Can anyone described their hypothyroidism/hashimotos symptoms to me?

Hi,

I have been having hypothyroidism for 10 years now....there is a long list of symptoms...go to www.thyroiduk.org.uk and view the full list of symptoms. The symptoms developed in time not all at once....and you learn to live with them. Diet and exercise is of great importance in managing the disease. I also have lots of nodules on my thyroid gland which I will have taken out later this year. I also have been at high risk of getting type 2 diabetes....which I got now, also an auto immune disease.

Stammering rarely in public....forgetting words and not remembering it right in a middle of a sentence, carpel tunnel....very painful, I have to wear splinters on by both wrists at night and looking forward to having surgery on my left wrist. 

I am very active, eat lots of greens....I never eat cabbage....and peaches in any form. Research about diet for hypothyroidism. I used to have painful legs and feel very tired...not anymore because of my diet and exercise, have more energy and eating very low carbohydrates, small portion meals, virtually bread free, gluten free, sugar free, no potatoes, rice or pasta. Lots of salads.....no sweets, biscuits or cakes. I lost a lot of weight, feel lighter, have more energy.

I have been on levothyroxine 50mgr once a day, have regular blood tests and scans.

1.What is Hashimo's thyroid?

Ans: Hashimotos thyroid disease is really loss of ability in the thyroid to manufacture and balance hormones.Inactive thyroid is Hashimotos. It is unable to do its balancing jobs properly.

2.What is hypothyroidism symptom?

Ans:The hypothyroidism thyroid balances hormones, temperature and chemical movement in the body. temperature is applied to inflamation so it is all over the body. hormones are used by the brain, reproductive system, skin and most body functions.

Wondering if anyone here with hashimoto's/hypothyroisism and swollen lymph nodes came to any conclusions about the connection.

I have had several enlarged lymph nodes in my throat for many months now. I first noticed it seven months ago along with more common hypothyroid symptoms like fatigue and muscle aches. My thyroid tests came back normal, but the nodes increased in number and size (from 1 to 7 over 1cm within a few months). I saw several specialists (ENT/allergy-immunology/infectious disease) and did extensive testing on the nodes with the only results being that they are "reactive". Now my thyroid tests show subclinical hypothyroidism with TSH at 6.

I can only assume the lymph nodes are related, but also have the experience of most doctors telling me it's not related, with the exception of one ENT with a background in thyroid conditions saying people with Hashimoto's sometimes present with enlarged lymph nodes in the neck, but he's not sure why.

Hoping an adjustment to my levothyroxine level and dietary changes will fix my symptoms, but I would also really like to figure out the cause of the swollen lymph nodes.

Hello, it's been 18 years since I was diagnosed with Hashimoto HypoT.

I feel unheard by doctors, so far I have not find one that will take different approaches on diet and meds.

I have been on Sinthroyd for most of the time, the present dosage is 137 mcg, I notice that when I am close to the ocean ,or sea I feel better, more energetic.

I'm currently in Germany and my TSH it's been unstable it will go up and down after the doc. change the dosage. Every now and then I experience vertigo (since we got to Germany, I did so many test but they don't know why).

I did also a bunch of test and vit.D was a bit low, TSH was 6.2 so doc.increased the med.and prescribed high dosage vit. D

I have been experiencing migraines, discomfort in groin areas, legs aching, sometime discomfort under arm pit, I'm pretty much on and off full of energy.

People don't seems to get how bad it can get at times! I eat pretty much healthy, but I struggle losing weight, I walk a minimum of 2 miles, drink water 1.5 liters/ 2 a day.

I tried gluten free before, and I didn't felt any different.

I am glad to be part of this Forum because I felt alone, and worried, probably my doc. thinks I am hypochondriac 😁 I really don't care! If you have any advise and tips I would be glad to hear it!

I was told I had subclinical Hashimoto's Disease because the usual thyroid tests were normal including thyroglobulin antibody. However, the thyroperoxidase antibody test was Hi at 200 when it should be below 35. You should ask for this test nevertheless.

Before, I continue (because I do have painful lymph symptoms like you) the lab note for thyroperoxidase states that these levels (200-250) are see in 5-10% of the normal population without demonstrable thyroid disease.

Still one cannot ignore symptoms. For years I've had a hoarse voice, depression, ups and downs in energy level, as well as bradychardia - slow heart rate of 48 at times which I find frightening.

I had no noticeable pain until after 2 CT scans that used iodine contrast. After that I started experiencing bouts of extreme pain all along the front of my throat and to the sides and down to my collar bone spreading out to my shoulders. And, like you pain in my armpits and down my arms. Right now I have tingling in the palms of my hands in addition.

My endocrinolotist told me to take an aspirin for the inflammation, That did not work, nor did Naproxen, nor Curcumin nor and other natural anti-inflmmatories like Omega 3s. What worked was prednisone, and corticosteroids are a recommended treatment as per the info on the Internet. It is important to control thyroid inflammation to avoid permanent damage.

I had the prednisone for poison ivy. I took one 5mg pill in the night and in the morning another 5 mg pill this morning as there was till pain. I know we're not supposed to medicate but I know uncontrolled inflammation is a sure way to destroy tissue. I will be asking my doctor for a new prescription as I want to hang on to my thyroid and don't want artificial hormones because several of my friends who take synthroid are still overweight and can't lose their fat. It is also tricky if you have irregular heart beat which I do (again from time to time).

In my case, I don't know about yours, I noticed the flare-ups occuring after eating seafood, or soy products. The internet gives good info on what foods to avoid. Oh yes, the endocrinologist told me to take selenium and I do. One recommendation is to do aerobic exercise - I suppose that gets blood to the thyroid but lying on a slant board achieves this just as well - yoga practitioners recommend this.

Hope I have put your mind at rest somewhat. Do what you can re: diet. Have your estrogen levels checked because high estrogen leads to low thyroid. (Estrogen has to be balanced wtih progesgterone and there are bio-identical hormones for this) Good luck.

Danielle,

I have had hypothyroidism for more than 30 years and I can tell you what you are feeling is normal. Before the age of Google search and not knowing very much about my condition, it was nerve wrecking. No one in my family had it and my Aunt was the one that discovered it. I had the thick neck and she always said it didn't look "normal". We were at my grandmother's one day and she walked in with her medical book (no, she was not in the medical field) and said, "I think this is what is wrong with her. She has a goiter". Well, she was right...I had hypothyroidism with a multi-nodular goiter. At that time, the doctor's fix for it was taking out the thyroid. I told my Mom I wasn't going to do that and for the next 4 years I suffered through. Not realizing I was losing my hair because of it. Not realizing I was sleeping all the time because of it. Finally, after seeing a specialist at the age of 20 the doctor took one look at me (before he even touched me or did any kind of test) and said, you have a thyroid problem. When I was younger it was "easier" to keep the levels right. Everything can cause it to fluctuate...losing weight, gaining weight, age, hormones. I hurt everywhere...I just went through an ultrasound because of swollen lymph nodes in my armpits. It even hurts when I breath (not COVID related). It's amazing to me how one small part of your body can cause so much havoc on it. My advice is to find a doctor that SPECIALIZES in thyroid disease. They will not only check your T4 levels (like most doctors do) but also the T3, pituitary and all the other stuff that is overlooked. Another thing to keep in mind, there are certain foods that can block the absorption of your thyroid medication so be careful of that.

All these symptoms sound like anxiety is the cause. I think you should speak to your doctor about your issues, and receive the right medication. Usually its the higher the dosage, the more likely you will experience side effects.

I am so glad i found this post as I have so many of these symptoms and have too seen many doctors and had tests. only thing found is my tsh level was very low (.011). Finally got into see an endocrinologist who told me my symptoms do not relate to thyroid. I have fatigue, pain in my armpits, groin area, legs, elbows. Night sweats, dry skin, some weight loss, anxiety, occasional headaches and sore throat. He thought it might have been thyroiditis and he wants to retest levels in 2 months. i have been dealing with this for 3 months and am depressed to think i have to live with it another 2 months. Ive decided to try and treat it as an autoimmune issue with changes to my diet, reduce stress, try to improve my sleep habits. Any one have hyperthyroidism with symptoms from both hyper and hypo? I am considered subclinical hyperthyroidism because my t3, t4 are normal with low tsh.

My 19 year old daughter discovered she had Hashimoto's after I insisted that her psychiatrist do baseline labs, even though we were 3-4 months into her taking Lexapro for what we thought was depression. Long story short, we had a hellish month when she decided to go cold turkey off the Lexapro (couldn't sleep so she had no energy for about a month). We got her on Synthroid (synthetic) and then we moved to another state. After moving, she started with a new doctor who changed her to Thyroid NP (not synthetic...from pigs). Prior to the new doctor her very thick hair starting falling out and she often had headaches. After she was on the Thyroid NP, she had a episode where her thyroid was very swollen and it affected her swallowing. By the time we got her ultrasound a few weeks later, her symptoms had decreased and they said she had a normal thyroid for someone with Hashimotos. She started to develop daily headaches recently so they doctor had her take her thyroid meds every other day to see if it helped. It did, but not entirely. Now they are trying 2 weeks off of it entirely. I think she will end up having to go to a different med....maybe Synthroid again.

Her biggest symptoms have been the headaches, weird tingling in her legs, thinning hair, and maybe some body aches.

It is said that decreasing or better yet, eliminating, gluten and reducing sugar will help tremendously. My daughter refuses to do this and I can bet you her symptoms would decrease. I also think is she increased her exercise, it might help.

During my last labs it was discovered I had Hashimoto's, too. My antibodies are fairly low and I would not have known I had it had I not been told. My daughter's antibody levels are literally off the chart (i think mine was like 30 or 60, where her's is over 970). Both my Mom and Grandma had thyroid issues so I definitely believe it is genetic.

Same here, newly diagnosed after feeling terrible for years. Tsh was high- 7.2. Started levothyroxine, felt worse. Went back for 6 week blood draw- tsh now higher-17.

Significant weight loss, extreme fatigue, muscle wasting, no appetite. Constantly clearing throat, dry cough, hoarse voice. Worried because now difficulty swallowing, voice hoarseness, dry cough. Pain in underarm, radiates to chest and sometimes back. Haven't seen endo yet- but got referral.

Primary doc did not test antibodies, but mom has hashimotos. I was also worried about the underarm/lymph pain & chest.

hi all has anyone ever experienced the need to crack fingers and clench teeth with this at all?!

I was diagnosed with Hashimoto's about a year and a half a ago after labs showed elevated TSH 14.8 and after finding TPOab >1300 and TGab 82. Prescribed Levo and have worked up to 150mcg. Levothyroxine has helped get my TSH get close to normal range, but has not improved antibodies at all. Like many of you are mentioning here, I'm experiencing pain in my armpits as well as swelling in the groin (fupa) and neck. I was experiencing dysphagia (trouble swollowing) for several years, but never really associated it with my thyroid until recently. I'm considering taking Low Dose Naltrexone because I've heard it helps a lot of people with chronic inflammation from autoimmune diseases, and my bring down the TPOabs at least.