Posted , 16 users are following.
I think those of us who have Chronic Fatigue Syndrome can agree that we need extra rest, a good diet, persistence with recalcitrant doctors, and to maintain as positive an attitude as we can.
Right? That said, please, can anyone provide any tips, remedies, activities, Anything, that you have found that work to increase your energy level? Anyone?
3 likes, 51 replies
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end Sassylass
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Anyone know what field of consultant would be seen re POTS?
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pam_87693
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beth97678 Sassylass
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Vits C,D and E are very helpful.Especially D as it helps to heal soft tissue throughout the body.Most people are very deficient in it.
My ex,who had this for 30 years (10 when it impacted most) swore he felt tons better after 7 pints of bitter, Lol.........I suggest lots of fluids of whatever kind.It does help to flush the toxins out of the lymphatic system,thereby improving how you feel.
A tolerant partner who doesn't just assume you're lazy when you can't do as much physical work as you used to.
A decent doctor who has read up on the Epstein Barr virus and what it can do to the body.
pam_87693 beth97678
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beth97678 pam_87693
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The clue to it's spread and it's nasty effects is that it doesn't cause too many problems in childhood.It's teens and student-age kids that it knocks for six(which is why they call it the "kissing disease").
If a teen has maybe 2 or 3 infections within a short space of time ,the immune system is compromised and this bugger (Epstein Barr) pounces and gives them glandular fever,which can last a loooong time.
pam_87693 beth97678
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Sassylass
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mark57938 Sassylass
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You'll know when your hormones are starting to work properly again, and at that point you can start to exercise and pace yourself back into the rat race
Sassylass mark57938
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Hormone balancer, suma root powder. Awesome, this is exactly why I started this discussion, and I'm learning some great stuff. I will definitely give this a try, many thanks!
mark57938 Sassylass
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seidman Sassylass
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Nothing medically, but plenty of other life savers:
Taken up knitting, it's good to be able to make stuff and give it as presents.
Watching TED lectures when not fuzzy headed
Reading different novels
Buying a good electric pedal bike. They are easier to ride than ordinary bikes, as the motor can do most of the work. It's far far easier than walking. Some of the bikes have a throttle which means you don't Ben have to pedal - but these will be illegal in the UK unless bought in 2015 or earlier (so if saving for next year, only pedal assistance - which is what I enjoy)
i drink water mist of the time, it keeps weight down.
Meals with friends and family - even if you have to lay down after half an hour. Mine have got used to it - and we can still have a good natter or watch a film.
seidman Sassylass
Posted
Nothing medically, but plenty of other life savers:
Taken up knitting, it's good to be able to make stuff and give it as presents.
Watching TED lectures when not fuzzy headed
Reading different novels
Buying a good electric pedal bike. They are easier to ride than ordinary bikes, as the motor can do most of the work. It's far far easier than walking. Some of the bikes have a throttle which means you don't even have to pedal - but these will be illegal in the UK unless bought in 2015 or earlier (so if saving for next year, only pedal assistance - which is what I enjoy). It was a choice of mobility scooter or powered push bike, I've not regretted the bike.
i drink water miost of the time, it keeps my weight down.
Meals with friends and family - even if you have to lay down after half an hour. Mine have got used to it - and we can still have a good natter or watch a film.
Sassylass seidman
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Reading helps keep me sane. And yes, lots of water for me too! You are lucky to have people around who understand your limitations. I am not able to make my 73 year old VERY healthy mom understand why I am the way I am, and my beautiful 15 yr. old daughter is increasingly aware of my lack of energy but I don't want to worry her so...I'm on my own. But I have just resolved to accomplish something every day that I feel good about, do the things I can that I know are good for my health, and find something to laugh out loud about every day. Thank you for the positive input. And by the way, why are they outlawing those bikes? I'm in the US so I'm curious.Sassylass
seidman Sassylass
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The only way with folk that don't get it is to educate them. If you can show the IOM video or slides, it might help. The trouble is, if you are like me, you don't look ill! I've been like this and I even forget what it's like, briefly. So we might start to think of a holiday - then realise getting there would wipe me out for a few days - and there is more to do at home, in reality - as getting about when on holiday wouldn't work - can't walk hills any more, etc. So it's hard for folk that don't see us everyday to understand.
Knitting has been a lifesaver for me!