Calling for rain all day and my knee is driving me nuts!!!

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For the most part I try to be upbeat however today is not one of them. You know your day is going to stink you wake up in pain and as the day progresses it just gets worse. My only glimmer of hope is the specialist calls me back soon ( yesterday was good ) and says I need further testing or he needs more tests done. I hate waiting I absolutely hate being in pain I hate my ( fill in the blanks ) --- ---- knee. Most everyone here will more then likely be okay after a period of time a few might wind up like me ( hopefully no one!! ) but I get so jealous when I think of it. Sorry but just having a crummy day.

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17 Replies

  • Posted

    You don’t say how long ago you had op. I am 10 months out now from rtkr and most days I feel the same way. There is nothing wrong they say it just takes time. Most say it takes a year. I am just as disgusted as you. It’s funny I never was a downer till this surgery. I hope you feel better soon, both of us🙏🏻🙏🏻🙏🏻

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    • Posted

      Sorry but I thought some have read my saga with the L knee. 17 surgeries including 5 TKR's last was done 5-09-16. Currently waiting on call from new Dr. on whether I need more tests or to schedule surgery # 18. For some it takes 6 months some longer I am a tad over 2 years and there are days like today that just stink. If this was my first surgery based on what I know now I would expect my share of pain by the 6 months time frame things would be getting better and after a year life would be good however that is not the case.Putting it mildly it just stinks.

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  • Posted

    You don't say how far on you are from the date of your op. I'm 8 weeks today and I have good and bad days. Sometimes I wonder why I opted to get it done bits been done now I have to look to the day when I'll be pain free and it will come. So have patience we who've had the op know what you're going through and do sympathise

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    • Posted

      I think after 17 surgeries I would know what to expect from start to finish. Most of you will only experience TKR maybe once on each knee which is great I have been thru this 5 times now waiting to find out when the next one is going to be. Please do not take what I am saying as being rude but really my situation is a lot different I am very sick of knee operations taking pain meds being miserable due to the pain none of it is fun and I am human as well and somedays it gets to me today is one of those days.
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  • Posted

    I don’t know how long ago your op was.I am 4 months post tkr and I have regretted ever getting this op done.I have had 2 spinal ops and a thr and was fine after them but this seems to have made my whole body worse.
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  • Posted

    Not bad another cure for me but it also causes a headache is blasting my stereo at obscene levels. Earlier I was listening to the band Focus and the instrumental Hocus Pocus. It was loud enough my sofa was shaking widows were moving the remote in my hand was vibrating pretty intense. Its kind of cool when the floor and furniture shakes when I turn it up. This is not a cure for everyone but it works for me. Only problem after 20 minutes you get ringing in your ears.
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  • Posted

    Hi 👋🏻

    I just wanted to say I understand how it feels to be in constant pain I came on this forum approx 14mths ago really for advise which I got from some very kind people here’s my story I’m 53 high tibial osteotomy 2007 which didn’t work TKR 2012 then 2017 serious infection which nearly resulted in an amputation ( had antibiotics IV 12 wks & orally) had joint removed they were amazed I had been walking around working full time with the damage they found In surgery the joint virtually fell out my tibia & femur has lots of bone loss etc they said it had been there slowly growing probably since the previous knee replacement then leg fixed for 3months with cement  in leg brace 24hrs a day new joint April 2017 joint didn’t fit as my tibia is so small it became unstable & I was in constant pain my ligaments were also damaged so kept in leg brace 24hrs a day until Jan 18 had to just sit & rest it & wait for the healing process I another revision Jan so removal of the joint & another one put in this one is a hinged one with posts ( I’m in the uk & my surgeon applied for additional funding for me to have a bespoke prosthesis) it fitted perfectly got on really well with determination & lots of support I had to give up my full time job as too physical for me my joint will last 10 years so I decided to have a holiday once I felt well then look for a part time job. My consultant was so pleased at how well I have coped with everything & I was so happy with still having my leg then 2 weeks ago we went on holiday to Tenerife the day before we left I slipped on some water in the room and bang I knew something had broken arrived back in the uk next day went to A&E & ive broken my femur right above the new knee the joint is loose seen consultant he was really upset for me dependant on my CT scan results tom will decide if I need another revision or if it can be repaired I can’t have plates & pins because of the type of break either way I have to have another op am I the unluckiest person or what?im back on crutches no weight baring awaiting next stage  So I have days when I feel down with the pain and say this is so unfair but I choose to deal with it the best way I can by distracting myself with books tv knitting & knowing I will soon be mended again I wake up every morning and am great full for everything I have in life just be kind to yourself and know it won’t be for ever ( your pain) 

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    • Posted

      You have been thru a lot as well its too bad we live so far apart it would be nice for those like us to get together for support and understanding. I would love to believe I will be pain free but I do not think it will be in this lifetime. My hope being realistic would be better heck I would take 10% thats 10% more then I have now. As many surgeons as I have seen to a point they say the same thing when you have had numerous surgeries in my case all on the same knee the odds of being pain free are not good it might be better but not great. That is fine with me days like today when I have done nothing and I am miserable ( might be the change in weather its been raining since yesterday ) or when I over do it and for no reason at all and it hurts like hell if that goes away and pretty much stays constant vs going from normal to YUCK I would be overjoyed.
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  • Posted

    Venting is good..much better than kicking the cat. You can't go to jail for venting. I'm one that fully understands. I think back to my 1pth surgery when the had to take out the p prosthesis, put in the spacer, close me up and put on the soft cast and then told me couldn't do more than toe touch for weight bearing and no bend and then topped it off with the ' we'll see you in 4 months when you get your new knee'. You don't know if you should cry or scream or maybe alternate. Then they come in and put in a PICC line for twice a day infusions. Unless someone has been there they can't understand pain. When I think of this government opiate movement I just want to cringe. I think of all the people who I know that Are in pain, not junkies but truly in need that are go I g to be affected it is scary. I've already written to my congressman on the subject but of course, no response.

    Hang in there pal.

    I know with the pain in having now regarding my back issues all you can find try and minimize the pain any way you CA.

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    • Posted

      I hope no one has deal with a spacer and PICC line. Having a spacer in for 4 months was no fun. Mine was put in 12/30/15 in Feb 2016 Richmond Va had a blizzard where I had drifts of snow in my yard 2-3ft deep. ( for Richmond it very unusual )  I had a Dr's appt and I had to get the snow off of my car. My daughter helped as much as she could but lucky me as I was trying to get the snow off of the car I slipped and fell. ( with a spacer you can only bend it so far ) it hurt so bad I felt like screaming but since my neighbors were outside I kept my mouth shut and sat in the snow for 10 minutes. Spacers truly stink but I would rather have the spacer then that PICC line. Boy I hated it 2 times a day each time it took 2 hours. Unfortunately I complete understand and agree. I would hope most maybe not all do not experience multiple surgeries knee spine etc. Most will have forgotten what they went thru as time ticks on by after a year some will be pain free and really that is great. Then there are people like us I know for a fact the odds of being pain free are about slim and zero I have had too many surgeries. My goal to some may seem strange but I hope this time the knee gets fixed and if I only feel 10% better I will be okay with it. 

      Norman 

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  • Posted

    Can't imagine what you are going through but I do know about living with pain so I can sympathize on that point.  For most of my life I lived with migraines that were sometimes so bad that yes I thought about ending it all. Then in 2016 I had a heart attack and was lucky because it was the widow (or in my case the widower) maker but survived with just a stent.  After that no migraines!!!!  Doctors can't figure out why the migraines stopped but I don't care...they did.  

    Doctor's practice medicine.  Hopefully they will figure something out for you and you will be able to have something work for you this time!!!  Hang in there and don't give up hope.  

    Also as Chico Marx recommends in one of his post, keeping a journal may help you.  I started keeping one after my heart attack and really help me get though the depression that happens after a heart attack.  It has also helped me as a recover from my TKR.  

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  • Posted

    Hi again👋🏻

    I don’t know what the rules are in USA but I believe they are not too keen on giving repeat prescriptions for opioids here in the UK they are more sympathetic towards coping with the pain of knee surgeries I know I had oramorph for 6months along side other pain killers & it did help me with coping it was night time that I couldn’t sleep for the pain but I could have had more pain relief if I needed it. My surgeon is of the mind set that if pain killers help take them I wonder if you have adequate pain relief from your Dr we also can get referred to the pain management clinic at the hospital where they give you advise on pain meds & other complementary treatments. I know after my osteotomy I was offered oxycodone which I refused as I was told they were very addictive. Pain can drive you mad & it’s hard at times as you know I do hope you have a better day tomorrow hopefully without the rain😀

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  • Posted

     I understand totally and have the same pain level that you do! It’s so awful. I still limping terribly with a cane and have to use the scooter  at work and in the grocery stores. 

    It’s very tough.

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    • Posted

      I have seen the scooters that people use at different stores and based on the people that I see use them whether or not it would help I won't. It seems that most who use the scooter should be walking it would be a lot healthier. Depending on how I feel or how my knee feels will determine if I need my cane or not. Whats fun is when I go for a walk and then for no reason at all my knee decides to give out then I look like I am getting ready to fall. Only thing I can do now is wait for the Dr. to call.

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    • Posted

      I used one a couple of times when I had the spacer in and the soft cast on. I decided that neither the store or me had enough liability insurance.

      Keep hanging in there.

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    • Posted

      Hi Rolland I hope you and your wife are doing OK?? I can complain about my situation all day long but I know your is worse I really feel bad for your wife it must be hard. This weather is driving me nuts well maybe not me personally but my knee yes. We have had rain for the past 2 days and based on the weather it might be Wednesday before the sun comes back out.
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