can,t lift legs

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hi all new to this site .i,m 39 years old i,l start by telling my story which started last year in january i had chicken pox was really unwell abit weak did,nt think i really recovered over it .one day a couple of months later i started having joint pains all over my body my backs of my ankles were the worst pains in my jaw headaches like i,ve never felt before pains in my stomach bloating and constatly feeling sick. i went down doctors which they rushed me up hosptal thinking i was having heart attack but thats was all clear . had loads of blood tests done all came back normal only that i had glaunduar fever but it had cleared up give me pain killers and something for my stomach . after months of feeling so ill and when i say ill i did,nt think i would make it to see christmas but i,m still here . nothing has changed still in pain headaches everyday sickness everyday and so weak. i was dignosed today with m.e . i,m woundring if anyone else has a problem with there legs i can manage to walk but very weak but if i,m laying down i can,t lift them its like they not there i cant lift them if i,m in a sitting postion either or tap my feet its like my brain wont send a signal for me to do it please help making me really worried.

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  • Posted

    Tracy:

    So sorry you're so ill. When I first got diagnosed with ME/CFS, I truly thought I was going to die, I felt so ill. Since my relapse, I've had symptoms similar to yours--that is my legs feel leaden, like I can hardly move them, though I can walk. I also have tingling, shooting pains,etc. I think these are all nerve issues that come from inflammation of the small nerve cells in the brain. Just my opinion and the result of talks with my specialist and research.

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    • Posted

      hi jackie thanks for reply its the most awful thing i,ve been through in my life just hoping things don,t get worst thats my only worry cause this is a new symtom with my legs if i think about moving them i can,t just so glad i had a understanding doctor today. i got so many symptoms to many to list .
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  • Posted

    Hi Tracy,

    First let me say I am so sorry to hear that you are suffering so much.  I too have had glandular fever and it is a truly awful illness.  I contracted it when I was at university around age 25.  That in itself can leave you feeling absolutely awful, weak, sore and generally feeling really, really ill.  It can take a long time to get over that never mind gettin M.E. on top of it. (or because of it as some would suggest)  It is truly frightening when you just don't know what is happening to you and like you, when I was first diagnosed with CFS/ME I had already spent almost a year with the illness.  I was so weak I couldn't lift my head off the pillow, needed to be lifted to the loo and my legs just couldn't hold me up, never mind walk.  I was eventually hospitalised because they worried I had Guillain Barre disease which affects all the muscles and eventually you can't even breathe.  Not that and I was pretty much sent home in the same state as I was admitted.  The pain can be horrendous.  Luckily for me I don't have the dreadful headaches as a general symptom - I truly sympathise with you as I have had migraine in the past.  I do however had the nausea, bloating, and stomach pains for which I take buscopan daily.  I had my gall bladder removed last year and I have IBS.  All you can do is keep pestering the doc to give you the treatment you need and rest, rest, rest.  It is very difficult at first to accept that you are so incapable and you try very hard not to be that way.  It took me 3 years to accept my illness by which time I had gotten a lot better, though I was still ill.  I am still hopeful after 7 1/2 years that I will regain my full health and manage to get back to work.  Meanwhile, I do what I can when I can, and give myself rest when I need it.  I don't let anyone tell me how I feel - it is my body, my illness and I know what is best.  My advice, get good pain meds - plague the doctor till you get something that works for you and meds for your stomach.  All those symptoms you described are on the CFS/ME list.  They are awful, but each can be treated individually.  You need to get your GP on your side and try to get some protocols in place to manage your symptoms.  It is a terrible illness which impacts your whole life.  However, most people go into remission and some get completely well again.  Please try not to worry (not easy I know) and do try to be gentle with yourself.  You didn't ask for this and it isn't your fault.  I hope you manage to cope better and get the meds you need to do that.  Unfortunately there is no quick fix.  Do frequent this site and ask questions - the people on here know what you are going through and you can get good information, advice and most of all, understanding.  I hope you feel better soon.

    Linda

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    • Posted

      hi thanks for your reply linda . well i,m hoping that i,ve got the right doctor now he,s the only one that seems to believe my symptoms because i came close to given up with them. and like you,ve said i do find it hard to accept that i,ve got this illness it is something i will have to learn to live with. i,ve always been a very determined person and stong person but this has knocked me for six there,s days where i felt like just given up. i am lucky i got a good husband whos doing nearly everything at the moment for me and taking care of our six year old boy. 
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  • Posted

    Hi Tracy,

    Really sorry to hear about your symptoms.  Yep I can tune in with you with regard to the legs.  I have had CFS/ME for over 6 years now, and relapsed badly May 2013, am still not brill.  My mobility has been struck quite badly have to use crutches/stick for the shortest distances, and wheelchair for longer distances.  I lost my job and it is very easy to become down.  Like folks say, there are some people who manage to get well so being positive is a must.  I agree a good G.P. is needed to treat all your symptoms.

    Hoping that things settle for you.

    Tina

     

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    • Posted

      thanks tina really sorry that you are so unwell at the moment . like to thank you all for replying because this illness can make you feel so alone and lonely. 
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  • Posted

    This disease is horrendous and the leaden legs thing is hard to take. I've always been able to walk through it but it feels like gravity is stronger than it used to be. As though I'm walking around in a very heavy body, but I'm very thin.

    But I'm a lot better than I was; I can move around better, do a bit more. I rarely get headaches now and a lot of other symptoms have eased. I feel like I'm slowly on the road to recovery. Diet is very important, cutting out junk and eating healthily is what's made the improvements, and taking herbs.

    I also don't use synthetic chemical products now and that's made a huge difference. A very good water filter, I could go on and on about the healthy changes I've made, suffice to say you can improve and people get better as Tina mentioned. biggrin

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    • Posted

      Hi Georgia,  

      I love the idea of being a very thin person walking around in a very heavy body - it is just like that!  

      Which herbs do you take and why?  Always interested in other people's protocols for this dreadful illness...anything that might help me is good information!

      Linda

       

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  • Posted

    Hi Tracy, yes i have CFS and have the heavy legs, some days it's not that bad some days i walk to the toilet at home and think gosh, like they are lead weights.

    I was reading the point about gravity feeling stronger than it used to be, as if our bodies are being pulled down, i expereince this almost daily. My whole body is slower to move. I see CFS is a result of a weak body, a few things have been thrown off, it needs lots of rest, but not too much, exercise is crucial, proper diet and supplements can help, finding what works best for us is a trip. In the beginning of my illness which was infectious (although no EBV etc ever detected) i truly felt as if my body was turning to stone and i was going to die, i called an ambulance, TWICE in a few weeks. My heart beat felt so weak. I'm suprised in many ways i am still here and full of real hope of recovery. CFS is a long haul illness but in my view one that can be overcome.

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    • Posted

      Hi Georgia I think he means due to infection rather than being caught from someone else.
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    • Posted

      Hi David,

      Lots of people with CFS/ME have had a lot of trauma in their lives whether it was physical, emotional, psychological or a mixture of these. Certainly I have had a lot happen in my life.  I think eventually for such people they are unable to pick themselves up and get on with it.  Their bodies have just had enough.  I know exactly what you mean about feeling as though you were slowing down to a stop....it is really, really scary and made even worse by the facts that you don't understand what is happening and you can do nothing about it.

      I agree with everything you say above though I would have said exercise - crucial to stop atrophy and boost oxygen but also with caution to prevent post exertional malaise.

      Which supplements do you take?  I am always interested in what other people take and why.  There is always something to learn.

      Linda

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    • Posted

      hi linda i think trauma could have set me off last year i found things really hard to cope with and began to even have a twitch and after illness after illness think my body just give up.
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    • Posted

      Hi Linda, thanks for that. Well supplement wise, you might want to try some lauricidin, read amazon reviews, some CFS folk having miraculous benefits. I've only been on it a ferw days and have felt a benefit. The thing with CFS is that i'm sure we are ALL different and require different things to help us, some are more severe than others. Myself for instance i can get out for 30-60mins(max) day and walk, even though it is hard but i look 'normal' (lol) ie- you wouldnt really know i had CFS to look at me when i am walking BUT i can assure you i do not feel so good and it is at least twice as hard to move. My energy is very low and i have to use it wisely. I generaly avoid people as i find it drains my energy lots to talk. It' so hard when you were used to effectively feeling like you had unlimited energy. i still think i can get 100% well, just not sure how, just not sure when, i cannot ever give up ! I think for CFS long term adaptogens should be consumed, schisandra/eleuthero/reishi. So i have been taking these for a few months. 14 months in my struggle continues.

      I'm desperate to get back swimming. I get paranoid about losing muscle mass and fitness because i know if that goes it would make recovery extremely difficult. So my daily focus is walking 30mins, diet and rest.

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    • Posted

      Oh I see, thanks! It'd be a massive worry if we could catch it from other people; imagine how many people would have it!f I expect they'd be doing a lot more about it though. cheesygrin
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    • Posted

      Well...there actually may be a contagious component of this illness. There have been outbreaks in various places in the world, for instance, Incline Village, Nevada. You can Google this. Also, sometimes you'll find the two members of a couple having it. Yet my husband has never "caught" it in all the years we've been married. 
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    • Posted

      thanks for that information David.  I will certainly look into it.  You are right that we are all different but anything is worth a try - who knows, it might just be the right thing.  I am glad to hear you are still managing to exercise regularly because it is hard to regain muscle tone once lost.  Good luck with your recovery protocols.

      Linda

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    • Posted

      Too right they would be doing something about it!  As it is we are just shunted aside mostly once the docs have done their tests and can't find out what is wrong.
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