Buring feet/over sensitive to heat and feel like giving up
Posted , 20 users are following.
Gradually building for the past 10 yrs is the feeling of hot feet when they are exposed to any heat even just wearing shoes an socks. When its really bad I get thst neefle feeling. If i dont wear shoes or socks im at my best. Can't wear shoes or sock for more than a few minutes. Best i can describe is it feels like someone is holding a hairdryer to my feet. Been seeing a neurologist for the past 5 yrs. Even traveled to NYU to see one.
All the blood work comes back neg. Been on lyrica, neurontin, elavil, cymbalta, topamax, trokendi, horizant, depakote, creams, melixitene and now lamictal. None have helped. This year has gotten worse to the point I cant have my feet under the covers at night. I look at people every day and am so jealous they can wear shoes. Im stuck with crocs and flip flops. Im 44 and need to work another 20 yrs. I'm a nurse to boot. A fan on my feet or slamming them in a wash basin of ice is all that helps. They seem to think its small fiber neuropathy. My kids get me thru each day but it's taking a toll on my mind. Advise?
5 likes, 88 replies
Burnfeet cabonick
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Hello there I'm new to the site, I've been prescribed amatriptyline 10mg for a burning/numbing/ disabling pain in both my feet I've had lots of blood tests an X-ray plus recently a nerve conduction test, for a possible tarsal tunnel diagnosis, witch I am awaiting results, The pain is worse when I'm at work placing pressure on my feet!! It's almost disabling very scary!! I'm scared I won't be able to work anymore! And these tablets are not exactly making me feel great! I'm worried for my future, and not sure weather to carry on with the amitriptyline or not. Will it be a cure or just a pain reliever!!! So Will I end up on it forever, if no cure is found for my burning feet, would like to talk to someone who has same problems?! Thank you :-)
cabonick Burnfeet
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Burnfeet cabonick
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Hello there mate, I'm Tom! Nice to find someone with similar problems, I'm an engineer and depend on my job! Life's just getting harder and harder, with the pain getting worse and worse, I'm 27 and used to be very very active! Now I can go swimming and that's my only option of excessive due to my feet constantly burning, especially after 10/20 mins standing, then that's it!! There on fire :-( have you been diagnosed as yet, they have not found a diagnosis for me yet, feel like I'm fighting a losing. Battle things just go so slowly with the doctors etc
Margot49 Burnfeet
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I am not exactly dealing with what you are dealing with but have had numb big ties fir over a year and then the burning started in the soles of my feet. First suspect is usually diabetes. I am not diabetic. A drug that is often prescribed, and seem to help some people, is Gabapentin (which I was already on for GI issues and still am). You probably need to see a Neurologist for testing. Always a chance it could be caused by a spinal issue. My initial testing was inconclusive and I was referred to a Neurologist at Stanford. He repeated his own testing, did not think it was from my spine. He then ordered punch biopsies be done. They took 3, one from the top of each foot and one from my upper thigh. These have to be sent to a special lab (mine were sent to New York) and results take about 2 weeks. I was diagnosed with small fiber neuropathy. You might want to look that up. Many doctors, including my own, have never heard of it and don't think to check for it, but probably see it more often then they realize. I was referred to a pain clinic but don't choose to take any more drugs then I do now. Sometimes, the cause cannot be found and is diagnosed as idiopathic neuropathy.
Burnfeet Margot49
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Thank you for your reply, I've been on amatriptyline nearly 2 weeks now but after the experience I had last night, think I'm going to stop taking it, my heart was racing like crazy all night, didn't get any sleep was quite scary!!! Yes this sounds similar to my problems, sometimes my feet are burning and sometimes there very numb or both, very painful welts trying to work!!! Yes I will look in to small fibre neuropathy!!! What's a punch test? You mentioned thanks you
Burnfeet Margot49
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So is there a cure, for idiopathic neuropathy or small fibre neuropathy or is it's just a case of taking medication for pain relief!! :-/
cabonick Burnfeet
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How about this, I'm a nurse I need my feet or I got nothing. There isn't really any true diagnosis for small fiber neuropathy they can diagnose with an EMG full neuropathy. From all of what I read sounds like small fiber has worse symptoms but in the long-term Fulmer apathy is worse as you could lose mobility and have muscle wasting. What I found with me with the multiple doctors I've gone to is they seem to take a good history of me and they base it on that. Since I've had a negative EMG study twice they think the small fiber neuropathy. Then I had a skin biopsy which in layman's terms said there's a strong possibility I could get it down the road yet it's inconclusive if I have it now. I remember my doctor being disappointed in saying that's kind of like saying your a little bit pregnant. Mine started about 10 years ago in his gradually worsened. Cold weather certainly helps me and the summertime is just the worst
Margot49 Burnfeet
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Oh, forgot. One of the first things the Neurologist at Stanford did was check my B-12. I had been tested here but was in the low range of normal so my PCP said it was OK. The Neurologist told me to take a B-12 supplement, helped me a little. B vitamin deficiencies can cause neuropathy so ask your doctor to check, just a blood test. You could try taking the B-12 or a B complex. My circulation was checked and that is ok. So, no real answers for me so, for now, I am in the idiopathic class. The Pain Clinic wanted to prescribe Lyrica, in place of the Gabapentin, but I refused for now. I am managing ok right now.
Burnfeet Margot49
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Yes I've had a few blood tests, including B12 tests all fine!!! So I'm in the same boat as you, still looking for a diagnosis, I have started taking vitamin b-complex anyway recently just in case, and also omega 3 fish oil!!! I decided 2 days ago to stop the amitriptyline, I could only handle it for 2 weeks and I know it takes longer for full affect but the side effects were just to much for me to handle!! And I don't think I would of coped at work, going back on Monday! So would like to be drug free, but now I cannot sleep, I'm having withdrawal symptoms from just 2 weeks! At night my hearts just pounding like crazy and sleeping is impossible! So I'm glad I stopped it early! Its a very powerful drug!!!
Burnfeet cabonick
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Burnfeet
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Hello Cabonick recently had a nerve conduction study and a MRI scan on both feet, witch I was really looking forward to results I fort finally I may have some answers but apparently everything is normal, witch I know is good! But unfortunately. The pain won't be relieved yet!!! There sending me to a back specialist next!! To see if that's effecting my feet in any way!!!
Jeffbox Margot49
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I read a medical journal article that you may want to read called Gabapentin Induced Polyneuropathy.
I developed carpal tunnel and concurrent ulnar nerve entrapment at the wrist and the neurologist prescribed gabapentin to help with the pain.
The gabapentin helped with the carpal tunnel forearm pain, but I noticed my hands became much more sensitive. A week after taking gabapentin my feet (which never had problems) started tingling. A week later my feet started burning and a week after that my left foot started dragging when I walked. At that point I started a one-week “taper” of gabapentin from 900 mg a day to completely off the drug in one week.
My feet continued to get worse for approximately 2 to 3 months after stopping and then they started getting better, just like the person in the journal article listed above. After about four months of slow improvement, my symptoms got worse again. My feet have continued to get worse for the past two months.
All of my symptoms seem to point toward gabapentin induced small fiber neuropathy, and I am getting a skin biopsy in early March.
joanne43338 Burnfeet
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joanne43338 Margot49
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joanne43338 Burnfeet
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joanne43338 Margot49
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Have your B6 checked. Mine was B6 deficiency and I am now symptom free after 8 years of doctors, mri's, gabapentin, physical therapy, you name it.
joanne43338 Burnfeet
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joanne43338 Burnfeet
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joanne43338 Burnfeet
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