CHARITY LAUNCH WEEK

Hi, Mrs. O! Unfortunately it is still a tad colourful at the moment....but hoping the worst of it will be gone by Thursday.

Is yours beginning to fade? It should be by now.....subconjunctival haemorrhage if you want to check it out....mine used to fade quite quickly once the discolouration began.

I'll wear my shades whatever the weather if you'll wear yours......

Nefret

Hi Nefret - It spread after 24 hours to the whole eye which I gather is the norm for these haemorrhages and then stayed much the same for a few days. It is now starting to fade from one side so if your black one is also starting to fade, then it looks as if neither of us will have to be incognito on Thursday after all 8) !

You take care on that train and don't talk to any strangers!

MrsO

Hello everyone Hope you all have a good time in London and a successful launch and lots of publicity !! Wish I could join you Also thanks to all who have worked so hard to get it this far Best wishes Mrs G

Mrs G - Yes, I wish you could join us too when some of us meet up the day after the launch. Never mind, I'm sure that we all have the feeling that we know each other anyway from sharing all our experiences on this invaluable forum. In fact, you and Lizzie-Ellen must have had burning ears on Saturday night - my closest friend brought her new beau to dinner and he was talking about his apartment in Alicante. I mentioned that a couple of my new 'friends' on the forum also had places in Spain....of course, he asked where but although I remembered that you both mentioned their whereabouts in a post, that was obviously too much for my little grey cells to absorb and remember!

Perhaps some time in the not too distant future, following the Charity launch, we will have a group somewhere in the South East where we can all get together occasionally Until then, at least we have got this brilliant site, haven't we.

Do hope that you and everyone looking in has had a good and comfortable weekend. It has been lovely to see the sun but I just wish whoever is inside it would turn the heating up a little!

MrsO

Best of luck. Hope to be able to contribute now and in the future in any way possible.

So much that is good comes from forums, contacts, shared interests and information. So depressing that, as ever, human beings will also polute, deprave and degrade. Original sin??

However, I AM an optimist.

All the very best for the launch. This site has meant so much to me over the past few months and I know there are several people putting in a lot of effort for us. Many thanks from Lizzie Ellen :D

Hello everyone and hope it's a good day for one and all!

Just thought you'd like to hear that I, together with Nefret, MsK and \"Greens\" (lovely to meet you) and several others met up with the wonderful band of PMR Fighters in London yesterday following their attendance at the launch of the new Charity the previous day. It was lovely to be able to put faces to the names of these people who, together with other groups across the country, have been so instrumental in spreading the word of PMR/GCA and reaching this landmark point of charitable status, not to mention the invaluable support they have given to countless individuals along the way. Needless to say, I found them to be an absolutely charming group of ladies and feel privileged to have had the opportunity to meet up with them.

One important bit of information for you all: Dorothy Byrne, Channel 4 Producer (I believe of News and Current Affairs) attended the launch and will write an article to appear in The Daily Mail next Tuesday You may remember that she is the lady whose article on her experience with PMR appeared in The Mail recently. I also understand that she is hoping to produce a documentary at some time in the future.

Lots of good wishes to everyone 'looking in'.

MrsO

I'm sure that Mrs K from the North East Support Group will be posting re the launch when she re-groups following her trip to London.

[b:81b006d5c5]NEFRET[/b:81b006d5c5] Perhaps if I've missed anything, hopefully you'll be able to fill the gaps!

Hi Mrs O!

I can't think of much else to add - if anything does pop into my mind, I will tack it on (it might, I suffer from delayed action brain waves - think it's either PMR or age related and there's no telling which).

The amazing journey those 5 ladies have made during the last couple of years would make a superb documentary. They will continue to have my support as much as physically possible for me.

I am so glad I was able to make it to London, something which has been in doubt since it was first mentioned due to my heath problems. But I did it and have been no end cheered by the meeting.

I will just add that during the last two weeks I have been feeling better and better on a daily basis...........and I hope I don't wish I hadn't said that!

Nefret

A sunny and warm good morning to one and all and I'm so sorry to all of those who've rushed out to get The Mail this morning to find that the promised article from Dorothy Byrne was nowhere to be found. I have 'phoned The Mail who are unaware of such an article. I will, therefore, try and get back to the person who passed this info on to me to see if she can throw any more light on it. Meanwhile, I'm sorry for any inconvenience this has caused - I owe you all a drink if ever we meet up! :coffee:

MrsO

Mrs O

No need to apologise to anyone, the newspapers are a law into themselves.

We were assured at the launch that it would be in this Tuesday, however we have now been told - It [b:b3b8949437]may [/b:b3b8949437]now be next Tuesday 23 March. A larger spread.

Notice I highlighted the 'may', that is so you all cannot berate me when it does not appear.

Apart from all that, I have been hit by those 'ten ton trucks' that keep coming out of nowhere and am trying to cope with it all.

I so enjoyed putting names to faces and thanks for coming along and making our day - it was just like 'A Charm' all coming together.

I sincerely hope that you all keep in touch with each other and that, perhaps once the Nat Org gets going, a more structured meet can be set up and maybe, just maybe a few of you will feel able to meet up with each other, say once in three months, and then London and the Home Counties can take their place in the Charity.

On a personal note, I was diagnosed with GCA Feb 2007 and together with other dedicated, clever, friendly women who I met, both on the internet and personally and whom without this could never have happened - PMR-GCA UK was launched on 10 March 2010.

Girls, I salute you all.

NB 'A Charm' well you could search for it - but here is the meaning. The collective noun for Goldfinches, of which I have up to 22 visiting my bird table and who all nest in the hedge at the top of the field.

Mrs. K, so sorry you've hit the 'pay-back' time for your efforts last week.

I got mine on Saturday, it was a rough day.

It was lovely to meet you all there, I'm so glad I was able to get to it. My congratulations to all of you for what you have achieved during the last two or three years.....an amazing enterprise.

Nefret

Mrs K

Thank you and I shall get next Tuesday's Mail in hope.

It is so unfair that you are now suffering following all your good work last week but I'm not at all surprised.....like Nefret, I had a bad couple of days at the weekend and that was just following a one day not very long trip to London However, it was so well worth it to meet up with you and the rest of the group of PMR Fighters - charming ladies, all of you.

I do hope we don't let you down and that we do get a group together in this area sometime, somewhere.

I've taken copies of the leaflet you handed out and am going to put them in the local Day Centres and surgeries.

I do hope you soon feel on top of things again and can bask in the wonder of what you and those other fine ladies have achieved.

Take care.

MrsO

So glad you all feel so positive about last week despite the \"pay back\"! Why don't you go on line to look at the Mail next week rather than rushing out to buy it? That's what I did last time there was a PMR article in it and then printed it off. If I could find it I'm sure others can! More sun today then a change so make the best of it all of you! LOL green granny

Good morning everyone from a very wet part of the country - still I suppose at least the gorgeous daffodils are enjoying the drink!

Just thought you may like to know that the promised article on PMR by Dorothy Byrne (Channel 4 producer) is in today's Daily Mail and, if you can't get out to buy it, then perhaps you can upload it from the internet as Green Granny suggested previously. It's a full spread and good article quoting the, sometimes tragic, experiences of many others and, importantly, highlighting the danger signals of GCA - I wish it wasn't too much to hope that this will reach every GP in the country.

Best wishes to everyone.

MrsO

Thanks for the info Mrs O. On my way round the newsagents now :run: