Can anyone relate?
Posted , 5 users are following.
hi all ive not had a test for ebv as of yet as its so hard to see a doctor. Here is a bit of history as it sounds a lot like what you guys have had.
start of 2019 i suddenly had a weak feeling in my left arm and it felt really heavy no pain. My grandad had just passed and it was a very stressful time looking back, a few days later i started with muscle twitching all over. By this time i started to panic as i suffer with health anxiety. It then felt like my arms and legs were not really mine like i had to think to move them normally. id say i gained a little weight also about half a stone.
congestion and excess mucus in throat
running nose
aches and pains
cracking joints in fingers
feeling of pressure in teeth
sore throat now and again
fatigue
occasional nausea with wretching but never sick
waking up with hand pain that subsides within an hour
waking up feeling anxious for no reason
panic attacks
ectopic beats palpitations
low mood and anxiety problems
pins and needles in arms and legs
period of time when legs felt weak and heavy for weeks.
gland pain
most of these have gone now but i still suffer with low mood and anxiety and still get aches and pains, the need to crack fingers and some gland pain. ive had covid twice and came through ok but im wondering if its activated something again?
i never really get poorly tbh and full std came back clear baring hsv1 , i do have silent reflux and heart monitors have said ectopics.
hope everyone is good.
0 likes, 40 replies
kellydopjo83 chris188867
Posted
chris, have you gone to get ebv panel blood test?
chris188867 kellydopjo83
Posted
no i cant get an appointment. fed up trying
laurajade7 chris188867
Posted
not meaning to butt in sorry but i went to the docs with a possitive current EBV infection and it was pointless. i have had no support and been told i would be fine in six weeks! this was a year ago and up until recently i was getting all the symptoms you listed. with the help of this forum and people i have met and learning as i go. i am getting my life back, but that is of no help from the NHS at all. a year later also still waiting for a neurologist.
im not saying don't go see the doctor if it will put your mind at rest but i got more answers talking to the wall!
kellydopjo83 laurajade7
Posted
hi laura, my doctor also referred me to a neurologist. do you know what a neurologist would do to help? do they run different tests?
laurajade7 kellydopjo83
Posted
hi kelly, i think i was referred just because i was getting neurological symptoms like twitching and i dont think the doctor thought all my symptoms were due to EBV. no i dont think they will do much but rule out any neuro disorders