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Burning Mouth Syndrome?

Posted , 12 users are following.

elaine62759
elaine62759

Hi I'm going through the dreaded menopause and last year developed dry eyes. Now I seem to have a problem with a dry mouth and sore tongue. My tongue feels like a piece of sandpaper and sometimes feels sore as if it has been burnt. My doctor has been no help at all and my dentist has now suggested that I might have burning mouth syndrome. Does anyone else have anything similar? Can anyone suggest what food or drink would help or be avoided? Is there anything else that might help? Any advice would be greatly appreciated.   

0 likes, 38 replies

38 Replies

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  • sue28162
    sue28162 elaine62759

    Posted

    Oh my god me too!!! It is driving me crazy. Does it tingle? 
    • elaine62759
      elaine62759 sue28162

      Posted

      Yes - it's like a cross between a burning feeling and a pins and needles sort of tingling. It's good to know it's not just me. Was starting to feel like I was going mad!

    • sue28162
      sue28162 elaine62759

      Posted

      Me too me too! I would ask everyone and anyone if they ever had this feeling. And they looked at me as if I was bat crazy. It drives me crazy. Well now I know I don't have to put myself into the loony bin 

  • Jokey
    Jokey elaine62759

    Posted

    Hi Elaine, yes I have been through it and still have it to a certain degree.

    It is hideous isn't It. I just could not understand what it was at first and

    I was at my wits end, no one could help, it upset my husband as he didn't

    know what to do and the doctor, who was sympathetic, had no ideas either.

    I went through a really bad time with it.

    Firstly I used to suck ice cubes which gave a bit of relief. Mouthwash used

    occasionally and probably the best thing was sucking polo mints and

    chewing gum. Now this all helps but unfortunately I couldn't find a cure for it.

    All I can say is it will get better and the best thing you can do besides these

    remedies is try not to get too stressed or anxious about it, I know that is

    easier said than done, but it will make it worse. Hope this helps you, let me

    know how you get on.

    All the best.

    • elaine62759
      elaine62759 Jokey

      Posted

      Hi, I've found chewing gum helps a bit too. Tried a normal mouthwash a few weeks ago and my tongue went really swollen up so had to go to hospital. Then saw a doctor who hadn't a clue what was wrong with my mouth and gave me antihistamines (which give you a dry mouth!!) and told me to see my dentist who suggested it could be burning mouth syndrome and to go back to the doctor. Saw a different doctor who said she'd never heard of burning mouth syndrome and to go back go to dentist! Also gave me eye drops I'm allergic too.  Am so glad I came on here and now realise there are others like me. Everyone else I mentioned it too just look at me blankly and don't understand.

    • Jokey
      Jokey elaine62759

      Posted

      Yes, even my children (adults) while very sympathetic, thought I was imagining it I am sure. Everyone thinks you are nuts don't they!

      You have really been through it! Doctors haven't got a clue have they?

      Keep your chin up ( that wasnt a pun) 😁😁

    • elaine62759
      elaine62759 Jokey

      Posted

      It doesn't help when most of the good doctors at my practice have now retired and anyone I see looks about like they should still be at school!!

  • monique_93857
    monique_93857 elaine62759

    Posted

    Hi elaine i to had all the above it goes away after a while even the dry eyes i did it all natural the only pill i have is my blood pressure thats it all these horrible symptoms come and go the health anxiety was my top worst but has went away thanking god the only thing i suffer with now is the aching shoulders but trust me I've suffered from a-z every blue moon the anxiety trys to peak but i get up and get to moving so keep faith there is a light at the end of the horrible thong we call menopause

    • elaine62759
      elaine62759 monique_93857

      Posted

      Hi Monique, I'm glad to know there is light at the end of the tunnel! I don't like taking medication either and managed OK with fan for hot flushes, relaxation CDs for anxiety, a bit walking and yoga and trying to eat a better diet but last year my eyes got so dry I could hardly open them. Tried loads of eye drops which seemed to be making them worse then optician told me I was probably allergic to the preservatives in them. I found an preservative free eye ointment which was great then they discontinued it! Tried using nothing but my eyes got a lot worse again so tried another eye ointment and drops which don't help and irritate my eyes and now my mouth isn't right either. Will be so glad when it's all over!!

    • Jokey
      Jokey elaine62759

      Posted

      I have the fan on at night all the time, even in the winter when it is cold.

      You look to be doing everything right. I wonder what the ladies who don't suffer are doing right.

      My eyes do get dry and sore but nothing like you are experiencing

      but the mouth thing has been a nightmare. I hope we all feel great when its all over!

    • elaine62759
      elaine62759 Jokey

      Posted

      Maybe some people are just lucky and don't suffer so much. I open the window and put a fan on at night too, even in winter, and it drives my husband mad - he thinks I'm nuts!! 

    • Jokey
      Jokey elaine62759

      Posted

      Haha! Yeah I have the window open too. One minute I have the

      duvet up around my neck next I am throwing it off, then 10 mins

      later back on again. Do you sometimes get a wierd anxiety feeling

      before a hot flush? I used to get butterflies in my tummy before

      One. I get this anxiety one about 10 mins after I just got to sleep.

      I would be interested to know if anyone else experiences this.

      I think I am keeping my husband awake too!

    • elaine62759
      elaine62759 Jokey

      Posted

      I often feel like my heart is racing and I can't breathe when I am about to have one like I'm having a panic attack. Think it's worse when lying down. I sometimes get up and wander about to try and calm down and cool down. I've even gone and stood in the garden a minute to cool down. At least the neighbours won't see me - they'll all be all tucked up in bed fast asleep - lucky them!!

    • monique_93857
      monique_93857 elaine62759

      Posted

      Awwww hang in there it does get better not saying its all peaches and cream i still have days but no where near how it use to be so hang in the elaine i bought drops they worked well costly but well worth it.
    • monique_93857
      monique_93857 Jokey

      Posted

      Very common to get the feeling in your stomach before a hot flash i would get a weird feeling in my boob lol then here comes the hot flash
    • Jokey
      Jokey elaine62759

      Posted

      Well Elaine that is exactly what is happening to my sis-in-law. She gets up and goes into the garden at three, four in the morning to cool down. Must tell her about this forum, it might help her.
    • Jokey
      Jokey monique_93857

      Posted

      In your boon? Well that's a new one lol! My sis-in-law gets the stomach thing too. Maybe she gets the boob thing too

    • elaine62759
      elaine62759 Jokey

      Posted

      Glad to know I'm not alone. Should start a late night ramblers club!!

    • Jokey
      Jokey elaine62759

      Posted

      Why not we not gonna get any sleep are we lol😀

    • junieju
      junieju Jokey

      Posted

      What is sleep, lol 😀😀💤

    • Jokey
      Jokey junieju

      Posted

      Now going to bed to put myself through it again! 😴😴😴(hopefully)

      😊

      Night all hope you all sleep well tonight.

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