptoms are still there they just don't pay any attention to them anymore. Time also becomes a compnent in diminishing the intensity of the symptoms. So, it is hard to say whether time initiated the recovery or whether CBT did. Damage to the vestbular system cannot be seen and even when effectively measured there is no way to tell how much it affects one person versus another even at the same levels of damage.
Just my two cents worth after dealing with this for almost 4 years and being at 90% recovered. Days that I struggle with symptoms the anxiety still ramps up because my brain tells my body that it is not in control.
ddc142 vanessa24559
Posted
I live in US, in los angeles area. There are two or three in LA, one in pasadena and one that i've found in the inland empire. look up the so called "blaire technique" (spelling?) or "nucca" technique. These keywords will help you find the providers. They are NOT like other chiropractors. You can see their maneuver on youtube. I am still not convinced they actually do anything, but since my symptoms have been subsiding, I continue to go to them. It should be mentioned, that care is not opened ended, they will put you on an eight week rigorous routine and assuming all goes well, you will only check in a few times a year or less to make sure your properly aligned.
ddc142 Terry6872737
Posted
Terry6872737 ddc142
Posted
I agree wholeheartedly. A lot of the symptoms are extremely similar to migraine issues but, as you say migraine is simply a diagnosis of last resort just in and of itself as well. My wife has headaches and a neurologist told her to take prescribed Topomax and if it helped that meant it was migraine related. Go figure.
Everything is so inter-related with the vestibular system, the eyes, nerves, muscles, brain. I know that I can feel a twinge in a neck muscle and it feels like one of the symptoms when this first began and it causes a momentary flash of fear that it is back full force. Massage therapy and needling have helped me with some relief. I, like everyone else, just want to get back to 100%.
I commend your open mindedness in looking at all aspects and your suggestion to consider it, anxiety, as a contributing factor. Others have been on here and emphatically stated that it was the sole cause. We are all here trying to help each other and hopefully someone can say or find something that may help others. That's why those of us that have seen progress need to continue to share our story and successes.
Terry6872737
Posted
It all plays a part in being able to deal with the symptoms.
ddc142 Terry6872737
Posted
I will see if I can get my ferritin levels checked.
Remember that NSAIDs cause intestinal bleeding so if you were taking a lot of Ibruprofen, it could've contributed. I would like to encourage everyone who has the money to try an upper cervical chiropractor. The fact that so many people have seen complete relief is somewhat startling. I still get p****d every time I shell out cash, but I can't deny the difference in all my symptoms since I started.
I first saw improvements from massage, but on the third or fourth massage, something happened that made everything come back in full force. Its another reason that this upper cervical story makes sense. The masseuse was inadvertently aligning things or relieving tension. I feel like a crazy person talking about this stuff because my life is so strongly rooted in science, but results are results.
skyler92071 Elise93
Posted
Hello Elise! I'm hoping and praying your still active on this site! I've had these SAME exact issues! It's like I typed this up myself. Everyone thinks I'm crazy! No one understands. It's so extremely depressing especially being so young and thinking you will have to live your whole life this way because no one knows what's wrong. I see it has been 11 months since you've posted so maybe you have figured out what is going on or gotten better!
jeremy04366 skyler92071
Posted