CHAPEL ALLERTON
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Should i be aware of the doctors at chapell allerton when i go, is there something i should know abpout,
Can anybody tell me how much VitC and Vit D i should take in a day please, as i have got the dreaded cyctist again, my friend thinks too much of these canc ause problemS. mANY THANKS mAGS
0 likes, 26 replies
pauline36422 margaret22251
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EileenH margaret22251
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Chapel Allerton has a good rheumy department - it was just one lady had a problem that I wanted to know more about. You should have been referred to Sarah Mackie and her team who are superb.
Mrs.Mac-Canada margaret22251
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I don't know about supplements and cystitis but you can also ask your Dr. for a blood test to see if you have any deficiencies. Mine does calcium, magnesium, potassium and vitamin D. No point in taking them if you don't need them. Excess Vit C is just peed out but I think Vit D is stored????
i understand that many people take vit D because it takes sunlight as well as magnesium to be produced in the body and we don't all get a lot of sunlight. Sunscreen apparently blocks the ultraviolet so you need to be without it for a short time when you're in the sun.
Hope you're feeling better soon🌻💐🌺
Hugs, Diana🌸
margaret22251 Mrs.Mac-Canada
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Lovely to hear from you, i am learning more and more each day from all you ladies have taken all the info on board, Many thanks
Take care
Hugs back Mags
lodgerUK_NE margaret22251
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try this old fashioned remedy, not pleasant but I and others have found it still works. 1 teaspoonful of bi-carb in as little water as possible, repeat twice leaving 4 hours between each dose. If that does not stop it in its tracks, Medics for you.
lodgerUK_NE margaret22251
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EileenH margaret22251
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Cystitis can be a problem in PMR - and some say it can also be due to pred. Mine was definitely PMR and it did improve a bit at the higher doses of pred! It is very unlikely either vit C or vit D are causing it. We had lots of posts about it a couple of years ago and the general concensus was we should have taken out shares in Tena! I used the smallest size of Tena until last year when the problem suddenly disappeared - I have a couple of packs in the cupboard!
Vit D is stored in the body. If you are lucky enough to make vit D from sun on your skin then the "factory" switches off after a certain amount has been made but supplements are stored without any limit which is why you should have a vit D test every 6 months to make sure it is staying in the right range - a test in May will show the lowest and in October the highest levels. You NEED to store vit D because it is those stores you will be using over the winter to keep the processes where vit D is essential going.
If you are having recurrent cystitis problems then ask your doctor about something called irritable bladder or overactive bladder syndrome. You can read more about it here:
https://patient.info/health/overactive-bladder-syndrome
which gives some advice about coping with it.
I realised that it often got worse (and now only happens) when I have been out and about during the day and have drunk far less than I usually do. You will see in that article that drinking too little can be a cause - the urine gets too concentrated and that irritates the bladder wall. In fact what I do is not take my calcium tablets on a day when I am travelling - because that is also something where the excess that wasn't needed for bones is excreted in the urine. It is fine as long as you drink enough but can get to too high a level when the urine is concentrated and it can irritate too.
Make sure the doctor doesn't hand you antibiotics without doing a urine culture - if it is overactive bladder then abx won't help at all. Drinking more water is a better approach - even though that may sound daft. But if you feel ill and shivery get the GP to send a urine sample for testing.
margaret22251 EileenH
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She was full of cold and had been up all night with her children who has chickenpox, so by the time we went through how i was on the pred, i forgot to ask her the amounts, really i should look it up, but you ladies are full of unformation and know more so i just wanted to know if i was taking too much. Talking of the colour of urine mine has been orange that dark and thats when it started, 4 500ml bottle of water i am drinking and i wondered if i was taking too much.
Many thanks Going to see my grandson Rory today and the sun is shinning so what more does a girl want.
Take care glad to have you back.
EileenH margaret22251
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Yup - lots more water needed when it is warm. I take it you mean four 500ml bottles? That's about the minimum and it also depends a bit what you are eating. Salty or sugary food needs more water, lots of veggies, soup and so on you don't need quite as much. If your urine is really dark in the morning that's fine and normal - but during the day it should get much paler if you are drinking enough.
lodgerUK_NE margaret22251
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Newsletter No 6 Nov 2010 page 2 my experience.
Autumn/Winter 2011 Newsletter Page 6. Article on Vit D was reproduced with the kind permission of Patient.co.uk
margaret22251 EileenH
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Yes fog brain i did mean 4 bottles a fay of 500ml water.,
EileenH margaret22251
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Don't you get your calcium and vit D supplement on prescription? Most of us do! Natecal or Cacichew or something.
margaret22251 lodgerUK_NE
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margaret22251 EileenH
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EileenH margaret22251
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margaret22251 EileenH
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margaret22251 EileenH
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EileenH margaret22251
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margaret22251 EileenH
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I did read somewhere that that can happen.
EileenH margaret22251
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margaret22251 EileenH
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My doctor has not said i will have another VitD test but i will also mention this as any thing to help me make PMR better i will do.
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