Burning pain in arms, down rib cage and legs.

It's Small Fiber Peripheral Neuropathy.

Look it up. It can go into remission for months or years and then return.

I gave it too. After three years of hell it calmed down and then after a bacterial infection in the body due too a comprised amunine system (Addisons disease) I'm now on fire again.

Some days are worse than others. I'm trying a new route this time, I'm seeing a specialist that tries to get to the route cause.

He is investigating metal poisoning.

A lot of these Neurological disorders are now being linked to various toxins.

We shall see

Darlene.

Hi thanks for your comments. I have since had a skin biopsy to check for small fibre neurology as it was suggested to me by a neuropshiologist. I have the result and it is normal. No small fibre. I have asked for another biopsy ( against the neurologists advice) from my thigh as this will check for non length dependent small fibre neuropathy which is what I think I have although the neurologist is adamant that it too will be clear. So we will see. You see my problems started in the back not in the usual place which is the feet. I had the biopsy from the ankle because I have had symptoms there too,but the result was clear.

I have just started pregabalin and I have only taken two tablets and I can already feel a difference.

Please keep me updated with your findings. Thanks.

I have jus

Your symptoms sound really similar to mine.  I have what I call prickly nerve shocks all over and burning in back, legs, and feet at times.  I've had all the tests as well MRIs, MRAs, EMG, bloodwork and neuro tests are all normal.  Mine symptoms started after a severe month of stress leading to a 6 week headache and then visting a chiropractor for one adjustment.  I felt the symptoms immediately.  

Do your symptoms occur consistently?  I feel shock feelings 24/7 pretty much every second and is sporadic all over

 

Hi the symptoms in my back are pretty much there all the time. At night when laying on my back it really calms down as so the other symptoms. When I wake in the morning they are virtually not there, but the moment I get up the symptoms wake up and then by mid day they are in full flow.

When I put clothing on my arms legs tingle, burn and prickle. It's awful. I have just had a skin biopsy done to look for small fibre neuropathy but the neurologist says it's all down to stress. The skin biopsy was clear and although I do have symptoms in my legs I have insisted I have another biopsy done. I asked for it to be taken from my back as this is by far the worst area and also where it started but was told by my neurologist ( after him speaking to the lead pathologist at Kings College Hospital) that they cannot take it from the back as this would give an inaccurate reading) I can have it taken from the thigh so I am currently arranging that.

Please keep in touch and let me know your progress and I'll keep you updated on mine.

I am currently taking amitriptiline and have just started pregabalin and it is really really working.

Take care of yourself and try and stay positive. I really feel for you and I know exactly what it's like. Always here if you want to chat.

I've looked into small fiber neuropathy and it does sound very similar to what I'm experiencing as well as peripheral neuropathy.  I had a neurologist appt 2 weeks ago and they did a blood work-up for peripheral neuorpathy and checked B12, diabetes, copper, protein but all came back normal. I'm worried mine is idiopathic and will not have a clear answer as to why it's occurring.

I'm glad you say the meds are working how long have you been on them?  Do you think this has alot to do with stress/anxiety? We both seem to have this in common as my symptoms started after a month of extreme anxiety first with a horrible headache and then after the chiropractor this electric shock feelings all over.  It's crazy for me to think these physical and unbearabley painful symptoms could be just from anxiety but that was the precursor to my physcial symptoms.

I have another neurologist appt today so will keep in touch

Hi yes I had a lot of stress before this all started. My neurologist had told me about a case he had where a 16 year old boy was brought in on a stretcher paralysed from the neck down. They did every test available but nothing could be found. He was sent home with no diagnosis except severe anxiety where his body just shut down.His grandmother took care of him and two years later he was completely healed. Can you believe it, its crazy what the body can really do. But the hardest part which even after seeing 5 t, a neuropchatrist ( sorry for the spelling) and a pyschatrist and also a neurophysioligist. The neurophysiologist suggested a skin biopsy to check for small fibre neuropathy. So I had the skin biopsy just above the ankle where I have had burning but it came back clear. I am now arranging a thigh biopsy which should be done in the next couple of weeks. I am also trying to find out where I can get a biopsy in the back done. Everyone thinks I should just accept the results I've had but I too want answers.

The medication I am on is 40mg of amitriptiline and 50 mg of pregabalin which I started three days ago and the pregabalin is taken twice a day. I would really urge you to try it because I only started the pregabalin last Tuesday and the difference is amazing. Yes I will look forward to you telling me how your visit went. I would give you my telephone number but I don't know how to put it in the private messages. Please keep in touch.

Hi I've been on the amitriptiline a year and a half and just started the pregabalin this week.

Sorry the hardest part for me is accepting it. Perhaps if you know how to put your telephone number in the private messages I could call you. Anyway good luck with your appointment.

Yeah I agree the hardest part is having to accept they can't find anything wrong when we are in so much physical pain.  I've had numbness in my feet and stabbing pains lately as well as the electic shocks all over my body constantly (feel something every few seconds) and have had no relief from sleeping lately.  I think some of this has definielty occurred due to intense stress/anxiety but I can't get my mind off the pain because it is so constant and unconformable.  I feel like they will just give me pain meds today and not be able to tell me what's really going on, will let you know

I live in the US but do have relatives in England.

Hi I am so so sorry to hear you are in pain. I know what it's like. I have been suffering for two years like this. It's so hard to explain to anyone what it's like. It becomes very very lonely. I will let you know how I get on with my biopsy later this month.

I just want my life back. It's like its been stolen. Feeling a lot better though after starting the pregabalin.

Take care and keep me updated with how you are doing.

By the way I think pregabalin is called Lycra in the US.

I had my appointment and they prescribed gabapentin which is the similar to pregabalin.  I'm hoping it works and I get some relief.  They pretty much told me nothing is strucurally wrong with my spine and brain so the pain I'm experiencing is likely from stress/anxiety.  It's just hard to fathom this constant pain could be from worrying myself over my own health.  I definetly think the chiropractor aggrevated my nerve system which might have been in a senstive and stressed state

Hi yes I think gaberpentin is very similar to pregabalin.

It hasn't been such a good day pain wise. I went to bed last night worrying about my symptoms and woke up with burning all over. It's so frustrating because life can bring stresses and if this is what happens when I get stressed well I don't know where it will end. Or if it will ever end

I am still struggling to accept that anxiety is causing all this and of course this is not helping my symptoms. I am currently trying to arrange a skin biopsy in the back but this is proving difficult. Goodness knows why. But I will persevere.

I will keep you updated. Please keep me updated as to where you are at. Take care.

What disease of gaberpentin are you on?

Sorry that was supposed to be doseage.

100mg 3 times a day. Just started yesterdy

Hi 20208,

I hope you felling better by know.

I have the same symptoms like your for 7 mounts and just like you my symptom calm down when i sleep... I also do mri brain and neck and blood test etc... So far everything came back normal... Im also waiting for result of skin biopsi and just like you i expect it to be normal beacuse i think this is early stage for SFN to show up...

Its very rare to find a person who have the same symptom that we have and i think it will be nice if we can share our Experience...

Wish you all the best...

Hello evryone,

An update... 5 mounth ago

I get the result of the biopsy and they show that i suffer from SFN (Small FIber Neuropathy) so far they can't find the cause for that...