Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP
Posted , 353 users are following.
Hi everyone!
I don't know where else to go, and was hoping someone could please help me. I'll start off by saying I'm a 23 year old Caucasian female. Going on 5 months now, I have had absolutely debilitating symptoms which have hindered my daily life. I feel these symptoms every moment of every day.
It started with dizziness and a persistent brain fog. I just thought I had a bug, and tried to go on about my life. However, my symptoms have never gone away. This "brain fog" I am talking about is a feeling of complete mental confusion, I have no memory, I cannot concentrate on anything, it feels like there's a dark blanket on my brain clouding all my thoughts. I have extreme disorientation and haziness. I feel like I'm always in a dream like state.
I am constantly dizzy and feel a pulling sensation, as if I'm ready to fall over at any moment. It feels like there's air inside my head, and I'm always very lightheaded. Whenever I try to drive I feel this pulling sensation pulling me down.
Another problem I have is with my vision. I am having very blurred vision and have double vision. Everytime I look at something up close it is extremely blurry and I cannot see at all. My perception on things has completely changed. I feel like everything looks very odd and strange and I don't have the right depth perception. It's like I'm in a horrible dream like state all the time.
I have been having headaches and head pressure as well, and having horrible pains behind my eyes. The pin starts from the back of my head close to my neck and continues up my head and the sides of my temples. My eyes hurt so bad, and it feels like knives are jabbing my eyes. My head also feels extremely heavy all the time.
All these symptoms have been causing me severe anxiety, and I have been having panic attacks from them and feel like I'm dying. It is causing a strange disrespity sensation, where I feel like I'm not even here anymore and there's a detachment from myself and my body. I have had to drop all my classes at college and quit my job because these symptoms make me lay in bed all day long. I have been unable to drive for months and can barely get up to walk around. If anyone could please help me or know anything as a suggestion to try.
I have been to my general doctor, 2 ENTs, 1 neurologist, have had 2 MRIs, a hearing test, VNG, multiple blood tests, and no one knows what is wrong. I can't live like this anymore. Any help is greatly appreciated.
-Elise
14 likes, 1771 replies
stipe21886 Elise93
Posted
Hi.
I have the same symphtoms.My troubles starter year after laser correction.I have been practicing sungazing.My life became a hell.Strange vision,narrow sight field,loss of concentration,intelectual problems,strong puls behind eyes,tirednes,speech problems,light headaches,sleep problems,high anxiety,bad body coordination.It get worst with alcohol,caffeine,laying with head back.MR is clean,eye nervs are good but vision field test is bad.Problem is two years old and thing are slowly improving.No alcohol,better food an what is more important I train my eyes muscles in all directions.Think this is eye nervs blood suply problem,caused by trauma,medicine poisoning,or migraine related.Hope this is not a lifetime damage.Sorry about my bad english.Be strong and positive.Do lot of sport and try to relax eye nerv more often.
Elise93 stipe21886
Posted
Why is “practicing sun gazing”? And what exercises do you do to train your eye muscles in all directions?
stipe21886 Elise93
Posted
I look in every direction,try hard to focus on very near objects,closing my eyes with more power,open wide then rest.Maybe this is too agressive but it helps.You can find those excercises on youtube as “eye strain”.It can be caused by computer screen,mobile phone,driving a lot.It messes with muscles/blood circulation around eyes and affect all brain.I found relief in massage of eye area.Maybe this can help you too.Forgot about doctors,they can’t solve your problem.Use your instincts.They just watching my papers and can’t find anything.I spent too much money on them.Btw,I am male,35 years,caucasian,Croatian.In good shape,sport addict,healthy.
steph12793 Elise93
Posted
Although your symptoms don’t completely match mine I was drawn to you post.
About a week ago I noticed this pressure sensation in the back of my neck and head. Followed but feeling as if there is air in my head and ears. Slight confusion and disorientation.
I was wondering if you have found some sort of relieve with tour issues because this is scaring me I’m not sure how to live like this.
stipe21886 steph12793
Posted
stipe21886 steph12793
Posted
steph12793 stipe21886
Posted
I’m contributing some of the brain fog cloudiness and confusion to anxiety because it seems to be 100x worse when I think about it. I can’t begin to tell you how comforting it is to see people dealing with issues similar to mine.
Thank you!
steph12793 stipe21886
Posted
Elise93 steph12793
Posted
My head also feel airy headed ALL THE TIME, like my head is full of air and is trying to float off my body like a balloon and always have a floaty feeling.
Unfortunately I have not yet found any solution
possibly try seeing a neuro-otlogist, a chiripractor that specializes in issues with atlas vertebrae, and a neurologist. I’ve heard good results with acupuncture and massages and seeing a chiropractor!
sab65033 jessica_46966
Posted
Hi Jessica,
Brain fog it can be anything, depression, anxiety, ear infection and list is long,
You saying when you don't eat you don't get the symptoms.
My story start last June 2017. While I was fasting it was Ramadan and I can tell you I have never had any problem with fasting which I do it every year for 30 Days, since the age 8 years old.
Once o break the fast after 2 hours finished praying and sat on the chair after, I felt pressures in my feet going up to wholeness body and got dizzy.
At that time I thought is a blood pressure problem.
Next day felt better in the morning but around 2 pm I started getting the same symptoms again and like fainting.
Since then I get bed and good days, I've seeing GP Andy differentl sepecialist Drs ENT said I have sinusitis and mastoid air cell which is normal and use just spray Avamys and you will be fine.
Neurologist said nothing to do with neurology and advised me to see Talking therapy and he thinks is anxiety.
Neck MRI showing nerve pinched and has been reffred to Orthopedic Dr waiting to see in May.
I cannot tell you how I suffers, dizziness, neck stiffness, ear blocked hearing wind and noise and sounds in my ears, fog brain etc....
I cannot do anything, has been off work for 50 days, o cannot go out for shopping/socialise/ exercise or swimming, o am different person now.
One day I have decide to move and do things for my self even, I don't have the energy and dizzy,
I went put and I cannot tell you seeing things very strange and people's moving and the road is like moving side to side like zig zag, I keeper talking to myself it's ok, I a man going to get better and that's how started to come back to my self at 70%.
Now I still have the symptoms but not like I was. Started working and walk and drive again, thank good for that.
You have to keep praying and help yourself and be positive.
As well I've seeing osteopathy which helped me a lot for my neck.
Just to tell you fasting is good but we need to know why we get all this symptoms and last for ever why we suffers like this in silence and none of the Doctors seems to know the problem.
All they say is anxiety.
I wish every one yuck recovery.
Please we need communication with people who had the same symptoms as us and tell us what is their recovery process not only people telling us their story and every one keeps replying again with the same thing.
Ah least share one thing of recovery so we can try it.
I wish every one quick recovery.
Sab🙏💐
jessica_46966 sab65033
Posted
Hi Sab,
Your entitled to your opinion but after doing extensive research on the brain, how it functions, what a normal brain is supposed to do, how a damaged brain works (I'm by no means an expert) but I believe that anxiety and depression are symptoms of a brain that is in some way damaged. I'm not sure on how exactly its damaged, and it can get the damage in many ways, but I know that depression and anxiety have been linked to inflammation of the brain. Otherwise why is it that most people never get it? Let's say the majority of 'normal' people don't get brain fog, dizziness, vertigo, full ears etc. Even as a symptom of bog standard anxiety and Depression most people don't get such extreme symptoms. The people that do get these symptoms must have something wrong with their brain, otherwise every one would be suffering the same way we are. Or at least have it one or twice in their life times, and if that was the case this forum would have a lot more replies. Why is it every soldier that fights in a war doesn't come home with PTSD? They've all seen the same thing. It's because some brains are more susceptible. Perhaps those men had slightly different brain chemistry to the others already but they didn't know it, perhaps it was damaged some way. The truth of the matter is that we just don't know enough about how the brain works. At the end of the day much of it is still a guessing game. They give meds to treat depression, they only work for 50% of the people. Why? They don't know. They try treat anxiety with therapy, well any one that's felt true fear, (not what I would consider anxiety) on a daily basis, knows that alot of the time therapy doesn't work. We just don't know. I think 98% of time doctors just don't know. They know we suffer from depression, they know we suffer from anxiety as a small portion of our symptoms, so that's easy for them. We all suffer mental health conditions. Chuck antidepressants at us. Maybe it will help some of us. For others, like myself, it made me 1000 times worse. Why? I don't know. I do know what triggered my symptoms, in that sense I'm lucky. I didn't get ill. I had an anesthetic, I was extremely unlucky, I had a bad reaction. But it does happen. More then we think. So many people are shocked that medicine can do that, it's supposed to be safe, but fully except junkies get brain damage, or alcoholics, or cancer patients, or people that try kill themselves with exhaust fumes. There is no difference. I then hadn't recovered fully and was given antibiotics, which are also neurotoxic, so I poisoned myself accidentally a second time. Mental health conditions are on the rise. Well so is medication, antibiotics, antihistamines, beta blockers, etc etc etc, there is a pill for everything. Pollution is on the rise massivel. We eat processed food, food filled with antibiotics. It's in our food. It's in our water. That is the cause of all our problems.
Our problems don't show up on MRIs, or cat scans because our symptoms aren't physically visible most of the time. Especially if it's neurotoxicity. Same as dementia. You don't know someone has it until they exhibit symptoms. It's a silent disease. It kills your grey matter.
I also said that I've noticed if I don't eat I don't get my symptoms as badly. I mean like there's the smallest amount of difference. Maybe my brain is 2% more with it on an empty stomach, but not for long. If I get too hungry I also feel weak. So it's not so simple. But I do notice a difference.
You also don't believe you have anxiety. That your illness is not anxiety related. None of us do. We know how physical our illness is. We live with it. We know that something in our brain does not feel right. The doctors don't know. They will throw every diagnosis at you until the exhaust all the tests and palm you off with mental illness and given you medication. We need to help ourselves. We need as much information about what happened as possible. It's like a jigsaw. You have to put the pieces together slowly. I'm lucky I have my jigsaw complete. The frustrating thing is now it's complete, there is no cure sab.
Everyone should be free to write their symptoms, because we live with it all the time, it's one thing we all have in common. It's a place we can discuss it with like minded people. But I don't think there is a cure, at least not one for all of us. Maybe a few of us respond to certain things, but it won't be a one size fits all situation. For me I know I have to wait, be patient, stay away from the doctors, be healthy, try brain games, try my own personal rehabilitation. My doctor told me, because he is an amazing doctor, who knows when enough is enough, that I need to do it on my own. Be as healthy as possible. Give it time. Like I did the first time. But I am very aware that this may be permanent damage. And that upsets me no end. We just have to live everyday as it comes.
Love to everyone
X
stipe21886 jessica_46966
Posted
Bye.
sab65033 jessica_46966
Posted
Hi Jessica,
Every one entitled to post their opinion and anything what they experience right now.
No one feels the pain as we all suffers with this silence deaseas.
I totally agree what you said and am positive about it.
My advice too, is to keep healthy, exercise, try talking therapy which helps a lot as we are different from each other our brain react different to medication to anything so every one will experience different symptoms.
I will love to hear more post and more positive results from all of you.
Take care and I wish all of us a quick recovery.
?? To all
Sab
Elise93 jessica_46966
Posted
I also completely agree with your views from the depression and anxiety standpoint. Millions and millions of people have anxiety and or depression, but do not experience what we do. It’s either you have anxiety and depression OR you have all this physical symptoms with anxiety and depression as a symptom of whatever is going on with us physically. If our physical symptoms could be explained by anxiety, EVERYONE with anxiety (or atleast most people) would experience atleast ONE of our physical symltoms on a consistent basis
Elise93 stipe21886
Posted
Elise93 sab65033
Posted
If someone is fully recovered I doubt they’d spend time on every forum trying to keep reading into it, they’d be out living and exerpeincing life and grateful for the second chance. It’s very hard but we have to accept that everyone on here posting is also not fully recovered and this is a safe zone for us to talk with people who understand.
It’s extremely isolating that no one in my life can understand what I’m going through (to no fault of their own). I feel like I’m going crazy a lot of the time, so it’s very relieving to atleast talk with other people who experience the same things as me!
I hope and pray we all slowly get back to our old selves and can try and become as healthy as possible
debbie82116 Elise93
Posted
I have recovered 95%. I still come on here to tell my success story because what I went through was brutal...the worst experience of my life. I'd like to give others hope for recovery.
steph12793 debbie82116
Posted
Thank you so much, Debbie!
sab65033 debbie82116
Posted
Hi Debbie, I am glad to hear you havé recovered from the killer desesae which I called.
Please could you tell me how you did it and what is the most thing you done successfully to cover.
I am disparate to be my self again.
Thanks for your time.
God bless you.
Sab
jessica_46966 Elise93
Posted
Gosh I just feel like I've done so much research I could be a brain doctor these days. The things I've learnt have changed my whole perspective on not just our illness but doctors, mental health as a whole, literally everything I thought I knew about modern medicine. It's changed mine, my families and alot of my friends views too. I always wanted to be a doctor, I always had an affinity for it, now at least I'm putting that part of my mind to use at least. Even if it's for a sucky reason. Exactly elise. You know. I'd be 'happy' if I just had anxiety and depression, it's the physical symptoms that are crippling. And therapy did not help me.
So, two years ago I had an operation, an anesthetic, it gave me similar, but different symptoms one week afterwards, but I also suffered 24/7 adrenaline flooding my system, constant, like not anxiety, but pure fear solidly for 6 weeks, I suffered extreme insomnia for a year and a half, along with severe depression, blurred eyesight, memory loss, mental confusion, disassociation. It was horrific. But it got better sooooo slowly. I started getting my life back on track, started uni, driving lessons, it was going good. Not prefect. My vision never healed. But then I got really ill, got a sinus infection and started getting run down, took antibiotics, developed tremors, started getting depression and anxiety again, had no idea at this point what was going on with me, so went to the docs, saying I don't feel OK, went straight in to therapy, he gave me beta blockers and at the same time took two lots of antibiotics and now I'm back to square one, but worse, with really bad dizziness, lightheadedness, seizurey things, nerve damage, suuuch bad disassociation. It's the worst. Agrophobia, because everything feels wrong, sensitivity to light blah, blah, blah. The rest is history. Now I'm 3 months in to being meds free and I wish I felt different but so far my symptoms are consistent everyday, but not, they change everyday, some things are worse, some things are better, but everyday is a living hell. All I know is first time round things slowly got better. Over a year and 8months....slowly, a snails pace. But compared to now I felt amazing. I want that back desperately. It takes alot to retrain a brain and they are amazing at adapting. I just hope we all make a recovery. I always joked if I did make a recovery that I would write down everything I did and post it for everyone
haha
sab65033 jessica_46966
Posted
Hi Jessica,
You are amazing, I like your post and all the things you have said, I totally agreee with you, because we want to know exactly what's happening with our body and why we suffers and none of the doctors seems to know what is causing it, so we search on the internet to find out an answer or at least something to relief our silence desease and we become doctor of ourselves, and knowing medical term and dieases which we never knew in our life.
Sometimes Seraching on the internet all symptoms are similar and scary at the same time and you thinks, I may have this or that so we become anxious without realising it and makes our symptoms worst.
I really liked reading all your post, please keep us informed of anything you found it could hep us to heal.
I will do the same if anything new I will let you know.
Take care.
Sab
Elise93 debbie82116
Posted
That’s why I’ve always appreciated you so much Debbie!!! So many people once they are recovered will never get back on to help others. I know once I’m in a better place and know answers, I’ll still be on sites to try and help people because it’s a really lonely isolating time! Thanks for all the advice you give 🙏🏼??
Elise93 jessica_46966
Posted
That’s horrible that anesthesia AND then antibiotics did this after, it’s so sad and I’m so sorry you had 2 things that could have caused these symptoms happen to you. I haven’t done as much research on brain damage as you. Is it because your brain was already damaged FROM the anesthesia that it was more susceptible to be damaged by the antibiotic? The dissociation is horrible, I literally feel like a weird numb robot who can’t even do anything. Like I can’t even walk anywhere because I can’t process where directions are or what things are or where to turn or how to get there. It would make so much more sense if I was just in a dream. I’m just worried my brain won’t rewire itself back. I’m trying so hard to stay positive it’s just soooo hard sometimes.
If I recover I will also make a huge post to everyone! I think it’s so important to give people hope who are going through this hell wher everyday it’s hard to just try and be a human being.
I’m rooting for you, good luck you’re in my thoughts and prayers!!!!