Burning Mouth Syndrome

Posted , 9 users are following.

Hello ladies,

For quite a while now I have been suffering from burning mouth syndrome, along with burning/ intense heat literally throughout my whole body.  Long story short, I've been to various medical professionals, including a Menopause GP who has put me on Everol Sequi HRT to try and alleviate the body and mouth burning. 

I'm only on half patches twice weekly for the next 8 weeks as I have endometriosis and I'm on week 3 of the estrogen only patch. 

Up until yesterday, I didn't feel as though the patches were making any difference but yesterday and today, my mouth feels worse and I'm panicking that the patches are starting to not agree with me :o(

I've seen from previous posts that there are fellow BMS sufferers out there, can anyone share their experiences with me to try and calm my anxiety and give me some hope that there's a chance the BMS will eventually get better?  I really want to stick with the HRT to see if it's going to work but unsure what to do...

Thank you ladies x

1 like, 9 replies

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9 Replies

  • Posted

    HI not sure about the burning mouth , but I have been given HRT yeaterday 50cm patch,have you had any side effects from the patch at all, I am 58, and menopausel, how old are you if you don't mind many thanks,

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    • Posted

      Hello Susan,

      No, I haven't had any side effects yet from the patches, apart from potentially making my mouth worse yesterday and today but with BMS I've had not so bad and bad days (I can't say good days as since I took it a couple of months ago I haven't had any good days!) so maybe it's not the HRT giving me issues?  I'm only on half patch at the moment so 25 mg instead of the 50 mg but so far, no worrying reaction to the patch.

      I'm 50 years old, knocking on the door of 51 ;o)  my issues all started just after the New Year and I've spent 6 months trying to work out what's going wrong in my body, probably like everyone else on this forum ;o)

      I'm glad you're not suffering from BMS as it's an absolute misery to have, and for what I've read, there's no guarantee you can get rid of it so I'm hoping some knowledgeable ladies on here can share some success stories and give me some hope that come time, I will feel better as my GP isn't giving me any hope at all! ;o(

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    • Posted

      Hi Pam!  My hot, burning mouth started when I was about 47. It seemed to start overnight or maybe it was gradual and I just did not notice. It progressively got worse and I found that I started sucking hard on my tongue as well because my mouth was so irritated. I did not realize until about a year ago that it was probably a symptom of peri-menopause, which I'm just assuming it is. I found I had to change my toothpaste because over-the-counter pastes make it much worse. I use Natures Gate (from Amazon or Whole Foods) and sometimes Sensodyne, otherwise, it gets much worse. I'm sorry to say that I still have hot dry mouth. It is not as bad but it's absolutely still there and I'm almost 54 now. I'm post menoupause (no period for 1.5 years) and I'm dry "down there" as well, and while last spring I had some hot flashes, this past spring I had them about 15 times a day, EVERY day for almost 4 months. That created a deep depression and honestly, very dark thoughts, if you know what I mean. Thank god the hot flashes have waned and now they are what I call "warm fronts" and they are tolerable. But I'm always warm and it's just awful. I tried Black Cohosh to no avail. I have no insurance, so I don't take anything for my symptoms. Over the years, not one doctor or dentist could tell me what the problem was...not one even suggested it could be peri-menopause!  I have NO trust in doctors at all. Sad. Try a new toothpaste (with no flouride, SLS, etc) and I hope that will help you. I don't think my issue will ever go away completely and while it sucks, and I try new products, I've come to accept it. 

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    • Posted

      Hello Kazjo,

      Thank you for replying, my heart goes out to you as it sounds like you are having a tough time, I know what you mean about the dark thoughts, I go there from time to time also and it's hard to get yourself out of that way of thinking, but somehow we always manage.  I don't think there's anyone more resilient than a menopausal woman ;o)

      My GP has been pretty useless as well, although my Dentist did mention BMS to me before my symptoms got really bad, so at least he had a half decent idea of what was going on!  I had to go private to a Menopause GP to put my mind at rest that what I was experiencing might be the menopause as my local GP refused to entertain the idea. That conversation alone with the menopause lady helped lift my spirits, I'm far from feeling better but at least she reassured me that I wasn't going crazy nor was I alone in what I was going through.  And of course, all the wonderful people on here taking the time to share stories, offer advice and provide huge support makes such a difference when you are feeling low, so thank you ;o)

      Wishing you a lovely weekend x

       

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  • Posted

    Sorry to hear that. I had BMS about a year ago. I had no idea it was to do with perimenapause at first I had it almost a year. The gp wasn't helpful and didn't say or give anything for it. I just had to get on with it. It almost stooped now. I occasionally have it but it was worse last year for about a year. Hope your one disappears sooner.

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    • Posted

      Hello Imagine

      Thank you for replying :o) it’s a pretty miserable symptom that’s for sure. I don’t know anyone else that has it or has had it so I felt quite alone until I started reading this forum. I’m sorry you’ve had to go through this misery too but at least you have come out the other side and feel better. I hope you don’t mind me asking but were you on HRT at the time you had it? I’ve read a few comments that HRT helps but i guess everyone comes with symptoms differently? 

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    • Posted

      Hi Palm, I am not on any medication. Due to my health history I am not allowed HRT. I think HRT works wonders for some women and cures only some of the symptoms for other. Or it doesn't work at all for some ladies. It is not fun going through different symptoms all the time. Take care. I am sure your BMS will stop one say, hopefully soon. All the best

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  • Posted

    I have had BMS. It was my very first troubling symptom that sent me to the Dr last year. I went to an ENT thinking I has some sinister issue with my toungue or mouth. My toungue and other parts of my mouth would burn and feel like I had burned them on something too hot. Such and awful sensation. Of course, it was nothing serious and he diagnosed me with BMS due to menopause. I stopped eating anything with mint and stopped all caffeine. It didn't really help. Within the next month or 2 I started developing other peri symptoms that sent me to a Gyn that specialized in hormone replacement. She put me on BHRT. The BMS was one of my symptoms we discussed and she told me they really don't have a cure for it. She mentioned Xanax is how they treat it but I was not interested in that approach. The BHRT didn't suit me at all! It made me feel so much worse and didn't help any of my peri symptoms! It didn't make my BMS worse, but didn't help it either. I came off the BHRT and am now battling through peri on my own.  I now only have the occasional bout of BMS and it only lasts me a couple hours usually. It's also not as intense as it was initially. I am sorry you're going through this symptom. It makes eating unenjoyable and while it doesn't sound that bad... everybody has burned their toungue on something hot before, right! But when it is chronic it will drive you crazy and cause anxiety and frustration. I wish I had some advice on something that worked for me. I hope yours subsides soon. Big hugs. Hang in there. 

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    • Posted

      Aaww thank you Audra, yep every days a battle at the moment, most days I cope but I get anxious now and again and that’s another horrible symptom! I guess I’ve no option but to accept it for what it is and hope it runs its course. I took an intense burning through my whole body first, numb hands when I would wake up and then the burning in my mouth started. The burning in my body is about 80% better now so I’m hoping my mouth will follow suit! 

      Thanks again for your input, it’s much appreciated.

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