can,t lift legs

So sorry you're so ill. When I first got diagnosed with ME/CFS, I truly thought I was going to die, I felt so ill. Since my relapse, I've had symptoms similar to yours--that is my legs feel leaden, like I can hardly move them, though I can walk. I also have tingling, shooting pains,etc. I think these are all nerve issues that come from inflammation of the small nerve cells in the brain. Just my opinion and the result of talks with my specialist and research.

First let me say I am so sorry to hear that you are suffering so much.  I too have had glandular fever and it is a truly awful illness.  I contracted it when I was at university around age 25.  That in itself can leave you feeling absolutely awful, weak, sore and generally feeling really, really ill.  It can take a long time to get over that never mind gettin M.E. on top of it. (or because of it as some would suggest)  It is truly frightening when you just don't know what is happening to you and like you, when I was first diagnosed with CFS/ME I had already spent almost a year with the illness.  I was so weak I couldn't lift my head off the pillow, needed to be lifted to the loo and my legs just couldn't hold me up, never mind walk.  I was eventually hospitalised because they worried I had Guillain Barre disease which affects all the muscles and eventually you can't even breathe.  Not that and I was pretty much sent home in the same state as I was admitted.  The pain can be horrendous.  Luckily for me I don't have the dreadful headaches as a general symptom - I truly sympathise with you as I have had migraine in the past.  I do however had the nausea, bloating, and stomach pains for which I take buscopan daily.  I had my gall bladder removed last year and I have IBS.  All you can do is keep pestering the doc to give you the treatment you need and rest, rest, rest.  It is very difficult at first to accept that you are so incapable and you try very hard not to be that way.  It took me 3 years to accept my illness by which time I had gotten a lot better, though I was still ill.  I am still hopeful after 7 1/2 years that I will regain my full health and manage to get back to work.  Meanwhile, I do what I can when I can, and give myself rest when I need it.  I don't let anyone tell me how I feel - it is my body, my illness and I know what is best.  My advice, get good pain meds - plague the doctor till you get something that works for you and meds for your stomach.  All those symptoms you described are on the CFS/ME list.  They are awful, but each can be treated individually.  You need to get your GP on your side and try to get some protocols in place to manage your symptoms.  It is a terrible illness which impacts your whole life.  However, most people go into remission and some get completely well again.  Please try not to worry (not easy I know) and do try to be gentle with yourself.  You didn't ask for this and it isn't your fault.  I hope you manage to cope better and get the meds you need to do that.  Unfortunately there is no quick fix.  Do frequent this site and ask questions - the people on here know what you are going through and you can get good information, advice and most of all, understanding.  I hope you feel better soon.

Linda

Really sorry to hear about your symptoms.  Yep I can tune in with you with regard to the legs.  I have had CFS/ME for over 6 years now, and relapsed badly May 2013, am still not brill.  My mobility has been struck quite badly have to use crutches/stick for the shortest distances, and wheelchair for longer distances.  I lost my job and it is very easy to become down.  Like folks say, there are some people who manage to get well so being positive is a must.  I agree a good G.P. is needed to treat all your symptoms.

Hoping that things settle for you.

Tina

But I'm a lot better than I was; I can move around better, do a bit more. I rarely get headaches now and a lot of other symptoms have eased. I feel like I'm slowly on the road to recovery. Diet is very important, cutting out junk and eating healthily is what's made the improvements, and taking herbs.

I also don't use synthetic chemical products now and that's made a huge difference. A very good water filter, I could go on and on about the healthy changes I've made, suffice to say you can improve and people get better as Tina mentioned. 

I was reading the point about gravity feeling stronger than it used to be, as if our bodies are being pulled down, i expereince this almost daily. My whole body is slower to move. I see CFS is a result of a weak body, a few things have been thrown off, it needs lots of rest, but not too much, exercise is crucial, proper diet and supplements can help, finding what works best for us is a trip. In the beginning of my illness which was infectious (although no EBV etc ever detected) i truly felt as if my body was turning to stone and i was going to die, i called an ambulance, TWICE in a few weeks. My heart beat felt so weak. I'm suprised in many ways i am still here and full of real hope of recovery. CFS is a long haul illness but in my view one that can be overcome.