CBD oil
Posted , 22 users are following.
Hi
I'm 52 I've had polymyalgia for 2 years treated with prednisone
I'm currently down to a low dose 4mg
Has anyone tried Daily CBD oil to treat the inflammation polymyalgia ?
I'm having difficulty reducing lower than 4 mg, wondering if I should try CBD
Seems to be the new thing
0 likes, 19 replies
AlVB pam76053
Posted
Hi Pam,
I wonder very much about medical marijuana and CBD for PMR, and know several people that use the plant to combat different symptoms of their illness (PMR related and non-PMR). Unfortunately it's still very stigmatised in the UK to the point that I think that it's difficult to purchase real CBD at a price that is reasonable. Definitely research it carefully! Personally I think it's a much maligned and little researched due to fear of 'drugs'.
I don't even know if this subject is welcomed on this board as you don't see much discussion about it?
joan60597 pam76053
Posted
AlVB pam76053
Posted
nick67069 pam76053
Posted
I cant' comment on CBD oil, but I can comment on your attempt on reducing prednisone. While all of us try to reduce prednisone, it helps to keep in mind that prednisone does not cure PMR, it just manages symptoms. What it means is that your lowest dose that manages symptoms (currently 4mg) is a function of how active ( or not ) your PMR is. If PMR is less active, you need less prednisone. If you need 4mg currently to manage sumptuous, that is what you need.
I am approaching 2 years too ( in December). Last year I hit the wall at 5mg and could not reduce further. Instead of worrying about it, I decided to stay at that level for a while (6 months +) . Then I tried to reduce the dose and it was easy. I guess PMR became less active and my body adjusted and started producing enough cortisol. I am currently at 4mg, reducing to 3.5. I expect that I will run into another wall at some dose, and I will do the same trick. It is not a race to zero; it you do so, it only gets you in trouble.
lodgerUK_NE nick67069
Posted
Just to check those adrenal glands are waking up.
Twopies nick67069
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Twopies lodgerUK_NE
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EileenH Twopies
Posted
If the adrenal glands are CAPABLE of producing cortisol then you continue to try a VERY slow reduction in the hope the very complex feedback system will settle down and work properly again. If the adrenal glands and the rest of the system are faulty in some way (there are several possibilities that might prevent teh production of cortisol) then you either remain on a low dose of pred or are switched to hydrocortisone. Which is used tends to depend on your doctor's preference.
The local head of medicine here says his experience is that if you reduce slowly enough the function will almost always return. On the other hand, I know 3 or 4 people on the forums with adrenal insufficiency. They mostly are on a low dose of pred. 5mg or less, so there must be some function but not enough. I only know one person where the endocrinologist says there is no cortisol production.
nick67069 Twopies
Posted
lodgerUK_NE pam76053
Posted
When you say 'difficulty' exactly what difficulty.
And are you using a reduction plan? If not and you want a couple free, then send me a PM.
Blockhead pam76053
Posted
My be worth a shot, I'm at 19MG a day and down sizing a MG per week. My sisters use that CBD oil for other isues, so the one who takes it for back pain swares by it. Dont know if tge side effects or its proven abilities. I haven't tried it yet. My Dr. Wants me off all vitamins and hollistic herbs until we get to the underlying cause of my hands being numb and swollen along with the PMR I may try it sooner than later if no solution is come upon soon. Good luck!
EileenH pam76053
Posted
This topic comes up every so often on the forums. It has sometimes been allowed - unless people get controversial about it.
It isn't available everywhere and in some countries where it is it is very expensive - and immediate barrier for many.
It is unlikely to deal 100% with the inflammation of PMR - but if you can get it, no reason not to try it.
susan29426 pam76053
Posted
I've been taking it by capsules twice a day and find it helpful.
Bethune pam76053
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floramac Bethune
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Bethune floramac
Posted