Can anybody help me?! Doc says Migraine..???

Posted , 28 users are following.

Hello,

I am new to this so please bare with me and i apologise for the long post.

Im at 26 year old female.

Began to feel unwell end of February (approx. 27th)

 

Saw GP on 5th March. Symptoms:

·      Pressure behind eye

·      Shooting pains in head

·      Tiredness

·      Blocked ears

 

Outcome: Pressure behind eyes check and antibiotics given, possibly sinusitis.

 

(unsure of date) Attended A&E for ‘Blind spot and visual disturbances.

 

25th March, Still no improvement – saw GP. Symptoms:

·      Shooting pains in head

·      Blocked ears

·      Pain in eye

·      Tiredness

·      Dizziness (feels as if ground is moving)

·      Tingling in lips

·      Nausea.

 

Outcome: commenced taking Propanalol 12mg

 

(Unsure of date) Attended A&E during the night for numbness in left side of face.  (unsure of date)

 

15th April CT Scan

 

GP appointment following CT scan: All symptoms still present.

·      Blocked ears (most in the evenings)

·      Pressure in temples, side of face and jaw.

·      Nausea

·      Tingling lips

·      Dizziness

·      Fuzzy/ drunk feeling

·      Cold top of head

·      Numbness in left side of face

·      Feeling worse in the evenings and lying down

 

End of April – Nexplanon contraceptive implant removed. Most symptoms disappear except numbness in left side of face.

 

7th May, Appointment with Dr Gibson – Stopped taking Propanalol slowly.

 

2 ½ weeks later all symptoms return.

·      Numbness in face going down neck at times

·      Extreme tiredness

·      Shooting pains in head

·      Nausea

·      Fuzzy/drunk feeling

·      Headaches all the time

 

(Unsure of date) A&E attendance – Severe pain in right shoulder travelling down arm.

 

5th June GP Appointment- recommenced Propanalol.

 

8th June Symptoms noticeably reduce.

 

15th June: All symptoms return:

·      Numbness in left side of face, travelling down neck at times.

·      Headaches

 

17th June: Extremely bad day!!

·      Numbness in left side of face travelling down neck at times

·      Constant headache

·      Shooting  ‘electric shock’ in head

·      Severe pain in head that lasts max 30secs (comes and goes)

·      Feeling very unwell

·      Immense pressure in head

·      Very hot and sweaty at times

·      Neck pain

·      Nausea and a full feeling

·      Shoulder pain (fluctuating)

·      Hot poker feeling  left thigh through back of leg

·      Fuzzy (drunk feeling

·      Twitching in head or eyes (occasionally)

 

18th June Called GP – WORST EVER FELT!! Continually fluctuating day to day severity.

 

25th June - Called Orthodontist to enquire if fixed brace may cause migraine. Dentist assured me this was not possible.

 

I have monitored what I eat, daily activities etc and can not recognize a trigger.

Been commenced on Topiramate 50mg for the past 4 weeks with unfortunately no effect ( except awful side effects) due to see Neurologist again next week. 

Has any one experienced anything similar??

Thnakyou in advance

Robyn x

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  • Posted

    Did you get help with this? I'd say let a neurologist check you for IIH. It needs a clean MRI and they check the opening pressure in your spine with a lumbar punch.

  • Posted

    I’ve never typed in a forum before but I’m lying on my couch now instead of being able to take care of my children with a horrible migraine and I wanted to share my story. In hopes that it’ll help someone. Drs never try to understand WHY someone gets sick. Only try to diagnose and get rid of symptoms. If One dr in six years bothered to see what was wrong with me. I had very similar symptoms except my headaches Ddnt come in till the 6th year in my health journey. Guys I need you alll to please look into Lyme disease. After six years my mom told me to gets tested. Dsnt always show up in the blood and I was negative. Two weeks later by grace if Gd I decided at my well check to tell Dr my mothers suspicions about Lyme and he decided to take me seriously for about two seconds (this was a cardiologist bc I switched after having Heart Attack symptoms. Electrical pulses through my body left arm pain jaw pain and chest tightening ) I had 4 bands positive which according to the cdc you’re not positive. Well guess what. I was positive. Only way to really know is through getting TREATED. if you herx that’s how you know you have a bacteria and most likely a host of them who take over every system in your body and wreak havoc. I’ve been through hell and Back and still battling every day and unfortunately there’s not enough awareness. I wanted to share bc maybe just maybe ?? of you can benefit from this info. It’s hell to treat but there’s light at the end of the tunnel. It’s hard to keep that hope when you have chronic pain (it affects your brain too in regards to extreme anxiety and depression especially if your prone ) it causes night sweats you’d think you were menopausal and brain fog. I’ve had two ovarian cysts that burst bc of it. What I thought was food poisoning (nope just the flu like symptoms that come along that wreak havoc on your gi tract too) it basically an take over every system in your body. Oh and the muscle aches and bone aches. Not fun either. Worst part though is regular drs have NO clue about Lyme disease. You need to go to a Lyme specialist associated ONLYwith ILADS not cdc. I’m on the road to recovery and have made slow progress over the last year and prob have another  couple years to go but hey atleast there’s hope here. I want to pray that all of you suffering out there can find your answers to full recovery. Blessing in disguise when you are sick is you develop an empathy you never had and reach out to ppl you never would have that can enrich your lives. I def see the silver lining in my life and wouldn’t trade it for any if the suffering bc I’ve grown through the pain and I always say. Hey if your gonna suffer you might as well grow and become better otherwise you suffered for nothing. And I’ll be darned if I’m suffering for nothing 😒 so anyway I hope this info can atleast help One if you if not all of you. Being sick sucks and it makes you appreciate a good day like no other. And health as the best Wealth we can have. Good luck to you all. 

  • Posted

    I am 33 and been having the same like symptoms, ive been to urgent cares and my primary doctor they all say tension headaches..but i feel like its something more, like there is pressure in my head and neck pains taking muscle relaxers and anti inflamitory meds nothing is helping, i see a naurologist soon but cant get in till september..but i dont think i can wait that long..hopefully we both get some answers soon!
  • Posted

    Robyn, your symptoms are so similar to mine. Fuzzy feeling, neck pain, pressure behind eye (plus pain behind eye also, which you don't seem to have), shooting electric shocks.... Now I have been prescribed flunarizine 5mg for 20 days, lets see how that goes. At least I found someone with similar symptoms and prescription. Not that I wish you had this...

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