BuTrans Patches - side effects - thinking of stopping taking them
Posted , 43 users are following.
I've been on BuTrans patches for 12 months for pain relief for my hip. I should have had a hip replacement on 30 July 2014 but had 4th heart attack on 16 July 2014 so obviously the operation was cancelled. (I fractured my hip 28 years ago in a horse riding accident and have managed without a replacement op till now - pain was really bad last year) I have been in hospital for the last week and was discharged yesterday - I have lost almost 2st in weight over the last 12 months. I am nauseous all the time have no appetite, I'm shakey and weak and dizzy. I've been trying to carry on and get on with life but have had chest pains which is angina caused by the fact that I am so weak I'm forcing myself to get up and eat etc and my heart is struggling. Hospital can't find out what is wrong with me - they have tried all sorts of tests including a body scan and more or less told me to get on with it - I have rehad Social worker calling daily to help me. Medication I'm on for my heart is Ivabradine to slow my heart down and Isosorbide to open my arteries, Clopideral and asprin to thin my blood and Ezetmebe instead of a statin. Hopsital say heart medication should not give me the symptoms I'm getting so only other thing can be the patches. Has anyone else had similar symptoms. What will happen if I stop using the patches - I'm desparate I will try anything I hate feeling so ill I just want to have some fun. I'm a young 68 and belong to loads of clubs and social activities - hospital want me to take anti-depressants but I'm not depressed and also concerned if I put more chemicals (tablets) in my systom, my body has also to get used to them too! Feedback would be very gratefully received. Thanks - Eunice
2 likes, 88 replies
david34561 eunice42724
Posted
I'm suffering the not appetite too.When my doc gave them to me he didn't explain they were a controlled drug.I'm worried too about restless leg when you stop.When I tried to stop before this is one thing I suffered with.
bernadette20048 david34561
Posted
Portland eunice42724
Posted
I will tell my story with Butrans in the hopes that it helps someone out there that is using or thinking about quitting Butrans. All these stories helped me when I was trying to get off. I am a 40 year old male with lower back issues which is why I was using them. After quitting them, I still think they were the best meds that my doctor could have prescribed although like some of the others, they turned on me about a year into using them.
Here goes: I started on the 5mcg patches and quickly moved up to 10mcg, then 15 mcg and finally 20mcg. They worked great, I wasn't high or loopy at all and my pain was gone. About 1 year into this treatment, I was at work one day and I experienced very bad anxiety quickly followed by depression, neither of which I had ever experienced. I went right into the hospital thinking I was having a heart attack. In the weeks following that first anxiety attack, I would experience these every week at least once and most weeks almost every day - even multiple times a day. I discussed all of these with my doctor - and agreed to come off of them at my own pace. I wasn't interested in being on pain meds at all after this, I just wanted off them. I did a ton of research and even called the number on the Butrans website for help. I stepped down from 20mcg to 15mcg with minor symptoms - some increased anxiety and depression. After I felt stable (usually 2 -3 weeks) I would make the decision to step down again and the same symptoms would re-occur. So I went from 15mcg to 10mcg and waited a month, stepped down from 10mcg to 5mcg and waited another month. This is the point where I panicked. I realized 5mcg to nothing was way to big of a step for me, I could not miss work. I had to find a way to get off this stuff without missing one day of work.
This is my biggest difference from every other story I had read. Butrans is an active matrix adhesive patch, meaning, they can be cut! I learned this from the Butrans website, googled and confirmed - and I finally realized after calling them that these patches put medicine into your body based on the surface area of the patch. So I cut a 5mcg patch in half and it lasted a week, put on the other half for the following week - it worked. I slowly cut my patches into smaller and smaller pieces until I realized one day I didn't need them anymore.
The first week was still blah. No energy with anxiety and depression. At the 7 day mark though, I had my first clear thoughts - the fog lifted. I was so ecstatic. I realized that I was going to be ok, I didn't have cancer and my life actually had a bright future. It's crazy the dark and deep depressive thoughts that I had that were so real at the time were now so wrong. I am now almost 3 weeks off the patch and while every once in awhile I get some slight, slight anxiety - all the symptoms are gone for the most part. My appetite is back, stomach issues are resolved, energy and interests in hobbies are back and my original back pain that hurt really bad for the first week and half is now bearable. I do find myself sneezing more often now but even that isn't bad.
I am really proud to say that I didn't miss one day of work throughout this entire process, it took 6 months to wean down and get off for me. This might not be the right way to get off these patches but it worked for me.
I did have my doctor get me gabapentin and some xanax in case the anxiety and withdrawals were just too much but I didn't need them at all. I also had a few hydrocodone that I took at night to sleep for the first 3 days but I actually slept really good throughout the entire time.
Thanks to all you that have written your experiences, it was a big help to me even though I stayed silent until after I got off these. God bless.
Portland
Posted
Just a quick follow up so you get a preview of my situation. I am very blessed, I am 40 years old and have been married to my beautiful wife for 22 years - we have 10 wonderful children and are an extremely close family. Our oldest 2 daughters are married (live near us) and we are blessed with 2 grandchildren. I got my dream job about 5 years ago - everything was going so so well. Neither me nor my wife drink or use any types of drugs, never have. None of these things make me better than anyone else, to put it simply, don't beat yourself up for being on these! It can happen to anyone. I got on these with the best of intentions, I need a clear sharp mind at work and at home.
My wife was absolutely awesome during my anxiety, depression filled evenings and I will forever be indebted and humbled by her sacrifice.
Karm1 eunice42724
Posted
Hiya, been on bu trans for 3 years for severe lower back pain. I can't move, walk or lie down without them but they. Also make me feel, jittery, sick, nausea, headaches infact you name it I feel it. How do you all voce with pain when coming off? Everything else has never worked on me. Started on 5mcg went up to 20 now back to 10mcg with a lot of naproxen aswell...
samdra29547 eunice42724
Posted
I'm so happy that someone took the time to write down ever single detail of the use of butrans . I have been experiencing exactly the same thing .I have been trying to do life pretending I'm fine but it's impossible. I started thinking it's all in my head . Until I read your post. THANK YOU.
Portland eunice42724
Posted
I just thought I would do a quick follow up on my post above. It's now been almost 11 months since I got off the butrans and things are going pretty good now. It was a really long withdrawal, when I posted 3 weeks after quitting I thought it was over. It wasn't. The anxiety and depression came back but with lower and lower intensity, also the time between them got further and further apart until I realized today that it's been a long time since I've had either depression or anxiety. It came in waves for about 7 months for me but at a lower intensity.... bearable. My appetite came and went along with some flu like symptoms... sinuses were plugged a lot. But... I'm feeling almost 100% now!! Almost there...
tori63563 Portland
Posted
karen91300 eunice42724
Posted
I'm on day 4 of 5mg Butrans patch for extreme fybromialga pain. I feel so sedated. Have never been on any pain meds before. Will this go away in time? If not not sure this will work for me as Chronic fatigue already a part of fybromialga symptoms.
Karm1 karen91300
Posted
im on 10mcg and the sleepiness and fatigue is always there. Sometimes I get scared if I’m in the car. The sad thing is I have breakthrough pain but can’t risk to go higher....
karen91300 Karm1
Posted
Thanks for your response. I'm going to give it one more week as with most meds. you need to give at least that amount of time but if fatigue doesn't go away I will talk to doctor about alternatives...or nothing.
allan54542 eunice42724
Posted
i have taken diazepam for 20 years (5 mg a day)
so have you any comment of what the next month should or may bring
will one item get better and what worse.?
look forward to comments
oh my doctor knows how to give the patches but has little knowledge about withdrawal timing Oh I,m 78
kingfisher27 eunice42724
Posted
Recently my doctor prescribed BuTrans 5 for chronic back pain as i had been taking Zapain 30 mg tablets.
I had the patch on for 29 hours but had to remove it. Because it made me feel so ill! Like a sick zombie with chest pains!
Such a bad experience...
kingfisher27 eunice42724
Posted
MY GP put me on Butrans 5 for chronic back pain.
I Had to take the patch off after just 29 hours as it made me feel so ill...a nauseated zombie with chest pains!
Surely there must be something better?
joshuapryce1987 eunice42724
Posted
Do what is best and speak to your doctor about alternatives.