Buring feet/over sensitive to heat and feel like giving up
Posted , 20 users are following.
Gradually building for the past 10 yrs is the feeling of hot feet when they are exposed to any heat even just wearing shoes an socks. When its really bad I get thst neefle feeling. If i dont wear shoes or socks im at my best. Can't wear shoes or sock for more than a few minutes. Best i can describe is it feels like someone is holding a hairdryer to my feet. Been seeing a neurologist for the past 5 yrs. Even traveled to NYU to see one.
All the blood work comes back neg. Been on lyrica, neurontin, elavil, cymbalta, topamax, trokendi, horizant, depakote, creams, melixitene and now lamictal. None have helped. This year has gotten worse to the point I cant have my feet under the covers at night. I look at people every day and am so jealous they can wear shoes. Im stuck with crocs and flip flops. Im 44 and need to work another 20 yrs. I'm a nurse to boot. A fan on my feet or slamming them in a wash basin of ice is all that helps. They seem to think its small fiber neuropathy. My kids get me thru each day but it's taking a toll on my mind. Advise?
5 likes, 88 replies
annie1963 cabonick
Posted
I had the same exact thing going on to the point I was crying and suicidal. Mine seems to be worse with stress. I went the route of every test and pill and cream. Small fiber damage, but what will cure it?? The docs had no answer. I finally took a Xanax and it stopped. Now my psych doc gives me a script for .5 as needed. The very low dose seems to lessen it to the point that I can tolerate, but no closed shoes and socks are off and on and off and on, continuously. Crazy condition. My therapist thinks its Conversion disorder triggered by stress. I don't care what or how, but I found a way to deal with it.
Margot49 annie1963
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Burnfeet annie1963
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Do you have side effects on xanax the drug sounds similar to amatriptyline with what it's prescribed for anxiety and similar illnesses!
annie1963 Burnfeet
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Margot49 annie1963
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Peonygirl1 Margot49
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Margot, you are dealing with so much. I am sad for you 😔. I am sending hugs and best wishes your way. Hang in there.🍀🕊💐
Margot49 Peonygirl1
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Burnfeet cabonick
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Hello every one update on my feet, recently had a nerve conduction study and a MRI scan on both feet, witch I was really looking forward to results I fort finally I may have some answers but apparently everything is normal, witch I know is good! But unfortunately. The pain won't be relieved yet!!! There sending me to a back specialist next!! To see if that's effecting my feet in any way!!! So at the moment I'm not sure what I'm suffering with 4 years ago they said plantar fasciitis then 3 years ago they say neuropathy/ tarsal tunnel / now nobody knows :-( personally I think it's some sort of nerve problem as it's a lot of burning but I seen the mri pictures, and you can't see much in the way of nerves!! Not that I'm an expert, good to see no bone or muscle problems!!! I dunno :-/
cabonick Burnfeet
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Burnfeet cabonick
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The muskeletal doctor I'm seeing, to rule things out and possible tarsal tunnel, do MRI show nerve damage?! Is there any away of seeing neuropathy issues, if that what is is!!! I get burning pain, can't stand up for more than 20 mins on the spot so weakness, disabling pain witch gets worse with standing if sat down they just burn, and it's getting worse, but every test says it I'm fine?! Do I need to see another department?! Thank you
annie1963 Burnfeet
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I have had the same condition with pretty much the same results. Nerve tests, MRIS on my back to see if it was nerves being pinched in my back. Xrays and mris oN my feet. Nothing. Tests for diabetes, you name it, I've had it. The only thing that has helped me, and it's minimal, is a medication I take for anxiety and stress. And I had to go to a psychiatrist to get it!! Supposedly mine is a reaction to stress called conversion disorder. I had a sort of mental break down when this first started and got so bad I couldn't deal with it anymore and had no answers. There was stress coming at me from every possible angle. This may not be you situation. This is just my experience. Good luck.
joanne43338 Burnfeet
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Have your vitamin B-6 tested. B-12 and D is good too but I B-6 is what fixed my burning and tingling and foot problems. I was diagnosed with plantar faciitus, poly neuropathy after nerve conduction study, prescribed gabapentin and took tramadol, prescribed numerous physical therapy and I finally came across a doctor that checked my B6 and after 8 years finally this deficiency was the problem. Take super B complex and 1 additional B6 and it solved my problems. My B6 was 13.8. Suppose to be between 20-126. For the life of me I can't understand why this wasn't checked by the multitude of docs I had seen for this burning, tingling, pins and needles, cramping in calves and foot imobility pains I had been feeling!
joanne43338 annie1963
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Alot of these posts and no ones getting their B7 checked! Get B6 checked. That was my fix. They don't normally check it. Also check all your B levels. I was low on vitamin D too but it was the B6 that took all my symptoms away! Good luck.
joanne43338
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icecool annie1963
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annie1963 icecool
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the drug is Xanax. I started out at .5 x 4 a day as needed. Then I cut back to 3 a day. Now I am at 2 a day but its sorta edgy. The psych doc said I was going to have to come off of it completely because of some new bs by the FDA. I don't think she realized what this crap did to me 3 years ago. I tried to commit suicide because my feet hurt so bad. Sorry it took me so long to reply. I did start taking B12 and vitamin D and a multi vitamin. No difference.
Margot49 joanne43338
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You have any side effects from the B-6. I have read you have to be careful dosing that. I picked some up but haven't started it. I was low in B-12, started that and it came up but no change in the neuropathy.
Margot49 annie1963
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