Bronchiectasis

Hi I am 50 years old and was diagnosed with bronchiestasis about a year ago. I am in the medium stage or middle of this lung disease. Does anyone know the life expectancy if ur in the middle.

Sorry to hear you have Bx. I am 86 and have had it for many years.  It will not go away but you can get better.  Get a good doctor, do everything you can to treat it.  I fought it for along time and then started the following advice.  Ten felt better and lived an active life, as long as I listened to the experts.  Have courage.

Hi Jen

I was diagnosed with bronchiectasis at 27.

I feel your pain. I am now 54 and I still feel to young to have this disease.

I am more than happy to talk with you.

Hi Jen, my name is Trudy and I was diagnosed 6 yrs ago. I just turned 48 and the last year has been real bad. I had a collapsed lung last year after a bronchoscopy. I was in the hospital for 3 1/2 months. Now I'm on oxygen 24/7 and I can't walk across the room w/o getting out of breath. I'm so scared that this is it for me. I know there is people who live with this disease, but they say my lungs are real bad. Idk how bad you are, but do what the drs tell you. You definitely need a support group of some kind. I'm looking for a way to try and strengthen my lungs so I can at least be like I was last year before the collapsed lung. I've been bad since then and its very frustrating. Follow all your drs instructions. Trudy

Hi Jen,

Hope you are doing better now. I too have been diagnosed with bronciectisis since 10 years ago. Funny they always treated me for asthma till 14 years ago when I was diagnosed with Wegeners diseas ( kidneys) I was hospitalized at least 8 times a year.

There is hope and I have learned to live a better life after I started listening to my body. I'm no longer embarrassed by my cough and when the phlegm need to come out, I get it out. For many years I would hold it in and would get infections often. My pulmonologist keeps an eye on me and helps with my needs when I'm not feeling good. Although I rather not take antibiotics and find alternatives to bring up my phlegm. I do find lots of relief when I lay on my back with my legs up on the wall. I have a box off tissue ready. The gunk that comes out. Makes me feel sooooo much better try it!!

My diet has also changed for the better, lots of fruits and veggies and soups. Protein plant based shakes for my morning meals. And lots of walking and some yoga.

Hope everyone is doing better. One day at a time!

Thanks

U guys should be thankful that you got it as an adult. I have Bronchiectasis it was diagnosed last year. The doctors thought it was Asthma from when I was 2 years old. I was just 12 when they figured out it was Bronchiectasis. Im 13 now and Im trying my best to fight my Bronchiectasis. Even though i have it im still happy because I was lucky cause God gave me 4 lives to live. He saved me 3 times from nearly dying. That is why I am so thankful to God. We should always remember to always thank him and always be thankful because every second is a gift; every thing we have is from him. 

Hi Jen,

I have just come across your diagnoses of Bronchiectasis,you sound very upset,which is natural...

However i am here to tell you,i was diagnosed with Bronchiectasis at the age of two years old,i too have a left lower lobe that has collapsed,i sometimes get colds and infections that need antibiotics to clear them.but i have to tell you i have never allowed Bronchiectasis to rule my life or define who i am or what i do....

I have lived my life the same as everyone else,nothing different,i have always taken care of my lungs and know when i get a cold i go straight to the doctors to get checked in case i need antibiotics...

Do not change your job,there is no need,continue your studies,do all the things you want to....achieve all the things you want to,go to all the places you want to...

Live your life as you would if you didn't have Bronchiectasis...

One thing i would say,is don't hang around people who smoke or smoke yourself...

Really not good news....One piece of advice i can give you is to make sure you have a caring doctor,someone who understands Bronchiectasis,as they are going to be your support when you need antibiotics etc.,

I have never had a lobe removal,and i am still here,living my life to the best of my ability...I am now coming up to my 68th year....One of the best suggestions i can give you is that you have a very caring GP

If i can live this long with Bronchiectasis,when i was born in the 40's how much more better will it be for you who was born only 20 years ago...

I also have Type 2 Diabetes since i was 50 years old,which i control with diet....

I have kidney function which is a little off,but i am looking after them too,hopefully to get another 10 years out of them...A year ago i was diagnosed with Rheumatoid Arthritis which is not good news,but like everything else i will do what i need to to control it...i don't define myself as my illnesses,i am more than that....I want you to live your life wonderfully,with excitement and happiness,go for it do all the things you desire,be the special person your meant to be,you have been given this life now use it...

Sending you my heartfelt best wishes for the rest of your long life...

May you be well,May you be happy