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  3. Polymyalgia Rheumatica and GCA

cannot sleep too many thiongs going on

Posted , 8 users are following.

margaret22251
margaret22251

I have been up since 3.30 am this morning.

1. i think i must have overdone the knitting last night as i have pain in my left hand that has kept me awake all night.

2. i have been having a urine infection that wont go away, and after having a scan they found my bladder does not fully empty. I have had various antibiotics/pencillion but all they do is bring me out in a rash all over my body,and my eyelids are swollen. My friend suggest i have a bath in equal parts lavender/teatree oil, but i dont know if this will be ok, she says this should help.

3. i have lost my appetite and also half stone in weight.

I have a good diet of porridge oats/ fresh fruit/ fish/chicken/turkey dont eat a lot of dairy.

4. should i take a vitamin, could anybody recommend one

i am sorry to moan as some of you seem to be having more problems than me, buy i find it helps me to talk to someone who understands.

If anybody has any suggestions to the above i would be grateful to hear them.

Many thanks Margaret

0 likes, 19 replies

19 Replies

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  • teenyjeeny
    teenyjeeny margaret22251

    Posted

    I know what you are going through poor love having had PMR 14 years  now on and off Prednisolone, I have lots of other health problems so on loads of medication , for my heart /osteoporosis / arthritis/ sponilylethesis. I have just  fell down my sons stairs and broke my coxis nightmare .I have learnt to  try and relax and not do to much, but like all of  us when I have a good day I tend to over do it and like you at the moment, I suffer after. I also keep getting water infections, They have found my badder tubes to tight so  going  to have op to stretch them having to wait as having a ICD op this month then later in few months Hernia op.I think the body cannot cope with all that we throw at it.when we have PMR the imune system is so low. I have to say I wear arthritis glove and they do help. and I drink so much water never anything else..I have at least 2 baths a day  just warm with muscle   soak and lovely bath oil any one or cream bath. I some times put a little drop of tea tree oil but its very

    drying . so try and rest more I am off for an afternoon nap now as so tired from overdoing it yesterday.

    • tina-uk_cwall
      tina-uk_cwall teenyjeeny

      Posted

      Oh teenyjeeny, I'm so sorry to read of your fall. You must be in a lot if pain but as you say you must try and relax although I doubt you have much choice at the moment. I wish you a speedy recovery. All the best, Christina 
    • teenyjeeny
      teenyjeeny tina-uk_cwall

      Posted

      Thank you Christina , this site is so good can  have a god moan makes you feel better !!! x

       

  • LisaCACO
    LisaCACO margaret22251

    Posted

    omg aren't we all feeling horrible! wish we could all just get together at a health spa and have someone take care of us for a couple of weeks free of charge!

    sending love and support out to everyone. 

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