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Can bppv clear on its own?

Posted , 7 users are following.

lynsey0838
lynsey0838

So it's been 8 weeks now and I'm showing no improvement

I've been doing vestibular rehab exercises for 6 days with no difference

I'm so miserable it's untrue

I've a 8 wk old baby and a 4 yr old son

I can hardly look after them

I'm so miserable that I'm crying all the time as I want to be able to drive and show my boys off,, people telling me I'll get better but I've not heard of people getting better on their own

I'm scared I'm going to be like this for the rest of my life and that so upsets me 😓

0 likes, 42 replies

42 Replies

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  • david80241
    david80241 lynsey0838

    Posted

    Hi. Have you see your gp? He she should be able to perform epley procedure which may resolve problem. Are u still getting severe vertigo or residual effects of single episode?
  • MackH
    MackH lynsey0838

    Posted

    Hi,

    I have been having vertigo, sickness, fullness in my ears and tinnitus since October 2016. I was recently diagnosed with Bppv in my right ear. I went to ent and the dr did the epley maneuver and this helped a lot. I am able to drive and carry on working though at times if I do feel very dizzy and it gets me down but I feel that there is light at the end of the tunnel. Hope you get sorted out soon x

  • lily65668
    lily65668 lynsey0838

    Posted

    Lynsey, I feel so sorry having to cope with vertigo with a new-born baby and another little one. Have you actually had a diagnosis of BPPV or is it just what you think you have?

    I've had diagnosed BPPV twice and can confirm that it does eventually clear up on its own. If it is just BPPV you won't have it for the rest of your life. However, the maximum two months quoted on medical websites is way too optimistic in my opinion! I suppose it's meant to be reassuring, but it will just scare people who've had it for several months, and make them think it's going to last for ever.

    You say you've been doing vestibular exercises, but has someone performed a manoeuvre on you to shift the crystals out of where they're causing trouble? I had this performed by a physiotherapist yesterday and it's completely cleared my latest attack of BPPV. However, not all practitioners get it right. It was done by an ENT doctor in my last attack of BPPV nearly 30 years ago and went disastrously wrong, leaving me in a much worse state of vertigo.

    You need to get back to your doctor and ask for a referral. It depends where you are in the world. Referral to a neurotologist is best, second choice being a physiotherapist who only does vestibular work and has had specialised training in it. Some ENT doctors are skilled in treating BPPV but my own experience, and that of several posters on these boards, suggests that one's a bit of a lottery.

    Don't get upset over this. You're going through a very bad time but it won't last for ever.

  • eleftherio33095
    eleftherio33095 lynsey0838

    Posted

    What vestibular rehab exercises are you doing exactly for BPPV?

    Eleftherios S. Papathanasiou, PhD, FEAN, Dipl (Hon) [ORL Poland]

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • lynsey0838
      lynsey0838 eleftherio33095

      Posted

      Hi it's just moving my eyes whilst keeping head still and the hazing at a certain point whilst moving my head

      I really have had enough of this it's ruining my life

    • julie.
      julie. lynsey0838

      Posted

      It's ruining mine too....I want to go clothes shopping with my girls, cinema etc but I can't 😢😢 x

    • eleftherio33095
      eleftherio33095 lynsey0838

      Posted

      What you are doing is not effective for BPPV.

      Eleftherios S. Papathanasiou, PhD, FEAN, Dipl (Hon) [ORL Poland]

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • lily65668
      lily65668 lynsey0838

      Posted

      Lynsey, did someone diagnose you with BPPV? There are many other causes of vertigo.
    • lynsey0838
      lynsey0838 lily65668

      Posted

      Bupa nurologist

      But seeing the ent on Wednesday to

      Just want to feel better

    • eleftherio33095
      eleftherio33095 lynsey0838

      Posted

      All things being equal, your ENT doctor will tell you exactly what movement to do.  It may involve either lying on your side with you head up, etc., or turning lengthwise around on the bed.  But it is the responsibility of the ENT to tell you exactly what to do.  You should also do it once with him/her in the office so that your first movement attempt can be supervised.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist,

      Fellow of the European Academy of Neurology

    • marie43202
      marie43202 eleftherio33095

      Posted

      Hello Eleftherios,

      thank you for your involvement in this forum. With regards to your last comment re BPPV exercises: 1. Could you be a bit more specific with the type of exercise you recommend, and 2. With your experience, have you observed success with the "half somersault maneuver"? Any guidance would be greatly appreciated. Personally, I have visited 2 ENT doctors, 1 neurologist and naturally, my own family physician who were not successful in their attempts to resolve the dizziness. Balance tests were performed as well. Unfortunately, I have been given differing diagnosis by every single one of them. To date, I have not been successful finding a neurotologist in Toronto, Canada. It has been a year and a half of dealing with this disabling condition, but I am happy to say that the worse part, for now, is over. I can now walk, drive, enter some big box stores with reasonable ability. The inability to pinpoint the source of the dizziness is needless to say, very frustrating. When one rules out likely ailments that could produce dizziness (I was not on any meds prior to this), and are left sitting in a doctor's office, watching an equally stumped and frustrated doctor shrug their shoulder, where does one turn.  I would like to march forward in my life but am wary, and well quite terrified, of when the next disabling attack will occur. I have been hearing/reading more and more cases of patients with stories similar to mine and am left wondering what exactly is going on. Is this a condition related to tight muscles of the neck/upper back, we are all using computers and cell phones now which cause unnatural posture & strain? Who knows?  I hope someone is taking note and performing more research into this matter. Sadly, the livelihood of many people and their families are being affected by this. Feel free to direct message me if need be. Again, thank you for your time.

  • julie.
    julie. lynsey0838

    Posted

    Hi Lynsey we are in the same vile boat. I'm a single mum of 3 and in week 7 😢. Plenty of tears here too. No support network and have to work. I was diagnosed with BPPV too (managed to get Drs appointment on the day I had 3 spins being vertigo). Since that very first day, I don't have true Vertigo as in room spinning but I feel dizzy/off kilter, feel wooshy inside my head and get the feeling of tiny bubbles popping in my ears like a tickle. My left ear is the main problem. I've been referred to ENT although on here it's sounds like they might not be much help. I've been relying on my son to drive me to work and back but today got stubborn and walked the 2.6 mile back as it's a beautiful day here (uk) wish I hadn't bothered, I just didn't feel right for the entire 35 min walk. I just don't understand what's going on now. Think we just have to try and take it day by day xx

    • lynsey0838
      lynsey0838 julie.

      Posted

      Got exactly the same julie, something's I feel ok through the day

      But things are swishing ; I feel like I lose my step, my heads dizzy and fuzzy and I just don't feel normal

      I feel nauseous but never sick

      The tablets propralazine or something don't really help

      Wonder if it's worth me saying I've been vomiting to get them to listen to me more

      I just want to be happy again

      15 years of ivf, I've finally got my family and now this has just ruined it

    • julie.
      julie. lynsey0838

      Posted

      Ah now I got given tablets by my Dr who said try not to take them so I haven't...mostly my nausea has gone....But as you, still have the swooshy swishy head, and off kilter when walking. Did your Dr tell you to do Brandt Daroff exercises at home for BPPV (google). They will bring on the dizzies on your affected side but they are meant to help the brain compensate for the mixed messages it's getting from the balance system. I don't advise you to try the Epley manoeuvre at home like lots of sites suggest, wait and speak to Dr or ENT first.

      I just want to be happy again too it's made my anxiety worse as well. Worrying about kids, what if it gets worse, work and I'm on my own. Don't join any fb Vertigo support sites either, they will scare you.

      15 years of IVF.....jeez but congratulations on getting your family. I just hope we get better xx

    • lynsey0838
      lynsey0838 julie.

      Posted

      Thankso julie

      If u find any thing that works please let me know and I'll do the same with you

      U must be up the wall to, we should be enjoying our children but this takes over doesn't it 😪

    • julie.
      julie. lynsey0838

      Posted

      I've got to wait till 6th April for my ENT. Let me know what yours says as you are before me. Im fed up with this too. Scared also that this isn't going to go. Having to go to work because I can't afford time off being a single mum. I'm so stressed and upset x

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