Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP

Really?!?! What kind of doctor diagnosed you with parasites?!? 

Hi I came on this about 2 months ago and haven’t heard anything from Elise either was hoping since it’s been so lon she has gotten answers . What are you symptoms if you don’t mind me asking ? 

Hi! Severe brain fog, dizziness, disorientation (not sure how best to describe that). I always tell docs it feels like I’m wearing beer goggles - just really out of it & not clear at all. If I think or dwell on it the anxiety kicks in and that’s debilitating but I can separate the two. 

Hi Kourtney!!! I’m so so sorry you’re goijg through the same thing. unfortunately I’ve been dealing with this non stop for 1 year 10 months now with no answers or luck at all I haven’t been able to be on because I’m pregnant now and having these symptoms as well as pregnancy symptoms are so debilitating I can barely get out of bed most of the time. 

I know EXACTLY what you mean. If you tell doctors you have so much anxiety, they blame the whole thing on anxiety. I only developed severe anxiety after having this a very very long time and not getting a diagnosis so then I freaked out. I never had anxiety before it started. My eyes can’t focus ever at all. It’s like when I look at things I can’t see things properly as if what I’m PHYSICALLY seeing with my eyes isn’t being processed by my brain, like I’m not seeing things in perception. I feel so disoriented and out of it all the time. 

When did this start for you? 

I’m so sorry Yolanda I haven’t been active!!! I am pregnant right now and the symptoms from both things have been so debilitating how have you been? What symptoms do you have and have you gotten a diagnosis? 

Hi Elise congrats on your pregnancy , I’m sorry your still going through this after so long I can imagine how you feel and being pregnant on top of it I literally woke up with just not feeling my self it’s been 2 months for me and it’s become a huge struggle with other symptoms I actually googled and found your post two months ago was hoping for answers but I’m actually in your same boat , I haven’t found no answers I’ve had a CT, EKG and even a EGG done every imagined blood test they could think of  and everything came back normal.

My symptoms have been brain fog ( feeling like I’m in a dream state of mind everything felt weird and looked just fuzzy around me ) my vision gets fuzzy a lot now I’m starting to get real pain in my eyes like pressure and causes to get these temple migraines (I’ve always suffered from migraines don’t know why ) I was even getting dizzy a lot but that has slowed down after I took my birth control out a month ago not sure if that was it I even experienced anxiety and depression which I’ve never knew was like but I feel I got that because of how I feel I still get it from time to time not all the time last time I felt shaky and my heart pumping and this weird feeling in my stomach was a month ago and I just got it yesterday after trying to work out which I’m trying to change my life style see if anything helps I’m not over weight I just don’t exercise And also have a poor diet but at this point I’m trying anything a lot of my symptoms have gotten better since day one at the moment I’m suppose to see a eye specialist soon hoping my eyes have something to do with it I do feel 60% better but I’m not 100% better some days I feel lost but some times I have good days and bad days I had a normal happy life before but this has all just became a night mare and is ruining my life I have two kids a 9 and a 2 year old I am a stay at home mom so I am pretty lucky and blessed to be able to stay home and deal with this but I’m just not that active mom anymore I can get out of bed and go outside and do things but my energy level is so low nothing interest me anymore I hate shopping my eyes feel so over stimulated when I try it’s like my brain and my eyes are not working well together but I wake up everyday hoping for the best and keep busy so I’m not thinking about how I feel so much . Someone did tell me i probably am experiencing derealization which I’ve looked into and a lot of people seem to have the exact symptoms as I do but who really knows . Thank you for replying also! 

Maybe something to look up depersonalization/derealization if you have can google it or look it up on Facebook they have these groups and I read other people’s symptoms and it sounds a lot like mine so I pretty much self diagnosed myself with this since I have that feeling of not being my self like in a dream state of mind and that’s what it is with other symptoms as well  something to look into if you haven’t heard of this yet it just helps for hope and they say it doesn’t last forever it’s all up to us . Look it up tell me what you think ? 

Hi Yolanda!

I’m sry you’re feeling this way. I also have many of your symptoms, almost the exact same ones especially the eye over stimulation from being at malls and markets.

I hate being out where there’s a crowd or many diff colors and patterns. Even sitting in church makes me a bit dizzy. I also have my good and bad days. I really don’t know what’s contributing to these symptoms, they’re horrible! I’m also a mom, my son is 3. After I had him in 2015 that’s when my symptoms began on I’m my 8th month of pregnancy. Idk if it’s related to it.

I’ve seen many specialists and have gotten second opinions.. I’ve had all sorts of blood test for diff things, MRI AND CT of my brain and neck. Everything is normal, doctors can’t give me an answer. 

My symptoms sometimes give me anxiety.. doctors don’t get that.

One of the neurologist I saw tried saying I had anxiety and put me in meds but I refused. The second neurologist said it could be vestibular migraine.. I’ve also suffered from migraines all my life.. he tried putting me on meds but I refused.

Some one on this chat suggested I get a cranial sacral therapy.. it’s something to do with how your neck and head are massaged but it didn’t really help.

Next week I’m finally seeing a Holistic doctor so I’ll let u guys know how it goes and what he says.

I also get Acupuncture once per month and a massage. It helps a bit. I’m trying all the natural ways, no meds for me.

Hi Vanessa 

Yes these symptoms are just way to much some times I feel I’m getting better but nope I’m just having a good day I can say I’ve came a long way from really feeling out of it when this all first hit me. Someone told me it can be from stress or anxiety but I don’t really stress about much and I have never experienced anxiety till now . I do stress now about how I feel I hate it so much it’s really hard I feel I have failed as a mother I’m not active the way I use to and I know that’s depression and I have never even experienced that either not even when a close family member passed away I accept it.

It seems doctors don’t know what is wrong we take all these test and nothing I’m literally at the point right now where my doctor wants to see me in a month to see how I’m doing and also I’m waitng to see a eye specialist ( can’t remeber the name ) another thing is memory lost in usualy such a fast thinker and a quick learner but my brain has literally been on pause it’s fustrating .. it scares me also because I’ve heard other woman say this happened after they had thier baby or during pregnancy and That suppose to be a good moment in your life to get you ready for a baby not putting more stress on you I can only imagine how you feel . 

Also someone on the group told me about carnial sacrial therepy also and I was gunna look into that but now I’m questioning it . I really wanna try a massage my whole spine has been hurting a lot and that’s not My normal . 

I had a doctor try to put me on anxiety meds to o refuse because I don’t normally have anxiety .what is a holistic doctor ?  Well I wish you luck and good news when you see this next doctor please share any new news for you ! 

Thank you so much! It’s definitely been a huge struggle, im just trying to hold on for dear life.

All your symptoms are so so close to mine it’s crazy! I just Ewoks up one morning too feeling very “off” and I never went back to being normal. I too have suffered migraines since 2014, I usually get them every few months or so. I’ve seen SO many doctors I can’t even keep track anymore. Every single one gives me a different diagnosis and their own idea of what is wrong with me. 

I also have severe brain fog, derealization, walking in a cloudy dream like state, dizziness, severe head pressure neck pressure and eye pressure, my eyes can’t focus and feel like they’re separating or pulling apart, it’s like I’m wearing too high of a glasses prescription (even though I’m not), I can’t wear glasses anymore and putting in my contacts is bad too, it’s like the second I can *see* everything around me with the right prescription I feel so much worse. My eyes and head always hurt so bad, and they’re always so heavy. Being in stores or huge areas make me SO overstimulated and have sensory overload, my eyes and brain can’t work together and it is so hard to try and focus on anything and think and concentrate and walk around, it’s too much for me. 

I definitely experience derealization/ depersonalization (I have had it 24/7 since this started) but the other physical symptoms don’t match up completely for me to ONLY have dr dp disorder especially not being able to wear glasses or contacts really and all my weird vision issues. Idk I’m just so tired of feeling like this all the time, my life was very happy and normal before, now I have severe anxiety and depression. I’ve learned not to tell doctors this though because the second I do they say anxiety caused all this. I try so hard to explain I only developed anxiety when this didn’t go away. 

Vanessa please let us know how the holistic doctor goes!!! That’s one of the last doctors I have yet to see, other than a good neuro-ophthalmologist and getting a spinal tap (in waiting to do these both until after my baby is due in september). I definitely want to look into a holistic doctor because I’ve seen so many others who just wont give me the time of day. It’s so frustrating 

My neck and and back and  base of my head/skull also hurt so bad since this started!!! I definitely think it’s becase we tense up all the time because of the dizziness and not knowing our spatial orientation and depth perception when we walk, so we hold ourselves differently. I’ve noticed I tense my body more because I’m so “off” and I have severe spatial disorientation I can’t process where I am in relation to my surroundings 

Elise your symptoms are exactly the same as mine...and I have Epstein Barr Virus. Please Google it ...

Our symptoms sound a lot alike yes they really do. It’s so crazy how we go from a normal happy life then wake up all of a sudden like this mine started on my 26th Birthday I feel I’m so young to be going through all this I just want my life back so bad but I just really feel I won’t have that considering how long you have had it also but I really strongly feel something is really wrong with us but doctors just can’t seem to know why I hate when they look at me like I’m gunna be ok or it’s alright because I don’t feel that way they have no idea what I’m dealing with on a daily basis I and trying to be a parent and live my life normal it’s causing me to really struggle with life but of course I’m trying to hang in there be strong because I know once aupin a time I felt real and normal so I know I’m in there somewhere but I will be praying for you as well !! I follow a group on Facebook with derealization/ depersonalization and man it’s crazy they really have all the same symptoms as us as well but one thing I just don’t suffer from anything some people have a life style of heavy anxiety and other diagnoses so of course caused them to have depersonalization/ derealization but everyone of course is so different but we all have the same symptoms and feelings .. well if you have Facebook and wanna chat more I’m sure you don’t I get tired of people asking me how I feel I’m like the same nothing has changed and no one gets it of course but my name is Yoli Gutierrez on Facebook. We gotta just hang in there try to stay positive try and stay busy and not over think so much I’m such a over thinker I hate it but it’s hard to just stay busy with so much going on with how we will I’m not happy at all but I try to for my babies . Hoping soon I feel better one day or just get answers .also on your spare time if you watch Netflix there is a movie called brain on fire you should check it out .

Hi Elise, 

please check on  a d r e n a l    f a t i g u e  - that  helped me  a lot. 

Sleep before 10 and trying to get at least 8-9 hours of sleep a night, just eat something that is not too stressful for your body and eat small portions, do sports that is not too stressful for your body. And drink lots of water (2.5l) (make sure to add mineral drops)

Also, taking a good multivitamin helped me. (I was very Vitamin A deficient and my eyes always hurt) - it's much better now.

And a key change for my symptoms was taking a Calcium/ Magnesium complex. And I also take Probiotics and fish oil 

I am also now eating gluten and lactose free - also no coffee, no added sugars, no alcohol and when I eat vegetables and grilled salmon I am feeling normal and can look straight.. it's unbelievable.. so it's probably the omega 3 and the healthy carbs that are missing in my diet. 

Also check on enzymes. I think this could all be caused by the pancreas. I think stress slows the production of enzymes (these are key transporters for protein) and thus the body can't take the nutrients out of the food and transport it into the cells - the result is various deficiencies and these could result in anxiety, depression etc. 

And try to stay away from processed and fatty food! 

It would make me super happy if you could try this out. 

 

Hi! That’s so weird you mention that. My symptoms started September 12 2016. I went to a migraine clinic last September 2017. They did blood tests and found out I was positive for the antibodies of ebv and the numbers showed I had had it within the past 2 years maximum. 

Right before September 12 2016 (maybe 2 weeks before) I was really really sick (I thought it was just a normal virus or bug) then I woke up one day and this never went away. I’m wondering if I had the ebv and that caused all this to happen 

Hi Elise!

First off, congratulations on your new baby!!

I will pray God will give you the strength you need as a new mommy.

Yes, I see him July 26! I’m so excited!!

He had me print out some papers I need to take with me, it’s 5 pages of all sorts of questions I’ve never even thought about.

For example, do u talk on the cell w/o a headset, do u sleep with an electric blanket, what foods does your diet consist of, what foods do you dislike, are you shy or outgoing, do you suffer.. all sorts of questions.

I’m praying his able to help me because these symptoms are debilitating. I have a 3 yr old and it makes it difficult at times.

I’ll let you guys know what he says.

Wow I’m glad you’re feeling better. How long have you been sticking to these changes?

I’m not sure what ebv is I just looked it up that’s So weird because the only thing I came back I had but don’t have it anymore the doctor said was Mano which when she said that I was like eww that’s a kissing disease I don’t kiss anyone but my husband she laughed and said it’s not just from kissing she said it’s from sharing drinks which I went to Austin Texas for my birthday to 6th street they are famous for bar hopping and I took shots from glasses she said I could of got it off of . But the doctor said it showed I had it but don’t anymore and that last only 6 weeks sorry I know to much info but I looked up ebv and saw it’s similar I did get sick when I got back the day of my britday which was May 7 2018 it was a Monday I started getting throat hurting and so tired I just thought it was from my real bad hangover that I couldn’t shake off . 

On May 7 2018 a Monday  was my birthday I thought my hangover was just still there from that Sunday because I had to get out the hotel and drive back home with my husband then on Tuesday is when I woke up feeling so off not my self like in a dream .  But my doctor said Mano last 6 weeks should of been gone by now  since I had just seen her 2 mo this later which was this month in July . 

Mono is caused by ebv 

I never knew she just told me Mano and said she checked within 10 days and it’s gone but I had i before and it’s been two months since I been feeling this way and I saw her July 9 . Also I’m freaked out so I ask is it curable she says it goes away on its own . I’m finches so your saying I have ebv then since I had mono does that stay in your blood?

Elise, EBV is a known trigger of dysautonomia, chronic fatigue syndrome, and fibromyalgia. They believe there is a tendency there already, and EBV triggers it. Vit C is very helpful, as is baby stepping aerobic exercise.

Hi Vanessa, 

I am sugar free for about 2 years now but that just because I got these really bad lows when I was not eating for too long. First I thought I had diabetes but I don't have it, I just have to eat regularly and stay away from sugar.  And I got really bad anxiety and panic attacks at night and not sure how I figured it out, but the Multivitamin and the Calcium & Magnesium helped to eliminate that.

Also over the years I figured out that milk upset my stomach - I always got a stomach pain after drinking or having it with my cereals - so I am using coconut beverage now.. - never had those kind of stomach pain again since I stopped.. (and I got tested for lactose intolerance but I was actually negative) So I am lactose free for about 1/2 year now and I am very happy with it. The only thing is you have to take the calcium supplement since you get the most calcium through dairy products.. otherwise it is really hard to get it from food.

And I just started the gluten free diet about a week ago. (no bread, pizza, pasta etc.) I have to admit it feels really good and my brain fog feels so much better. Especially when eating lots of vegetables. 

And all in all, I am trying to de-stress -get more sleep, do more relaxing sports, eat healthy and most importantly drink enough water - All in all though I am convinced that all my symptoms were caused by stress, wrong diet, not enough exercise and not enough sleep - as I said, the digestive organs are just not functioning right when stressed out (let it be though wrong food choices, lack of sleep, lack of exercise, work, family, emotions... etc..)

I hope this helps.

 And if you try it out... don't be like me... I am always falling back as soon as I feel better and then the next day I am feeling bad again... try to stick with your choice for at least a months and then try to add things.. I am in this process now..

I had all the symptoms for about 3 years now. 

 

 

When Ebv leaves your organs...it starts attacking your central nervous system and will only show up as a past infection when you have blood work done. Most people have the virus, but it lies dormant waiting for am opportunity to start wrecking havoc. It's a very frustrating virus, but it can be suppressed through boosting your immune system and eating lots of nutritional info. I suggest you Google Ebv in conjunction with Antony William who is a chronic illness guru. Doctors dont know much about the different types of EBV and the different stages. You will get some answers when you take a holistic approach to it. It's been a long road of 6 months for me, but im finally starting to heal.

It definitely sounds like you have the same symptoms as me, and I have Epstein Barr Virus. You can heal. I suggest you Google Ebv and Antony William who is pretty much the only source of info I have felt helpful. A diet of lots of fruit and veggies, water, sunshine, sleep and supplements like vitamin b12, vitamin C, vitamin d, magnesium/calcium and zinc combo, Omega 3, curcumin and L-lysine have helped me tremendously. I have also cut out eggs & pork and cut down on dairy and gluten which has helped (at least until you feel better). This virus is frustrating as it's cyclic. As one symptom disappears, another appears...and so it goes on...until you mange to suppress it with a boosted and healthy immune system.

EBV stays in your body for life. Although it does cause problems and its frustrating..don't lose hope...you can suppress it with building and boosting your immune system.

You are going to be fine. It's taken me 6 long months of 3 steps fwd and 2 steps back...healing takes a while...but you will heal

Hang in there.

Thanks so much.. it’s very difficult to elimates all that from a diet.. I will maybe slowly maybe take dairy products away.. 

I also get those sugar lows.. I feel weak and shaky and fast heart palpitations.. I’m also not diabetic. I take a multi vitamin and magnesium.. helps a bit with my anxiety that is brought on bc of my symptoms.

EBV will apparently always show as a past infection in bloodwork when it leaves your organs and heads for the central nervous system. This is stage 4 of the virus and it will cause havoc until you suppress it.

And when did you find out you had EBV? That’s what your doctor diagnosed you with? And how did you learn all the facts? How long have you been dealing with this? 

I just don’t get how doctors don’t tell you this and we just have to do our own research.

Your right about how one symptoms seems to disappear another one follows  some day I I feel I’m getting better and feel my self then then there I go feeling weird not my self  just so lost and confused at my own  feelings . 

We go to these doctors for help and all they can tell you is nothing . I’ve never experienced any dramatic feelings I never get sick either it’s rare and it always lasts a day or two and goes away .

Thank you for some answers for me I have no idea Mano had more details to it according to my doctor I’m fine . But don’t feel fine it’s so easy for them and they don’t understand what we are going through at home trying to just live our life the way it use to be and feels we are never gunna heal from this .

Hi Ren,

Did you heal are you from relying your self now.

My story is very long I had the symptoms since last June 2017.

Let me know.

Sab 

Hi Sab....I can honestly say that I'm starting to heal. It's taken a long time (since Jan this year) with lots of ups and downs...but I think when you start to have more good days than bad it's a good sign. I have got no medical experience, I can only talk from my own personal experience...and for me, I haven't gotten any answers except from Antony William. I have no affiliation to him either. I think everyone who lands up here.. has googled the symptoms which we all seem to have...and most of us have pretty much exhausted every avenue with doctors and specialists with no answers....just blank stares and to be told we are fine. This virus has completely put my life on hold....I've gone from being a fit and active 42 year old, to someone who is now completely inactive. I went through a stage in April this year when I honestly felt like i didnt want to live with these symptoms...it has turned my life upside down. It's not easy trying to be a Mom and a wife when you feel so odd and experience one symptom after another...and have weird Vision disturbances that are difficult to describe. I started to feel like I was going nuts. Fortunately I befriended another girl in this sight who has been a real support and strength for me, and we manage to talk each other through some rough days. It's important to talk about this with other who are going through the same thing.

Yes I see it’s still being moderated I keep checking hoping I can read what you wrote anytime soon. 

Wow you have described me I was at a point where I was getting these bad thoughts in my head not wanting to live this way but I would just tell my self no this is not you your gunna come out of this I have small babies I’m trying my best to just be strong and hope for the best I do have good and bad days I’m starting to have some good days but the drunkness feeling and seeing is still there sometimes I’m lucky and it feels it’s somewhat gone everyday is a challenge a doffent symptom I’ve experienced so many but thank you for this so much i really think it’s this EBV for me I did have Mano and it’s causes by that so makes so much sense I thank you very much for giving me hope doctors state at me like I’m fine it’s all in my head but no one understands how I feel not even my family or husband they feel for me but don’t understand I would t be able to understand anyone either if I was myself .. I’m 26 years old I’m so young but yet feel so hopeless I had a normal happy life before I feel I’m stage 4 I am tying to change my eating habit which is hard but I want nothing more then to start feeling better for my family and my self !!

Hi Vanessa,

How did go with holistic doctor?

Let me know.

Thanks

Sab

I’m just so sorry, your story sounds so much like mine, I feel for you so much it’s so hard that we just wake up one morning and are so different. I could handle anything else other than my head and brain and mind being so messed up. It makes me not able to function at all. If I could just stop all the airy headed disoriented physical cloudy and foggy heavy headed derealized dream like feeling I could manage so much better. I’m just so scared all the time I’ll never have my old life back.

I’ll find you on Facebook! My name is Elise Kapala. I know exactly how you feel, it’s so frustrating when other people always ask me “when are you getting better?” “Why don’t you feel better yet?” “Wait you’re STILL sick?” Like ugh yes please stop, it’s so hard for us to deal with it just by ourselves   

Thank you so much Vanessa!!! I’m praying that the holistic doctor goes well for you and you can get some answers! I’m just so scared, I don’t want to be an awful mom because I’m so limited on things I can do I just hope everything works out. It’s so hard to stay positive but we have to. Please let us know how the holistic doctor goes! 

I never tested for mono, but I think ebv is very similar! I don’t even know when I had ebv! All I know is I showed antibodies that meant I had had it recently within the past 2 years. It’s so frustrating and confusing  

So your symptoms started like May 8, 2018? 

I had no idea! I’ve never had a doctor discuss anything on ebv with me in length, just then migraine doctor who mentioned it to me and what I’ve researched on the internet. Have you found anything that helps with your symptoms? 

Wait sorry I’m a little confused. So after the ebv virus leaves your organs and starts attacking your central nervous system, it shows up as a past infection through blood work (that’s what mine did) but you still technically have the virus? So if mine showed up as having past ebv it’s srill possible I actually do have the virus still in me? 

Yes my symptoms started May 8 I woke up feeling so weird I was freaking out crying literally tripping on how I felt . 

I’ve never had any of these symptoms it seems one comes after the other I haven’t got dizzy or the heavy pain  in the eyes anymore .

I do still have the drunkness feeling nd my vision goes out of it from time to time and I still have brain fog not as bad anymore and my memory isn’t good anymore I forget things within seconds it’s rediculous!! 

I’m not as bad as I was 2 months ago i wouldn’t even leave my house or wanted to talk to anyone I felt so weird and not my self along with all the symptoms.I’m going on my 3rd month now and I’m a lot better but not my 100% just yet now I’m going back to the doctor to get my ears checked hopefully they find a solution because after that I don’t know anymore feat they could possible so they have done them all !!

I did have Momo but that’s the only thing and I saw on here something about EBV and my doctor didn’t tell me anything about that so I just googled that and it sounds about the same !! 

Hi Elise!

Soooo about 2 weeks ago I tried the cranial sacral therapy... it was basically some neck massage/ body energy thing.. I want to say that a few days after I felt like I could think I bit more clearly.. Also, the lady that did the cranial sacral therapy recommended I see a chiropractor to be readjusted..

I followed her advice and saw one.

I told him my symptoms and told him about the pain and tingling in my neck., 

He kind of cracked my neck just a bit and that also made my foggy brain/ drunk feeling a bit better. These past few days have been good days, compared to 3 weeks ago where I couldn’t even drive bc it felt like I had 2 shots of tequila!

So today I finally saw the Holistic doctor!! 

After almost an hour consultation he told me he was almost certain I had Candida. He said I had a lot of the same symptoms.

He told me my diet needs to change.

Basically no process sugars or gluten

He mentioned 3 diff diets to try plus he gave me about 4 diff herbal pills to take everyday..

Then he did acupuncture on me..

Part of me is happy I some what gave me a diagnosis but also the other part of me  is scared about this whole diet stuff., it’s not easy.. but I’m willing to give it a try.

I just replied to u a long message but it’s being “moderated”.. ugh!

I just replied to u and Elise but the comment is being moderated.. ugh!

That’s exacrlt how it happened to me, I just woke up September 12, 2016 and I didn’t feel right, something was so so off. It was so scary, and this whole process of elimination has been so exhausting 

That’s great Vanessa! The cranial sacral therapy is definitely something I want to try and see s chiropractor. I know what you mean, that’s so hard to try and change everything completely around. I just wish we were normal like before and could live our lives. 

So many of my replies are being monitored too!!! It’s so annoying haha. 

I keep forgetting, I’m so sorry, how long have you been having symptoms for? I’m just getting so scared because I’ve had them almost 2 years and I’m so scared I won’t ever go back  

My reply is being moderated too! 

Yes it definitely has been so scary for me to I literally have stoped doing things I enjoy it literally has just put a hold on me life I’m so tired of it I want to just go back to being my old self again The brain fog and weird vision and the drunkness feel 24/7 is all I have left  right now so I do feel 70% better but I don’t know what is wrong doctorss don’t even know  they look at me all crazy it’s so disappointing hoping to get my ears checked next we have to be our own advocates and keep digging because I know when I was in my right mind I was so happy loved life !! Now it’s hard everyday when I wake up i try and keep busy with my kids I have a 2 year old and A 9 year old  and they have literally kept me going !! 

Hi Ren,

You absolutely right, I agree.that is the way I feel too.

I saw an ENT for the second opinion and he sent me to do a balance test which show I have vestibular problem in my left ear.

So all here with suffers with similar symptoms, am sure it something to do with the body balance which I see the ear.

I never had a problem with my ears and never though which it will be the cause.

But I never give up with my GP always push them to sent me to second opinion even third opinion like the neurologist which I will see in October.

An other thing my heart beats 100 a min very fast and makes me dizzy as well. I am going to see the cardio next few weeks. Which I hope I will come to conclusion about my symptoms and condition and work on them.

I am very active person for the last 9 months became so inactive and put on weight like 10 KG is a lot is bothering now, 

I want to lose it but i am pushing  my self to go swimming a least once a week and exercise for 20 min at home walk very fast.

I get very tired very quick, very unbalanced and unsteady.

I hope every one found a relief, trust me is not easy but I believe we all heal one day and we come back to normal life.

All the best.

😘

Exactly! It’s so frustrating. It’s so easy for a doctor to say it’s anxiety and prescribe medication. We really do have to be our own advocates for health! I’m keeping you in my prayers and hoping so much you find answers!!