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Burning sensations in both legs

Posted , 6 users are following.

tina63800
tina63800

Hi everyone, I have had several knee surgeries in the past year. Im still having issues. One thing I have noticed a couple months back is when I lay down in bed. My legs are in fire. They are not to the touch? It does it sometimes during the day,but mostly every night at bedtime. I get so irritated I get out of bed,strip down and turn a fan on. They are still burning. They don't tingle or nothing but any answers would be helpful. This is interrupting my sleep and are awful. Thanks Tina.

0 likes, 30 replies

30 Replies

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  • cabonick
    cabonick tina63800

    Posted

    Surgery to both knees? Burns from where to where?

    • tina63800
      tina63800 cabonick

      Posted

      Hi cabonick, from my hip all the way down. They are hot to the touch and are on fire. It's in both my legs. I have had the patella femoral realignment , scopes and total kneecap replacement on left knee. My feet are ice cold all day. Once I go to bed from my hips to my feet are hot. I don't know what this is and it's been overlooked in spite of the great deal of pain I deal with. I just wander what it could be now? Thanks,Tina.

  • denisep911
    denisep911 tina63800

    Posted

    I have the same issues with the burning feeling of the legs

    I have fibromyalgia and dr again said that there's no cure.

    • tina63800
      tina63800 denisep911

      Posted

      Hi denise, I was diagnosed with fibromyalgia years ago. Is this a sudden onset of it becoming worse? I didn't think it could get any worse than it was? Geez, this disturbs me because your right. There is no cure. I use to think that Drs diagnosed people with fibromyalgia because they didn't want to rule out other things first. I had been told that I had it and there was underlying issues that layed undiagnosed for a while.I was suffering from some serious knee problems. Just wow.

    • mandy77480
      mandy77480 tina63800

      Posted

      Hi Tina

      I thought I'd replyed to you then realised I'd replyed to myself.

      If you look further up the discussion you'll see.

    • denisep911
      denisep911 tina63800

      Posted

      Hi Tina I also have Pmr and also was diagnosed with lupus but fortunately I don't have the symptoms of lupus so that was misdiagnosed

      My pain and fatigue comes and go so the last couple of days I have been feeling well. Can't tell you why 🙀

  • PATRICIA_55371
    PATRICIA_55371 tina63800

    Posted

    oh i have a lot of what everyone is talking about.. scary i cant have nothing covering my legs at night or it hurts if i do. so very horrible.. if i pic a sore it burns like someone is holding a match to my skin and it burns.. i also notice there not normal sores becuz they have deep holes, there not like normal sores..and again they burn.. i have to have a fan on at night for me to. my dogs jump up on my legs i almost go through the roof it hurts so bad.. i hurt really bad from my waist down there r most days i can barely walk.. i get this feeling on my legs,back,neck,chest and arms not much left is there.. ya if somone knows something or can help that would be great.. this is so horrible and no one understands either..thank pat
  • louis05594
    louis05594 tina63800

    Posted

    Hi Tina,

    I have the same thing . What I found very helpful is to take a bath with epsom salt and lavender. I usually stay about thirty minutes in the bathtube. I found big relief with this . I wish good luck . Please let me know if that works.

    • denisep911
      denisep911 louis05594

      Posted

      Hi I use epsom salt and it does work

      However I have a problem getting out of the tub 🛀

      Does anyone have this problem?

    • PATRICIA_55371
      PATRICIA_55371 louis05594

      Posted

      Ican not get down into my tub, so therte is no way i can do that.. i can only take showers..
    • tina63800
      tina63800 PATRICIA_55371

      Posted

      So I called my pain specialist and he told me I need to follow up with my Primary care Dr. They said it sounds more like a vascular issue. So I don't know? I will see what she says. Ugh I'm so tired of this. I wish I had answers and could understand it. It very well could be for all i know. They did cut both my legs in half and moved them over. I just dont know why it's happening now?

    • PATRICIA_55371
      PATRICIA_55371 tina63800

      Posted

      man i thought i was the only one out there dealing with this..so sorry u r going through this.. i know the pain that comes with it and boy does it hurt like hell..
  • richard58173
    richard58173 tina63800

    Posted

    Hi Tina

    I have same issue. As soon as I get horizontal, burning sensation in my toes! If I stand up, it goes away. Problem is I cannot sleep standing up. My neurologist has recommended Neupro patch which does work. The problem being it is very expensive. But at some point it becomes worth it.

    Richard

    • tina63800
      tina63800 richard58173

      Posted

      Hi Richard, My pain Dr is starting me on butan pain patch. It's a 7bday patch and u ts suppose to work 24 hours a day. My insurance doesn't want to pay for it. So they are gonna try to get a preauthourizatiin or change something? Have you ever heard of butan? I'm not familiar with it and I pray that it works.Thanks,Tina

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