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CBD oil

Posted , 22 users are following.

pam76053
pam76053

Hi 

I'm 52 I've had polymyalgia for 2 years  treated with prednisone 

I'm currently down to a low dose 4mg

Has anyone tried Daily CBD oil to treat the inflammation  polymyalgia ? 

I'm having difficulty reducing lower than 4 mg, wondering if I should try CBD 

Seems to be the new thing 

0 likes, 19 replies

19 Replies

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  • AlVB
    AlVB pam76053

    Posted

    Hi Pam,

    I wonder very much about medical marijuana and CBD for PMR, and know several people that use the plant to combat different symptoms of their illness (PMR related and non-PMR). Unfortunately it's still very stigmatised in the UK to the point that I think that it's difficult to purchase real CBD at a price that is reasonable. Definitely research it carefully!  Personally I think it's a much maligned and little researched due to fear of 'drugs'.

    I don't even know if this subject is welcomed on this board as you don't see much discussion about it?

     

  • joan60597
    joan60597 pam76053

    Posted

    What is CBD please i am into third year of polymyalgia low dose steriods but much pain in shoulders etc no energy grateful for help thankyou Joan
  • AlVB
    AlVB pam76053

    Posted

    My comment is being moderated, so this is obviously a touchy subject...
  • nick67069
    nick67069 pam76053

    Posted

    I cant' comment on CBD oil, but I can comment on your attempt on reducing prednisone.  While all of us try to reduce prednisone, it helps to keep in mind that prednisone does not cure PMR, it just manages symptoms. What it means is that your lowest dose that manages symptoms (currently 4mg) is a function of how active ( or not ) your PMR is. If PMR is less active, you need less prednisone. If you need 4mg currently to manage sumptuous, that is what you need.

    I am approaching 2 years too ( in December).  Last year I hit the wall at 5mg and could not reduce further. Instead of worrying about it, I decided to stay at that level for a while (6 months +) . Then I tried to reduce the dose and it was easy. I guess PMR became less active and  my body adjusted and started producing enough cortisol.  I am currently at 4mg, reducing to 3.5.  I expect that I will run into another wall at some dose, and I will do the same trick.  It is not a race to zero; it you do so, it only gets you in trouble.

    • lodgerUK_NE
      lodgerUK_NE nick67069

      Posted

      Once down to 7.5mg and below (usually they will say wait till 5mg) , it is wise to ask for a Synacthen test.

      Just to check those adrenal glands are waking up.

    • Twopies
      Twopies nick67069

      Posted

      What happened when you hit the wall?  What were your symptoms? Thks.
    • Twopies
      Twopies lodgerUK_NE

      Posted

      1) What happens if they find your adrenals are sleeping?  2) if they are sleeping, will they ever wake up?  Thanks!
    • EileenH
      EileenH Twopies

      Posted

      If the adrenal glands are CAPABLE of producing cortisol then you continue to try a VERY slow reduction in the hope the very complex feedback system will settle down and work properly again. If the adrenal glands and the rest of the system are faulty in some way (there are several possibilities that might prevent teh production of cortisol) then you either remain on a low dose of pred or are switched to hydrocortisone. Which is used tends to depend on your doctor's preference.

      The local head of medicine here says his experience is that if  you reduce slowly enough the function will almost always return. On the other hand, I know 3 or 4 people on the forums with adrenal insufficiency. They mostly are on a low dose of pred. 5mg or less, so there must be some function but not enough. I only know one person where the endocrinologist says there is no cortisol production.

    • nick67069
      nick67069 Twopies

      Posted

      When I tried to get below 5mg first time, I can feel some of the PMR symptoms started to return just before I reached half point in taper using DSNS.  Rather then risk a flair, I just went back to previous dose that I was fine ( 5mg) and stayed there for a while ( I usually would make another attempt in reduction within a month).  About that time I read here in the forums about some doctor recommends staying at 5mg for up to 9 months . I decided to try that.  It helped me, because when I tried next time reduction it went really smooth.
  • lodgerUK_NE
    lodgerUK_NE pam76053

    Posted

    When you say 'difficulty' exactly what difficulty. 

    And are you using a reduction plan?  If not and you want a couple free, then send me a PM.

  • Blockhead
    Blockhead pam76053

    Posted

    My be worth a shot, I'm at 19MG a day and down sizing a MG per week. My sisters use that CBD oil for other isues, so the one who takes it for back pain swares by it. Dont know if tge side effects or its proven abilities. I haven't tried it yet. My Dr. Wants me off all vitamins and hollistic herbs until we get to the underlying cause of my hands being numb and swollen along with the PMR I may try it sooner than later if no solution is come upon soon. Good luck!

  • EileenH
    EileenH pam76053

    Posted

    This topic comes up every so often on the forums. It has sometimes been allowed - unless people get controversial about it.

    It isn't available everywhere and in some countries where it is it is very expensive - and immediate barrier for many.

    It is unlikely to deal 100% with the inflammation of PMR - but if you can get it, no reason not to try it.

  • susan29426
    susan29426 pam76053

    Posted

    I've been taking it by capsules twice a day and find it helpful.

  • Bethune
    Bethune pam76053

    Posted

    What is CBD?  I got stuck at 5 mg before... then had a flare and had to go up and start the taper all over again..
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