Cabergoline causing restless leg syndrome
Posted , 6 users are following.
Does anyone have any experience with cabergoline causing restless leg syndrome?
0 likes, 17 replies
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Notes on Cabergoline causing restless leg syndrome
taylor31694
Posted
hello hello everybody. today makes three weeks since I'm taking my last dose of cabergoline. the extreme restless leg creepy crawling has stopped. but I do still have moderate intensive tingly nerve movements throughout my body. it happens when I lay down at night or when I sit still. My body feels like its moving on its own I should say. it's kind of hard to describe it's almost like an internal nervousness. my head is still kind of in a fog. the muscle aches and pains have gone away and most of the swelling has gone from my legs. my joints are not cracking the way they were. praying that within the next week or so I feel a lot better. thank you everybody and I pray that all of us get through this
susan3331 taylor31694
Posted
Thanks for the question and everybody's replies. They have all been very helpful to me. I have had a macro-prolactinoma for 7 years.
I have tried Cabergoline and it had the most extreme side-effects: Not restless legs, but everything else: dreadful hopelessness and depression, nervousness, drowsiness. Generally I felt completely awful, but the symptoms were more psychological than physical.
I was then prescribed Quinagolide which I have been on for quite a few years, and that seems better. Sometimes I feel sick and it has some other physical side-effects, such as constipation and indigestion, but not the dreadful despair that resulted from the Cabergoline.
I am in Melbourne, Australia, and I have just been told that they are no longer making Quinagolide.
I have seen an endocrinologist - I go to a hospital Out-patients Clinic - and he says that nothing can be done about it. There is no Quinagolide anywhere in Australia any more.
Apparently the drug companies just are not making it any more.
The endocrinologist has prescribed Bromocriptine, but I haven't started taking it yet. I am terrified of taking Bromocriptine, which could be worse even than Cabergoline.
Does anyone have any similar problems or comments? Is Quinagolide still available in England?
Hoping someone can help. Thanks