Can bppv clear on its own?
Posted , 7 users are following.
So it's been 8 weeks now and I'm showing no improvement
I've been doing vestibular rehab exercises for 6 days with no difference
I'm so miserable it's untrue
I've a 8 wk old baby and a 4 yr old son
I can hardly look after them
I'm so miserable that I'm crying all the time as I want to be able to drive and show my boys off,, people telling me I'll get better but I've not heard of people getting better on their own
I'm scared I'm going to be like this for the rest of my life and that so upsets me 😓
0 likes, 42 replies
lynsey0838
Posted
Yes I'm in the uk too and it's upsetting me that I can't drive my son to school
Had no referral off the gp to an ent specialist which is a disgrace in my opinion
Only getting the rehab through bupa but even these haven't suggested ent referral
JUST DOnt knoe what way to turn
MackH lynsey0838
Posted
That's crazy I got an ent referral from my go I'm in the UK also. The wait time was 18 months to be seen at an ent on NHS... which I found unbelievable... I went private to see an ent specialist.
MackH
Posted
julie. lynsey0838
Posted
I suggest you go to Drs and demand to be seen by ENT x
julie. MackH
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18 months? Where are you? I've got mine through for 6th April so a six week wait. Mind you I've chosen a small local hospital in my town I may yet get referred elsewhere with more waiting.
I've heard Ireland is bad for referral times x
lynsey0838 julie.
Posted
I'm in Liverpool, I've been seeing a nurologist as I also lost feeling in my arm after the c section
But didn't know that only an ent specialist performs the epily manoeuvre
Which is what I want them to do
So I've just rang bupa now for some details
I'm just wondering why this wasn't mentioned to me previous as I was in tears in the clinic on my first appointment
lily65668 lynsey0838
Posted
Hi Lynsey, It's not only ENT specialists who perform the Epley. There are specially qualified physiotherapists who make a much better job of it by all accounts. However, I suspect you might have to start out by going through an ENT if you're in the UK. I'm not sure how your system works.
julie. lynsey0838
Posted
My GP did an Epley (although a bit different to how I've seen it on YouTube). Didn't do anything for me but I don't think he did it right anyway. Not sure it would work anyway now as not got proper spinning Vertigo anymore so I'm lost. I'm just waiting for my ENT appointment. Got MRI in April too just to play safe my Dr said x
MackH julie.
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N Ireland... it's a crazy long wait time for ent referrals here.
julie. MackH
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That's just ridiculous....so you're just left in limbo to get on with it with no answers 😩😩
lynsey0838 julie.
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MackH julie.
Posted
I was initially told that I probably had Ménière's disease and the thought of waiting 2 years for an ent appointment made me decide to pay privately to see what was going on. I def feel a lot better after the dr at ent did the epley maneuover. I am still left with occasional dizziness and vomiting, bunged up ears and tinnitus in both ears. So although I have been diagnosed with bppv in right ear I am wondering if i possibly have Ménière's also...Not much being done to resolve anything. Just a waiting game to my NHS ent appointment comes in... another 16 months left to wait... depressing!
S.
lynsey0838 MackH
Posted
Oh jeez that long
It's an absolute disgrace
What's the difference with menheres disease
MackH lynsey0838
Posted
Ménière's disease has many different symptons, too many to write here. Basically vertigo attacks, bunged up ears, tinnitus etc.. quite similar to bppv. That's why gp thought I had it.. as I had all those symptons.. Some people have more symptons and some less.
julie. MackH
Posted
It does sound like Menieres to me. I'm just gutted that you have such a long wait for ENT and to go private is so expensive...if I could I would but just can't afford it x
MackH julie.
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It's crazy.. I paid £185 for 20 mins.. so expensive..
julie. MackH
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And for that £185 did you get any further forward? X
MackH julie.
Posted
Yes I def feel a lot better. He did the epley procedure and it left me feeling a tad sick and dizzy at the time but now two weeks later I feel so much better. I def think it was worth saving for as I was taking meds for Ménière's and now I am cutting down meds, whereas I would have been on those meds for 18 months before being diagnosed at ent. That procedure means that I am able to drive, work and when I roll over in my sleep the bppv does not wake me up anymore so I def have benefited from more sleep.
lynsey0838 MackH
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MackH lynsey0838
Posted
julie. lynsey0838
Posted
I'm just concerned that some websites say BPPV clears up on its own within 2 weeks?
MackH julie.
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julie. MackH
Posted
Thanks Sharn...I'm hoping by the time my ENT appointment comes I'll be at least 90 percent better. I'm trying to look at the positives, I'm better now than what I was the first month of this so maybe that's a sign it's settling slowly on its own 🤔