Can anyone help? Hyperthyroidism
Posted , 15 users are following.
Hi everyone,
I'm new to this but I really need some answers. I've had so many tests, most come back with hyper thyroid, I've lost so much weight. From 10 to a 6 in a few weeks really. I get so sick in the stomach but don't always throw up. I get sweats, trouble sleeping, always feel fatigue though, head aches and missed periods. My stomach feels awful most of the time, I can't drink, makes me feel ill. I suffer from aniexty and depression.. I've always been thin, I'm so picky with food now too as it seems everything upsets my stomach. It feels like these hormones are poising my body.. How did you guys know you had hyper? What were you first signs.. I think I have had this for a long time but always put it down to something else. Waiting for some more test results next week but I'm so stressed about this I need answers.. If anyone can help pls reply below. I would appreciate any advice.
Xx
Dreamer girl X
1 like, 56 replies
christine57219 dreamergirl03
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dreamergirl03 christine57219
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I will keep on track with the website as I got the best info form here so far. Does the medication they give for it have any side effects?
Thanks xx Hope your recovery too! xx
dreamergirl03
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Did you girls get regular periods? As mine are so all over the shop, never even know if I'm going to get them.. Also pains in the stomach.. and cannot sleep.. Always feel wired.. Is this the hormones doing this to me? Also just wanting to know before being put on any meds.. is there any known side effects for the medciation they usually prescribe you?
Thanks for your help hun xx
lucy82013 dreamergirl03
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Lucy
christine57219 lucy82013
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Christine
lucy82013 christine57219
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Thank you for your very helpful reply.
I know what you mean.
How long did it take you to get some relief and to feel better. All this is new to me and I feel lost.
Do you know why depression and anxiety are amongst the many signs and symptoms? Does the thyroid affect the brain at all?
Thank you
Lucy
christine57219 lucy82013
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Christine
lucy82013 christine57219
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THank you for your reply a lot of things that have happened are beginning to make sense to me now. Especially about feeling scared.
Please could you tell me why the dr made it worse . If I understand you correctly, sorry my Engsih is not good et, are you saying that it was because of the lack of blood rests that your condition passed unnoticed from one stage to another.If that iis so then that is diabolical.
Please can you tell me how often I may need my bloods montoring. I am so scared of these drs now.
Lucy
christine57219 lucy82013
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Christine
Christine
lucy82013 christine57219
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Thank you.
How did you find out that the results were questionable?
What did you do when you found out?
Lucy
linda187 christine57219
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christine57219 lucy82013
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Christine
lucy82013 christine57219
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I am in London .
Did not realise all this until I saw this forum.
I will definitely go back now and ask my GP why he has not done some more tests.
Why do you feel sick and cold etc? I feel the same but why?
Lucy.
christine57219 lucy82013
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Christine
lucy82013 christine57219
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My mom had Hashimotos.
Just researching it now.
Lucy.
lucy82013 christine57219
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Your reply was very helpful.
Do you know how long it will take to feel better?
Lucy
lucy82013 linda187
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Where are they based?
Thanks
Lucy
christine57219 lucy82013
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Christine
faye22957 lucy82013
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I also have hyperthyroidism caused by Graves Disease but wanted to let you know that there is light at the end of the tunnel sometimes. I was diagnosed by my GP and immediately refered to an endocrinologist and started on Carbimazole and Propanalol. My care continued with my endrocrine consultant, and will continue for life as hyperthyroidism is NOT cared for by primary care physicians (make sure that your care is not transfered back as this is not normal protocol). My Propranalol was stopped after about 3 months and my Carbimazole was continued for a further 18 months whilst I was having regular blood tests every 4/6 weeks. I had titration therapy where your dose is gradually reduced over time. At the end of my 18 months of Carbimazole alone my consultant advised stopping the medication and to see what would happen. My blood results came back normal which meant that the disease had gone into remmission, however I will be monitored for life, and there is every prospect that the disease will return at some point.
I hope my story gives you some hope, as its not always a bad experience.
Faye x
faye22957 christine57219
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I was so sad to read your story, it is clear that protocol has not been followed as your care was passed to primary care when hyperactive thyroid conditions should always be treated by secondary care. Hang in there as it is normal for people to go hypothyroid when induced by anti-thyroid meds.
Faye x
lucy82013 faye22957
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Thank you.
I was wondering if you had a list of the anti thyroid meds?
I feel at sea with this condition and feel like I did when this started.
I was in close contact with someone who had stones in her salivary glands. I wss at her house for several hours keeping her company on a voluntry basis and had several cups of tea there.
I feel angry with myself for taking the risk of going there and spending several hours with her. I just felt sorry for her and wanted to make sure
she was safe as her husband had gone away for the day and she was subject to hypoglaemic attacks due to insulin dependant diabetes.
I hope it is ok to give all these details.
Lucy.
lucy82013 faye22957
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Just to say thank you so much . Yes you definitely have helped me to see some light at the end of this very long tortuous tunnel.
Today has been a particularly bad day I am afraid. I mention that in case others experience good days and simply awful days.
I feel very fortunate to be on the forum and so well supportd by everyone..
I am puzzled because the thyroid screening results have varied so much. Why does this happen?
Does it mean that the thyroid problem is in remission ? BTW I still had the signs and symptoms. I just cannot understand what is happening.
I don't understand why the blood tests can be so variable almost normal yet feel so ill.
How does the dr make the decision whether to start someone on medication or wait and see?
Should I be treated or not that is the question I keep asking myself. Is it better to have the source of the problem that is the thyroid partially or completely removed removed or partially removed OR is it best to have the gland 'knocked out' then rely on thyroxine for life as someone has suggested to me ?
What a dilemma for the drs as well as for myself.
I realise that I have to make the decision myself but it is helpful seeing if anyone ellse has had or having a similar time.
My research into family has shown that there is a high prevalence in my family in the US and the UK.
Thank you
Lucy.
faye22957 lucy82013
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The preferred anti-thyroid meds in the UK at the moment is Carbimazole (not if you are pregnant though). Blood tests can vary from each person, this mat be due to your 'normal' not being someone else's 'normal', someone may sit happily at a high level and have no complications, however for someone else they may need to run at a much lower level. Can you please bear in mind that every lab will have its own 'range' for normal results, these range's do vary and they are specific to the lab your blood is tested at, so please do not compare to someone else's result who may have had bloods done at a different lab. My T4 when first diagnosed was 69, this is very high but I had been coping very well with this high level.
What you decide to do is always your decision, as with all healthcare ailments. But whatever you decide you will need to be euthyroid in the first instance, therefore it will need to be in a normal range. I chose to stay on anti-thyroid meds as they suited me, but they may not be for everyone. However if I have a relapse I have already choosen to have surgery as I will not be able to stay on the meds again.
Also remember with Graves in particular, this is a remitting/relapsing disease so therefore you can be up and down prior to any medications or other interventions.
Faye x
dreamergirl03 faye22957
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Hope you are all travelling well. Xxx
Jodie X
christine57219 faye22957
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Thank you so much for your message, much appreciated but has now given me more cause for concern and confused me even more regarding care of thyroid patients. It was the specialist Endo himself who said he was referring me back to my local medical centre for them to arrange the 4/6 weekly blood tests, after seeing him for 5 or 6 appointments and after he had initiated the Block and Replace therapy. Why would he do this if it isn't the correct protocol? Also, reading many of the posts on here, it would appear that many patients are also having blood tests carried out by their local medical centres (GP's) after their appointments with their specialist have ceased. Also, many patients seem to be self-medicating on this NDT, vitamin supplements etc. (by the way I don't think I'd like to risk self-medication with regard to any thyroxine medication but I have started taking Vitamin B12 supplements). I think the thing I am most angry about is my GP stopping both Carbimazole and Thyroxine suddenly and it having the affect it did on me AND at the time of doing so, she dismissed symptoms I had concerns about. I have also since learned that Carbimazole should be "weaned" and not simply stopped altogether, in fact it states this on the leaflet enclosed with the Carbimazole medication !
I would be grateful for any further thoughts.
Kind regards
Christine
linda187 christine57219
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