Buring feet/over sensitive to heat and feel like giving up

Posted , 20 users are following.

Gradually building for the past 10 yrs is the feeling of hot feet when they are exposed to any heat even just wearing shoes an socks. When its really bad I get thst neefle feeling. If i dont wear shoes or socks im at my best. Can't wear shoes or sock for more than a few minutes. Best i can describe is it feels like someone is holding a hairdryer to my feet. Been seeing a neurologist for the past 5 yrs. Even traveled to NYU to see one.

All the blood work comes back neg. Been on lyrica, neurontin, elavil, cymbalta, topamax, trokendi, horizant, depakote, creams, melixitene and now lamictal. None have helped. This year has gotten worse to the point I cant have my feet under the covers at night. I look at people every day and am so jealous they can wear shoes. Im stuck with crocs and flip flops. Im 44 and need to work another 20 yrs. I'm a nurse to boot. A fan on my feet or slamming them in a wash basin of ice is all that helps. They seem to think its small fiber neuropathy. My kids get me thru each day but it's taking a toll on my mind. Advise?

5 likes, 88 replies

88 Replies

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  • Posted

    Sorry for your pain and frustration.

    I have suffered going on30 yrs, seems cooling on water basin as often as possible is most comforting and I have also saturated my feet with Aquaphor and wrapped them in Saran Wrap at bed time , this softens the callouses which have been caused from the pressure that my feet endure. I change out shoes at least 3 times a day. Put on socks then take off socks. Tea tree oil cools feet & toes off for a while when I sleep. I can't stand covers touching my feet. Have had to walk on sides of my feet because of the created callouses , this alternative walking throws out my hip & knee .

    It's awful dealing with this !!!All new and good medical practices for every other part of the body but never new developments & treatments for our feet !!!!!'

  • Posted

    I think I have the same problem but I live in Australia and also have taken Lyrica with no result.    I can't wait for winter to come as my feet will feel better.  I am overweight and have Type 1 Diabetes so am trying to lose some weight and it might help my poor feet.  You are only young yet  too.  I've seen a Podiatrist and now wear extra innersole padding which helps, although the Scholl brand rubber soles I cover with a plain cotton cover.  This helps when on my feet all day. I have developed a neuroma on one foot which  goes away when I use a soft ice pack with my foot resting on it while watching TV at night.  I wonder if your legs ache too.  Sorry I can't help. 

  • Posted

    Look up Erythromyalgia . It's very real and mine took 10 yrs nearly to diagnose .

    All the best

    • Posted

      Your condition is described with redness, I have the burning but not the redness.  I'm sickened at how long it took for them to diagnose you, but at present, I am also having the same symptoms in my wrists, hands, and at times elbows.  More tests, more waiting.  I have a test, then I have to wait weeks to see yet another doctor.  I know if they had this condition they would not be waiting.  I have to work the same as they do, as most of us do, I should say.  

  • Posted

    I can identify with soooo many of the symptoms here. Brutal way to live one's life. Let me offer up some tips/notes I have learned in the past three years.

    1. Ice cold foot baths do help.

    2. Lidocaine patches help. Pain in the tush to put on but they do help.

    3. Small doses of capsaicin over time are supposed to help, but did not help me. Can make things worse for a while.

    4. Capsaicin patches via prescription have proven to help.

    5. I take 1500 mg neurontin just to keep my head above water. I take Tramadol every other day or so when I cannot stand the pain anymore.

    6. I never wear socks and in Chicago that can be a big deal. Usually cooler weather helps with the pain.

    7. I have pain in my toes and itching on the soles of my feet.

    8. Wearing a QUELL DEVICE does help.

    9. Cetaphil can sooth the pain temporarily.

    10. I had a DECOMPRESSION OF THE PERONEAL NERVE surgery. I got about 25% relief from this. The peroneal feeds the toes. 

    Finally, I have plans to get a shot in a nerve higher up in the leg from a world renowned Podiatrist here in Chicago, this is later in the week. 

    • Posted

      Hi just wanted to know did you get thr shot and was it successful.
    • Posted

      I have updated news to report. After 12 months, the effect of the surgery is complete. I have complete relief from pain in the foot that was operated on. My podiatrist says it took so long because the nerve which he decompressed was twisted up for so long that it was damaged and needed time to heal. Bingo. 12 months it took though...but complete relief. 

      Google it up, it worked for me. Now I have the other foot to consider this operation for. 

      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4628158/

  • Posted

    I know feeling. I am 41 years old and the thought of never being able to work again is unbearable. I am severely depressed. I cry all day. It has taken such a toll on my life. There are days I feel like I can't go on but I use my children and husband to inspire me. The thought of living my life like this forever is so painful. I cant wear shoes, can't sleep, can't walk, cant do anything. Life is so sad.

    • Posted

      Tasha, have you tried any of the recommendations I suggested 3 months ago?
    • Posted

      Yes I tried quite a few and no luck.
    • Posted

      Quell Device would have to help you, no?

      Are you open to the decompression? Where are you located? I am in Chicago. 

  • Posted

    I feel your pain. I truly do. . Have had the same for 2 years now. Diagnosis: Idiopathic Neuropathy. No known cause. I suspect medicine caused this. Started a few days after starting Flagyl for a colon infection. I completed the 14 day regimen after being told to be sure to complete the antibiotic. I didn’t relate my feet pain to the Flagyl until 3 months later. I have, like you, been on Neurotin,  Lyrica and several other medications but nothing helps. I sleep with my feet out of the covers. It’s miserable. I wish there is something I could tell you that helps but I haven’t found anything. Still researching. Good luck and please share if you find anything that helps. 
    • Posted

      Pam, see my comments. There is relief. And I understand about the feet not under the covers, I do it as well with my one foot did not have the surgery.

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