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Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP

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Elise93
Elise93

Hi everyone!

I don't know where else to go, and was hoping someone could please help me. I'll start off by saying I'm a 23 year old Caucasian female. Going on 5 months now, I have had absolutely debilitating symptoms which have hindered my daily life. I feel these symptoms every moment of every day.

It started with dizziness and a persistent brain fog. I just thought I had a bug, and tried to go on about my life. However, my symptoms have never gone away. This "brain fog" I am talking about is a feeling of complete mental confusion, I have no memory, I cannot concentrate on anything, it feels like there's a dark blanket on my brain clouding all my thoughts. I have extreme disorientation and haziness. I feel like I'm always in a dream like state.

I am constantly dizzy and feel a pulling sensation, as if I'm ready to fall over at any moment. It feels like there's air inside my head, and I'm always very lightheaded. Whenever I try to drive I feel this pulling sensation pulling me down.

Another problem I have is with my vision. I am having very blurred vision and have double vision. Everytime I look at something up close it is extremely blurry and I cannot see at all. My perception on things has completely changed. I feel like everything looks very odd and strange and I don't have the right depth perception. It's like I'm in a horrible dream like state all the time.

I have been having headaches and head pressure as well, and having horrible pains behind my eyes. The pin starts from the back of my head close to my neck and continues up my head and the sides of my temples. My eyes hurt so bad, and it feels like knives are jabbing my eyes. My head also feels extremely heavy all the time.

All these symptoms have been causing me severe anxiety, and I have been having panic attacks from them and feel like I'm dying. It is causing a strange disrespity sensation, where I feel like I'm not even here anymore and there's a detachment from myself and my body. I have had to drop all my classes at college and quit my job because these symptoms make me lay in bed all day long. I have been unable to drive for months and can barely get up to walk around. If anyone could please help me or know anything as a suggestion to try.

I have been to my general doctor, 2 ENTs, 1 neurologist, have had 2 MRIs, a hearing test, VNG, multiple blood tests, and no one knows what is wrong. I can't live like this anymore. Any help is greatly appreciated.

-Elise

14 likes, 1771 replies

1771 Replies

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  • CTh
    CTh Elise93

    Posted

    Hi everyone, please also check on "Myelin". I think this might have something to do with our problems .. and I found this: 

    Your myelin, the insulation of your brain’s wiring, keeps your brain cells from grabbing other brain cells’ signals and getting confused. Good myelin helps you focus, serve a tennis ball, finish your expense reports, and so much more.

    What is myelin?

    Myelin is a white-colored sheath made of mostly fat and cholesterol that wraps around a nerve cell. Myelin’s main function is to insulate the neuron, protect the axon, and direct the nerve’s impulse where it’s supposed to go.

    Myelin decreases naturally with age,partially because age limits the action of oligodendrocytes, the myelin-producing cells. Oligodendrocytes split into cells that produce myelin only until you’re in your late fifties.

    Even without the age factor, oligodendrocytes are the most vulnerable nervous system cells you have.

    Some of the things that can mess with myelin production include:

    A high sugar diet

    Poor sleep quality

    Alcohol

    Nutrient deficiencies

    Hormonal imbalances

    And can naturally improved with: exercise, good sleep, iodine, iron, vitamin d, healthy lipids. vitamin C etc. 

    I can find more if you are interested... 

     

    • vanessa24559
      vanessa24559 CTh

      Posted

      Interesting.. I’ll definitely read into it. Thank you for taking your time to post this.
    • terrie27149
      terrie27149 CTh

      Posted

      Wow, thank u..I'm Goin to research this too. I saved your info..

  • megan00484
    megan00484 Elise93

    Posted

    Hey! I am literally having the EXACT same symptoms to a T. I too, have anxiety but i know that’s not what is causing this. But sometimes my dizziness and headaches are so bad it sends me into a full blown panic attack because i feel so awful! Have you figured out anything that has worked for you? My primary care doctor has chalked it up to my sinuses and having sinus headaches but i really don’t believe that’s it. I’m at a loss of what to do or where to go right now and I’ve pretty much been living off excedrin migraine because that’s the only thing that provides me any sort of relief. Please let me know!!!

    • jessica_46966
      jessica_46966 megan00484

      Posted

      Hey Megan

      When did you first notice your symptoms? Had you been ill with a sinus infection? Had you been given antibiotics? The only reason I ask is that a few of us on here got these symptoms from taking antibiotics. it's not uncommon and many times the symptoms can take weeks to months to manifest. I know that sounds mad but it's because they do so much damage that it usually takes time to show itself completely.

      Thanks

      Jess

    • Elise93
      Elise93 megan00484

      Posted

      Hi Megan!! I’m so sorry you’re dealing with this too sad How Long has it been going on for? It’s been constant for a year and a half for me, and so many doctors have different things to say, it’s so frustrating I’m so lost. 

      I do suggest see a neuro-otologist (neuro ent), seeing a chiropractor that’s very good that can help with any possible vertebrae atlas issues, and an eye doctor preferably an opthamologist or neuro-opthamologist. It’s so difficult to deal with sad 

    • Elise93
      Elise93 megan00484

      Posted

      Oh and I know EXACTLY what you mean with anxiety!!!! My anxiety is out of control, but it’s BECAUSE I’ve been sick for so long. So many doctors have said “oh it’s just anxiety, take a bath and relax”. I’ve learned to not even mention the anxiety part because doctors say that’s the cause to shoo you out. 

      I have legitimate full blown panic attacks where I feel like I’m dying now. The anxiety definitely makes every symptom so much worse. It’s just frustrating because I never had anxiety until I was sick for a long time and didn’t but know what was wrong with me, and still don’t 

  • deirdra
    deirdra Elise93

    Posted

    I know how your feeling. I have been feeling that way for some time now. I can tell you not to take the meklazine it only makes the symptoms worse. I hate feeling like this as it scares me but trying to tell someone how you feel but make you feel stupid. Im not one to go to the doctor and I will wait till Absolutely have to go so i dont bother cause they wont do anything. The last time felt like this they said ut was dizzness and muscle spasms.
    • Elise93
      Elise93 deirdra

      Posted

      I took meclazine around October 2016 and it didn’t do anything for me. I haven’t taken it since. It’s so hard when doctors won’t listen to you at all and no one really believes how serious and debilitating these symptoms are. I am so lost as what to do now sad 
    • Elise93
      Elise93 deirdra

      Posted

      I took meclazine around October 2016 and it didn’t do anything for me. I haven’t taken it since. It’s so hard when doctors won’t listen to you at all and no one really believes how serious and debilitating these symptoms are. I am so lost as what to do now sad 
    • Elise93
      Elise93 deirdra

      Posted

      I took meclazine around October 2016 and it didn’t do anything for me. I haven’t taken it since. It’s so hard when doctors won’t listen to you at all and no one really believes how serious and debilitating these symptoms are. I am so lost as what to do now sad 
    • Elise93
      Elise93 deirdra

      Posted

      I took meclazine around October 2016 and it didn’t do anything for me. I haven’t taken it since. It’s so hard when doctors won’t listen to you at all and no one really believes how serious and debilitating these symptoms are. I am so lost as what to do now sad 
    • Elise93
      Elise93 deirdra

      Posted

      I took meclazine around October 2016 and it didn’t do anything for me. I haven’t taken it since. It’s so hard when doctors won’t listen to you at all and no one really believes how serious and debilitating these symptoms are. I am so lost as what to do now sad 
  • Guest
    Guest Elise93

    Posted

    Hi Elise

    I have pretty much all these symptoms. Mine also include constantly blinking eyes when I am talking with someone, driving and when there are many people around me. I always feel tired and yawning all the time I feel like I want to be in bed 24/7. I used to run 4 miles in one go. I remember having slightly lihhtheadness or dizziness but I always managed to complete my laps. Now I start blinking and feel extremely tired and unbalanced. Then I start to think that I'm gonna pass out. My style of life has been deteriorating. I am always grumpy. I Have been to several doctors and specialist including neurologist /MRI scan of my head. One said it was parapositioaml benign vertigo and after 3 years another one said it was vestibular migraine. This is horrendous to live like this .

    Javier

    • Elise93
      Elise93 Guest

      Posted

      Hi Javier!!! I’m so sorry you’re going through this and have been for 3 years now sad I’m at 1 1/2 years and it’s so completely debilitating. What type of doctors diagnosed the BPV and vestibular migraines? Have you seen a neuro-otologist yet? And have you tried taking any medication for it? 
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