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Can you overdose on the injections

Posted , 7 users are following.

june_rose
june_rose

hi I have just seen a hemotolgist privately as my GP refuses to give me injections earlier than 12 weeks and like so many others I am leading 2 lives first half after the jab I am back ! Then inthe saecond 6 weeks I feel old tired and canot cope with the fatigue,terrible pains in my feet ans lowere legs 

brain fog , . I feel this is going to cost me my job

any way he said that there are no long term studies to say what the side effects are of having it sooner 

so that's why its not given 

also that my levels are high now on the jabs so I alledly don't need it 

he could not tell me why I have these symptoms and have high levels

he and my GP just say these must be something else wrong with me but make no attempt over last 2 years to find ou what it is which has fighter need me 

would welcome any advice or comments , I have secured some of the medicine which I may inject as I am so desperate to feel better 

thanks

0 likes, 46 replies

46 Replies

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  • bluemaran
    bluemaran june_rose

    Posted

    My fellow sufferers: more frequent - possibly smaller - jabs, allowing you to "sip" a little B12 each day, make sense, when it is estimated that you will wee out 98% of a B12 jab within 48 hours of administration.  The NHS doesn't want to do frequent jabs because of cost in terms of nurse appointments.  Fair enough.  But if they can give a diabetic the means to jab themselves at will for decades, they can do this for us.  After all, if it keeps us well, active and prevents dementia, surely it makes economic as well as compassionate sense?

     

    Here's a twist: my other half takes drugs for diabetes and other conditions.  The Metformin he's taken for decades depletes B12.  But his low B12 was addressed ONLY because I saw a connection mentioned when researching my own condition and I persuaded him to ask for a test - it was very low.  He's been increasingly tired, depressed, tearful and forgetful for years.  I am waiting to see if he improves on monthly jabs.   I still don't understand why he received no "loading" doses initially, and I'm going to the GP with him next week as his advocate, to find out the full picture.  He's a gentle soul, with old-fashioned respect for the medical profession, and a poor memory.  He probably needs me there.

    If he was offered daily, tiny B12 "pinpricks", we could inject oneanother, and just show up for occasional blood testing - which we do already anyway.

    GPs appear to be waking up to the need for better management of B12 deficiency, and I already know many others who are on monthly jabs.  The greatest misery seems to be suffered by those on quarterly jabs, with GPs who either aren't listening to them, or who apply the arcane rules too rigidly.  Please, please don't take it lying down if you suffer the classic "fade out" a month or two after each jab and think you could benefit from more frequent injections.  Be insistent. 

    • june_rose
      june_rose bluemaran

      Posted

      That makes total sense as I said before I am not allowed them as there is no research alledly regarding the long term risks

      well Idont care about them it's now I need my quality of life to improve , I have had a virus and chest infection for over 5 weeks dispite having antibiotics 

      I had 3 days when I felt better

      now I am back down with another virus sore throught tummy upset and have lost my voice !

      i am just going down with everything could not go to work today

      all the time off I have had in the last 2 years over this immune system reckon I will be pensioned off in the next restructure 

      but my GP does not seem to worry about that

      it doesn't matter to them if I lose my wages!

    • caitlin39841
      caitlin39841 bluemaran

      Posted

      hi guys. bluemaran, hope other half gets the jabs. imagine if he didn't have someone to do the research & be an advocate for him. the worrying bit is: there's probably loads of others like him - either too polite to question or don't know where to start with the questioning. this group of ppl are left to suffer in silence or/and muddle through as best they can.

      i'll be getting my b12 results shortly, but am convinced that they'll come up NAD. i've been on high dose B Complex x for some time, so will most likely mask true results - i.e. serum levels AOK - cells depleted. very little active b12 & high percentage inactive, or some such scenario. i'm concerned i have PA - as Mum had it & i have similar symptoms (cognitive/physical etc.) i've got terrible Angular Stomatitis despite taking 500 mgs of B2 to no avail???

      any thoughts/suggestions to put to my GP to prompt her to do IF antibodies etc. & explore PA. she's incredibly stingy with resources & yes, i have changed within the practice , but it seems a culture there, obvioulsy a 'balance sheet' thingy. to be quite honest, i become a bit of a wreck when i have to go to the GP's - it's new expereince for me . i've generally managed my own health but am out of my depth presently due to muscle weaknesss & cognitive compromise.

      caitlin.

    • caitlin39841
      caitlin39841 june_rose

      Posted

      hi june rose:

      yes, i second the new GP suggestion. alternatively, i'd ask for tests (fairly basic) to rule out ME/CFS. with ME/CFS the harder you drive yourself, the worse you make it. so rest is important in the acute stage. the b12 injections certainly improves one's quality of life with ME/CFS.

      Caitlin.

    • june_rose
      june_rose bluemaran

      Posted

      Sadly I live in a rural area and the nearest 4 practices are all under the same umbrella so they hold the same culture

      to get to a new pratice would be about 20 miles and they won't take out of area patents so am stuck

      that's why I saw the specialist to see if he could influence them

      but I feel I have wasted my money again as he said he would phone me but hasn't 

      how do the medical profession get away treating people like this ???

    • june_rose
      june_rose caitlin39841

      Posted

      hi Caitlin thanks for your answers what's ME/CFS I don't seem to be able to do much before I hit the Brick wall but after a rest I feel a bit better but it only lasts a short time so my energy comes and goes ,I I never know when it will happen which makes doing any thing out side the house difficult !!

       

    • caitlin39841
      caitlin39841 june_rose

      Posted

      hi june rose:

      ME/CFS (Myalgia Ecephalomyelitis, sometimes called Chronic Fatigue Syndrome) is a multi system condition characterised by extreme fatigue (physical/mental), repeated viral infections, sore throars, digestive problems etc. etc. .

      google ME Association or just ME/CFS & you'll get lots of info. GP's are (generally speaking) ill equipped at diagnosing or/and treating it. diagnosis is usually arrived at through a process of eliminating other conditions with similar signs & symptoms & by refferal to a specialsed treatment program.

    • june_rose
      june_rose caitlin39841

      Posted

      Wow this is what I've been experiencing one virus after another  brick wall tiredness unreliable fatigue (as everyone on this site will know) I have an almost permanat sore throats and digestive problems plus depression ,no motivation in fact I just couldn't care less what I look like these days , I do try to make an effort for work but I have to get up at 5-45 to leave at 8am even then I am so slow I often run late it exhausting , plus now I get excruciating pains in my feet and lowere legs not every day but I don't know when that will strike also I can't control my body temperature and I do feel a bit better after a rest I feel such a lazy cow these days 

      sorry for going on but like everyone on the site I don't feel like me any more !

    • caitlin39841
      caitlin39841 june_rose

      Posted

      hi june rose:

      if u google ''Have I got ME/CFS Syndrome'' a questionnaire should come up. complete the questionnaire & take it with you to the GP. explain you feel you may have this condition & can s/he do some elimination blood tests including anti-bodies for IF (Intrinsic Factor). if you are positive for IF anti-bodies that should confirm PA & they should put u on the b12 immediately.

      PA is often found along side ME/CFS, but the injections help both. with ME/CFS b12 treatment is by body response i.e. take the injections as your energy dips. try to keep the energy levels stable. the ME/CFS experts suggest keeping a high b12 level - much higher than the recommended levels which are just for PA prevention, not for optimal bio-chemical functioning. btw,by ME/CFS experts i mean 'Environmental Medical Practitioners - not Conventional Practitioners. if it's ME/CFS GP's /Docs are just useful for referrals, sick notes etc.

      ideally, i guess it's best you get the jabs from the Doc & top up from your own supply. REST is imperative though, especially during the acute phase as , otherwise you run the risk of irreprabably burning out your body. ask your GP where the nearest ME/CFS clinic is & ask for referral.

      i'd imagine if you took one of those nurses along with you it would help. GP's can be a right PIA when it comes to these type of 'complicated, multi-system conditions' . until the reforms they referred ffering everything onto the hospital. now they have to pay for refferals , so err on the side of ''bank balance'' caution. .

  • bluemaran
    bluemaran june_rose

    Posted

    Didn't I hear recently that they are changing the rules, and you can go to any practice you like, regardless of distance?  Of course, you won't be able to get home visits, but then you'd have a job to get those anyway!
    • june_rose
      june_rose bluemaran

      Posted

      thanks I did not know that I will look into this but how can I find out if there more enlightened about PA ?
    • june_rose
      june_rose

      Posted

      Hi guys have seen the specialist who has recommended to my G P that I have 8 week injections as he cannot find any reason not to give them to me if it improves my quality of life , whew!!

      the down side is she hasn't acted on this yet but had sent me for an intrinsic factor test and an full immune scan via blood tests that he suggested as it hasn't been done which he was surprised about.

      as yet waiting for results I found out my fertin levels are ok ,what ever that means ?

      my concern is whether my GP will follow ow his advice or stick to the "guidelines " as its been before 

      where do I stand ?

      it cost me £140 to see him could this have been a waste of money and time ,I hope not 

      currently I am still off with yet another virus and now pluresy, though I went to work till a week ago , I have been ill since mid September, I am due to get my 3 monthly jab next week sometimes I feel it's not worth the struggle with the surgery and may as well not bother if they are only giving me half a life and just fade away .

      my concern is

  • bluemaran
    bluemaran june_rose

    Posted

    Oi!  We'll have no talk of fading away.  This forum and the PA Society are here to back you up, remember.  If your specialist says you may benefit from more frequent jabs, and your GP won't provide them - ditch the GP, and tell them why.  I think more frequent jabs are working for me.  Maybe they will help you, too.

    Ferritin is your "stored iron", as opposed to your "cell count" (the number of red cells in your blood) and haemoglobin (effectively the amount of oxygen-rich iron carried in them).  Are you are getting iron tablets too?

    The other tests are aimed at finding root causes for your condition and determining the right treatment, as there may be more than one thing going on.  Take everything you can get out of the NHS, make sure you get written details of all your test results so you can discuss them and do research on the internet.

    Be kind to yourself. You are not well, and working hard while sick will only prolong illness.

    Let us know how you are getting on.

    • june_rose
      june_rose bluemaran

      Posted

      Thankyou for you for your support, I guess the virus fo 2 months coupled with the last 6 weeks waiting on  the jab , I've got too low . 

      As far as ditching the GP as I said before i belong to a pratice that has several others and would all think the same Sadley, so I would have to travel several miles out side the area to get another one so its not so easy any way I do have my secret stash of b12  and will use it but am scared if I have to inject as I have never done this before  any tips and where can I check its the real thing ?

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